“You matter, your care matters,” was the key message from his Excellency Sir Peter Cosgrove, Governor-General of Australia in declaring National Palliative Care Week 2017 open today. Palliverse was lucky enough to be in attendance for the event held on a stunning Canberra Autumn morning at Government House.
Join next week’s #PallANZ tweetchat on the topic of “Living Well with Chronic Illness”, the theme of Australia’s National Palliative Care Week (#NPCW16). Anyone with experience of living with life-limiting chronic illness, having a loved one with chronic illness, or working with people with chronic illness, is encouraged to participate. You don’t have to be Australian, and Twitter newbies are welcome!
Palliverse acknowledges the traditional custodians of the lands on which we live, and we pay respect to Elders past and present. We also acknowledge the important contribution of Aboriginal and Torres Strait Islander people to Australian society.
The delivery of high-quality, culturally sensitive and respectful palliative care services to Indigenous communities is critically important. In the Australian context, a recent press release from NACCHO highlights some of the key issues, including the need to partner with Indigenous communities to develop and implement culturally appropriate services.
In the spirit of respectful, inclusive communication and ongoing learning, we invite you to join us for an online “Palliative Care Yarning” tweet-chat on 31st March 2016. This tweet-chat will be an opportunity to discuss some key issues in palliative care for Indigenous and First Nation peoples, including Aboriginal and Torres Strait Islander people in Australia.
When? Thursday, 31st March 2016
- 4:00pm AWST Perth
- 5:30pm ACST Darwin
- 6:00pm AEST Brisbane
- 6:30pm ACDT Adelaide
- 7:00pm AEDT Canberra, Sydney, Melbourne, Hobart
- 9:00pm Wellington, Auckland, Christchruch
What? Topics for discussion:
- T1 What does high quality Indigenous palliative care mean to you?
- T2 How can we improve equity in palliative care delivery to Indigenous communities across remote, regional and urban settings?
- T3 How can existing services collaborate with Indigenous communities in palliative care? (eg training, advocacy, service delivery)
- T4 How will the services of the future deliver high quality Indigenous palliative care?
As always, we ask that you include the topic tag (e.g. T1) in your response to each topic, and include the #PALLANZ hashtag in your response. As the #PALLANZ community is international, we respectfully encourage use of the term ‘Indigenous people’ where referring to Indigenous and First Nations people and communities from across the world during the tweet-chat. The @Palliverse moderator for this tweet-chat (@csinclair28) will be responsive to any specific requests or feedback from participants regarding appropriate and respectful language.
You don’t have to be an expert, a Twitter whiz, or even live in Australia or New Zealand to join – in fact, we strongly encourage those new to Twitter and from beyond our shores to join us and share your views!
For those new to Twitter check out our tutorial here.
Looking forward to talking soon.
Here at Palliverse, we love online communities of practice. The monthly #PallANZ tweet chat, co-hosted by Palliverse and Palliative Care Australia, is not the only online educational opportunity that may be of interest this week. While we hope you join us for Thursday evening’s #PallANZ discussion of advance care planning, you might also like to check out the following exciting events: Continue reading
And we’re back for another round!
Following on from the highly successful inaugural #PallANZ tweet chat last month, we are delighted to announce that we will be hosting another tweet chat in November! Join team Palliverse (@Palliverse) and Liz Callaghan, CEO of Palliative Care Australia (@PCACEO), and “Let’s talk about death, baby!” Share your stories and reflections on having THE conversation with your family, friends, patient, doctor, nurse, spiritual counsellor…
Date: November 5th 2015
- 7pm AEDT (Canberra, Sydney, Melbourne, Hobart)
- 6:30pm ACDT (Adelaide)
- 6pm AEST (Brisbane)
- 5:30pm ACST (Darwin)
- 4pm AWST (Perth)
- 9pm NZDT (Wellington, Auckland, Christchurch)
- Other time zones 8am GMT, Hong Kong/Singapore 4pm
Hope to see you all there!
With a theme of ‘Fit for the Future’, the 13th Australian Palliative Care Conference utilised a coordinated and multifaceted social media strategy to enhance the delegates’ experience and reach new audiences globally. This was achieved through the concerted efforts of team Palliverse (@Palliverse) and other key individuals, including Christian Sinclair (@ctsinclair). Continue reading
Attending the 13th Australian Palliative Care Conference in two weeks? If you don’t have one already, now’s a great time to create a Twitter account and check out these handy tips about using Twitter at health conferences.
If you’re not attending the conference, then you can follow the #13APCC hashtag to see what conference attendees (including @palliverse) are sharing. You do not need a Twitter account to follow the hashtag, just follow this link for up to date conference tweets.
We will also be updating the Palliverse Facebook page during the conference.
Will you or your organisation be posting to social media from the #13APCC? If so, please share your details below so we can follow you!
Elissa (find me on Twitter @Elissa_Campbell)
I have a few palliative care links to share this week. If you’re not satisfied, we also share links on our Facebook page and Twitter account (you don’t need your own Twitter account to see what we’re posting), and you can check out our Elsewhere in the Palliverse archives.
At the End of Life Studies blog, Dr Naomi Richards examines the question, “Is the voluntary refusal of food and fluid an alternative to assisted dying“?
Talking About Dying Won’t Kill You, says Palliative Care Australia, writes comedian Jean Kittson (Sydney Morning Herald)
And a palliative care nurse told me that day after day she visited a person dying at home and day after day she walked into a house full of scented candles and rainforest music, until one day she said “Is anyone else sick of these scented candles?” and the family said “Yes”. “And is anyone else sick of this rainforest music?” And the family said “Yes”. So the nurse said “Well, let’s open some windows, and what music does your mum like? OK, let’s put on some Stones.”
How would you choose to live, if you were diagnosed with a life-threatening illness?
What are the most important things in your life? What can’t you live without?
The theme of National Palliative Care Week (24-30th May) this year is “Dying to talk; talking about dying won’t kill you”. In fact, talking about how you want to live and die can be empowering and bring you closer to those who matter most to you. On the other hand, not talking about it can lead to regret – both for you but also for those you leave behind.
As part of National Palliative Care Week, the Palliative Care Service at Alfred Health hosted a public forum on Monday, discussing the topic: “The Top Five Regrets of the Dying”, based on a book by Australian palliative care nurse Bronnie Ware.
Palliative Care Australia is hosting a number of FREE trivia nights across Australia during National Palliative Care Week, to raise community awareness of palliative care. Trivia nights will be held on Friday 29th May, 2015, In Sydney, Melbourne, Canberra, Brisbane, Adelaide and Perth. Tickets can be booked for no cost via the Palliative Care Australia website. Prizes are available.
Please consider attending, inviting friends and sharing via social media. Of course, attendees do not need to be affiliated with palliative care – in fact, if they have no knowledge of palliative care, all the better to raise awareness.
Palliverse team members will be at the Melbourne and Perth (and maybe other) trivia nights and we hope to see you there.