Palace of Care – Man versus Machine Experiment

Photo by charlesdeluvio on Unsplash

I had been meaning to write the following blogpost for the past weeks and decided to do it today. I was also inspired by a LinkedIn post from a writing community co-member to try out ChatGPT the AI Author bot from https://chat.openai.com/chat. Here’s a comparison of what I wrote in one 25 minute Pomodoro and what ChatGPT wrote in 25 seconds.

A too late early Christmas Present – by James Jap – 25 minutes

Communication had become difficult and was another thing that cancer had robbed her of. She had lost her voice and had to write words down in order to communicate.

She had tried various methods from good old paper and pen, and had settled on a whiteboard and a set of markers.

This worked well enough but due to her condition at times the whiteboard would become wet and then the markers could not write clearly. Waiting for the marker and the board to dry off meant a delay in communication.

Simple gestures could be made in an attempt at impromptu sign language but it could not convey what she wanted to say.

She could mouth words and some people were better than others at reading lips but this was not something that could be counted on.

I had enjoyed getting to know her and we had exchanged witty banter between ourselves.

I would say something.

She would write something funny in response.

She made fun of my hairstyle. She talked about my bathroom habits and my general appearance.

I talked about referring her to our physiotherapist to help with mobility and to help with clearing chest secretions.

She wrote, “I don’t want them thumping me.”

I replied that I would not let our Physio-terrorist do that to her.

She raised her eyebrows in quizzical fashion.

Despite severe pain she never lost her sense of humour.

Christmas was coming up and I wanted to surprise her.

I had seen some electronic notepads in one of those stores that used to sell books, I think people in the past called them bookstores. I made a plan to buy one for my patient.

I thought that having something with an LED screen that could be written onto with a stylus could be handy for her, and it could be erased with the press of a button.

I went out to search for this little notepad but not being an experienced shopper I made a number of mistakes.

I knew there was a bookshop nearby in the local mall, I headed out to the mall, and then could not find the bookshop. In the three years since I had been to the mall, the bookshop had closed down.

I looked for other bookshops but then smartened up and looked up where I could buy the electronic notepad from a local shop.

I found it and proceeded to the shop, I asked three people for their assistance but no-one was able to help me.

The fourth person at the customer service desk confirmed my worst fears, they were out of stock. But I could go across town to their other branch which had stock.

Off I went with my phone’s battery running out, making GPS a soon to be unavailable feature. For some reason traffic is busier in the weeks before Christmas. Shops are also busier and people seem more stressed and less friendly.

I arrived at the other store branch and again asked for assistance showing the store worker a picture of what I wanted to buy. He was helpful and led me right to a shelf which contained non-electronic clipboards.

On his second attempt we found the electronic notepad I had been searching for. Success at last. I tested it out, I could write on it easily with the supplied stylus and it erased with the touch of a button.

I presented the electronic notepad as an early Christmas present to my patient, and showed her how to use it. She thanked me in writing and I said I would catch up with her the next day.

The next morning I went to see the patient but the electronic notepad was not in sight. The old whiteboard was there.

Had my early Christmas present come to late to be of use?

My patient was much slower to respond to any questions, and even had greater difficulty in writing. She had deteriorated overnight and was not her usual self. Her usual quick wit had slowed down markedly and she was not as clear in her mind as she had been just yesterday.

A lot can change in a day in a palliative care setting and here was a clear example of the change, she had changed cognitively overnight and was not longer able to use the electronic notepad.

I worried that this meant that she might only have a short time left to live, and this was conveyed to my patient and her family.

A too late early Christmas present – by ChatGPT Dec 15 Version – 25 seconds

It was the first week of December and Lucy was already feeling the holiday cheer. She had always loved Christmas and the excitement of gift-giving and receiving.

This year, she had decided to surprise her husband with an early Christmas present. She had found the perfect gift, a new set of golf clubs that he had been wanting for a long time. She wrapped it up carefully and placed it under the tree, planning to give it to him on the following Saturday.

However, on Wednesday night, Lucy’s husband came home with a big grin on his face. He had received an early Christmas present from his boss at work – the exact same set of golf clubs that Lucy had bought for him.

Lucy was initially disappointed, but she couldn’t stay mad at her husband’s excitement. They decided to return the duplicate gift and use the money towards a family vacation instead.

In the end, it turned out to be a blessing in disguise. The family enjoyed a wonderful vacation together, creating memories that they would cherish for a lifetime. And when they returned home, Lucy’s husband was still grateful for the thought and effort that she had put into her early Christmas present.

National Aotearoa palliative care research day Sunday 6th November 2022 in Christchurch, New Zealand

Photo by Brayden Gray on Unsplash

My colleague Kaye Basire wanted everyone to know about this event which will precede the Hospice New Zealand conference 2022. The draft agenda can be downloaded below:

Aotearoa Palliative Care Research Day – Hybrid Event

We all recognise the importance of research in enhancing patient care. However, clinician led research in Aotearoa is often restrained by lack of support and resources. This is particularly acute in palliative care where there is often a sense of isolation due to the lack of national palliative care research strategy and network.

The Aotearoa Palliative Care Research Day is an opportunity for all current and budding palliative care researchers, to network and share ideas on advancing palliative care research in clinical settings. Prior research experience is not required.

Content of the day includes sharing of experience by practitioners who have incorporated research in their clinical work, translation of research findings into practice/policy and collaboration with academics.

The Dame Quentin Bryce Palliative Care Nursing Research Fund – Applications are now open!

Applications are now open for The Dame Quentin Bryce Palliative Care Nursing Research Fund – a new funding opportunity created to support research into palliative care nursing. The funds are offered by the Centre for Palliative Care (c/o St Vincent’s Hospital) and the Department of Nursing, The University of Melbourne.

Existing scholarship holders are eligible to apply (though please check the terms and conditions of your scholarship before applying).

Applications close on 25th June 2022. Please see the website here for more information and send any enquiries to shs-research@unimelb.edu.au

Volunteers sought for research on delirium


TITLE: Development of a core outcome set for effectiveness trials of interventions to prevent and/or treat delirium in palliative care (Del-COrS)

We are currently looking for volunteers including: patients, family members, carers, healthcare professionals and researchers with experience of delirium in palliative care.

Participants would complete two online surveys to establish their views on the outcomes that are important to include in future studies of interventions to prevent or to treat delirium in palliative care. We will subsequently invite participants to a meeting to discuss the findings and vote on outcomes they consider important.

Our goal is to develop international consensus on a core outcome set for research studies of treatments within a palliative care setting to prevent, and/or treat delirium.

Researchers look at the effects of potential treatments on patients by measuring an ‘outcome’. For example, in a study of how well a new delirium treatment works in a palliative care setting, an ‘outcome’ might be: whether a person hurt themselves because of delirium.

When a set of main outcomes has been agreed for a health condition, it’s called a ‘core outcome set’. This would allow all studies of delirium in palliative care to be compared and combined.

Please contact Dr Anna Bryans (Research Team Member) at abb526@york.ac.uk if you are interested in participating and pass on this information to anyone who may wish to take part.  

University of Melbourne survey for frontline health professionals on the impact of COVID

STUDY PURPOSE

This survey explores the important social, occupational and mental health effects experienced by frontline health workers during the COVID-19 pandemic and beyond. As the pandemic has changed our social and work environments in many different ways, we want to hear the experiences of both frontline health workers who have and have not worked directly with people with COVID-19.

We will examine factors that promote good mental health and wellbeing, as well as risk factors for poorer mental health. Your input will inform recommendations to healthcare organisations and other professional bodies.

https://covid-19-frontline.com.au/

WE WANT YOU

This study focuses on the experiences of medical, nursing, allied health, clinical scientists/physiologists/technicians, healthcare students and clerical staff who are working in the following frontline areas:

  • Anaesthetics/Peri-operative Care
  • Emergency Medicine
  • General Medicine
  • Hospital Aged Care
  • Infectious Disease
  • Intensive Care
  • Infectious Disease
  • Palliative Care
  • Paramedicine
  • Primary Care
  • Respiratory Medicine

People working in other frontline health areas (such as medical or surgical areas) are also welcome to take part.

You do not need to have worked directly with people with COVID-19 to participate, as we would like to hear from all frontline health workers.

Research on health practitioner norms and wellbeing in the context of assisted dying legislation

question Stefan Baudy

Health practitioners are invited to participate in research concerning the assisted dying legislation in Victoria, and how it will affect health practitioner well-being and norm development, particularly in the work context. This study is being conducted by researchers from Flinders University.

Interested health practitioners can find out more and participate in the research here.

The researchers would also like to request that if you think it is appropriate, you share this invitation with other health practitioners. Please also feel free to contact the research team directly with any comments or questions (via the link above).

Study shows why cancer patients are asking for medicinal cannabis

I can tell you, it’s true! Many cancer patients are asking their clinicians for medicinal cannabis – but worryingly,  around one in four patients believing it will help in control or cure the cancer, a Victorian study has found.

This study was carried out by a team at the Victorian Comprehensive Cancer Centre and Parkville Integrated Palliative Care Service, lead by Dr Stacey Panozzo, investigated the characteristics and medicinal cannabis requests of 1700 patients with breast, colorectal, melanoma and oesophageal cancer patients attending the three centres over a six month period in 2018-2019.

The study was also featured in this Limbic Oncology article.

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Advance care planning survey for health professionals in Australia

Message from Advance Care Planning Australia:

 

Are you a doctor, nurse, social worker or allied health professional working with people affected by cancer?  We need your help to better understand the barriers and enablers of advance care planning for people with cancer.

Advance Care Planning Australia, supported by funding by Cancer Australia, is leading research to help more Australians affected by cancer to access the benefits of advance care planning.

Participation is easy and requires only 15 minutes of your time to complete an online survey. With your involvement we can help more people with cancer to receive care consistent with their values, goals and preferences.

Survey: http://bit.ly/2Cm44Es

Immunotherapy Symptoms Clinical Trials: a new paradigm Melbourne Wed 12th June

Would you like to learn more about immunotherapy use and trials in cancer and in palliative care?

Immunotherapy Symptoms Clinical Trials: a new paradigm forum

Palliative, supportive and cancer care professionals are invited to attend the VCCC and CST co-hosted Immunotherapy Symptoms Clinical Trials: a new paradigm forum to progress clinical trials concepts in this evolving oncology field, recognise achievements, celebrate success and make connections for future directions. 

Palliative care progress and achievements

The VCCC Building Trial Group Capability Program initial investment is focused on developing the palliative care group as a key priority area. The group’s development and activities have been underway for more than 12 months; it is timely to celebrate progress and achievements.

Here is a program for the day

Registrations are now open for the palliative care sessions in the afternoon. Please note you will need to register for morning and afternoon sessions separately.

Survey – clinical trials in specialist palliative care

If you are a nurse, doctor or allied health professional in a specialist palliative care service please consider contributing to the survey below. It does not take long.

“Attitudes of Palliative Care Practitioners Towards Enrolling Patients in Clinical Trials

We would appreciate your participation in this survey as a health care professional who provides care to patients in palliative care settings.
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