TITLE: Development of a core outcome set for effectiveness trials of interventions to prevent and/or treat delirium in palliative care (Del-COrS)
We are currently looking for volunteers including: patients, family members, carers, healthcare professionals and researchers with experience of delirium in palliative care.
Participants would complete two online surveys to establish their views on the outcomes that are important to include in future studies of interventions to prevent or to treat delirium in palliative care. We will subsequently invite participants to a meeting to discuss the findings and vote on outcomes they consider important.
Our goal is to develop international consensus on a core outcome set for research studies of treatments within a palliative care setting to prevent, and/or treat delirium.
Researchers look at the effects of potential treatments on patients by measuring an ‘outcome’. For example, in a study of how well a new delirium treatment works in a palliative care setting, an ‘outcome’ might be: whether a person hurt themselves because of delirium.
When a set of main outcomes has been agreed for a health condition, it’s called a ‘core outcome set’. This would allow all studies of delirium in palliative care to be compared and combined.
Please contact Dr Anna Bryans (Research Team Member) at email@example.com if you are interested in participating and pass on this information to anyone who may wish to take part.
This survey explores the important social, occupational and mental health effects experienced by frontline health workers during the COVID-19 pandemic and beyond. As the pandemic has changed our social and work environments in many different ways, we want to hear the experiences of both frontline health workers who have and have not worked directly with people with COVID-19.
We will examine factors that promote good mental health and wellbeing, as well as risk factors for poorer mental health. Your input will inform recommendations to healthcare organisations and other professional bodies.
This study focuses on the experiences of medical, nursing, allied health, clinical scientists/physiologists/technicians, healthcare students and clerical staff who are working in the following frontline areas:
Hospital Aged Care
People working in other frontline health areas (such as medical or surgical areas) are also welcome to take part.
You do not need to have worked directly with people with COVID-19 to participate, as we would like to hear from all frontline health workers.
Health practitioners are invited to participate in research concerning the assisted dying legislation in Victoria, and how it will affect health practitioner well-being and norm development, particularly in the work context. This study is being conducted by researchers from Flinders University.
The researchers would also like to request that if you think it is appropriate, you share this invitation with other health practitioners. Please also feel free to contact the research team directly with any comments or questions (via the link above).
I can tell you, it’s true! Many cancer patients are asking their clinicians for medicinal cannabis – but worryingly, around one in four patients believing it will help in control or cure the cancer, a Victorian study has found.
This study was carried out by a team at the Victorian Comprehensive Cancer Centre and Parkville Integrated Palliative Care Service, lead by Dr Stacey Panozzo, investigated the characteristics and medicinal cannabis requests of 1700 patients with breast, colorectal, melanoma and oesophageal cancer patients attending the three centres over a six month period in 2018-2019.
Are you a doctor, nurse, social worker or allied health professional working with people affected by cancer? We need your help to better understand the barriers and enablers of advance care planning for people with cancer.
Advance Care Planning Australia, supported by funding by Cancer Australia, is leading research to help more Australians affected by cancer to access the benefits of advance care planning.
Participation is easy and requires only 15 minutes of your time to complete an online survey. With your involvement we can help more people with cancer to receive care consistent with their values, goals and preferences.
Would you like to learn more about immunotherapy use and trials in cancer and in palliative care?
Immunotherapy Symptoms Clinical Trials: a new paradigm forum
Palliative, supportive and cancer care professionals are invited to attend the VCCC and CST co-hosted Immunotherapy Symptoms Clinical Trials: a new paradigm forum to progress clinical trials concepts in this evolving oncology field, recognise achievements, celebrate success and make connections for future directions.
Palliative care progress and achievements
The VCCC Building Trial Group Capability Program initial investment is focused on developing the palliative care group as a key priority area. The group’s development and activities have been underway for more than 12 months; it is timely to celebrate progress and achievements.
The Australian and New Zealand Society of Palliative Medicine 2018 Conference #ANZSPM18 is off the a great start, with many excellent plenaries & proffered papers presented on day 1 – following an excellent Trainee Day & pre-Conference workshop on thought leadership.
Day 2 promises to be even more awesome, starting off with keynote speaker Tom Le Blanc sharing his insights on collaboration & integration between palliative care & haematology. The rest of the day will feature a variety of plenaries & concurrent sessions on the new frontiers of palliative medicine – the theme of the conference. I’m also looking forward to the conference dinner tonight!
You can find the sides for my presentation on Palliative Care in Heart & Lung Transplantation here: HLTX PC ANZSPM18 Chi Li
Despite being a Melburnian, I must admit that Sydney really is an irresistibly beautiful city when the sun comes out, especially by the water. The 44th Clinical Oncology Society of Australia (COSA) Annual Scientific Meeting was held in the newly renovated International Convention Centre in Sydney between 12-15th November 2017. With the sunlight streaming in through its many windows, reflecting off the waters of Darling Harbour, it really was the perfect place to be at the beginning of summer.
I attended the pre-conference workshop on cancer supportive care, which was organised by Judith Lacey, a palliative medicine specialist at Chris O’Brien LIfehouse. The whole-day workshop featured an interesting mixture of passionate speakers promoting a range of complementary treatments including medicinal cannabis, massage and probiotics; alongside others examining the evidence base for acupuncture, reviewing current clinical trials and prescribing pathways, and comparing different funding models for supportive care. It was a long but worthwhile day that set the mood for the rest of the conference. Continue reading →
I have to confess I am a fan of the New Zealand health system from across the ditch. Sensible spending. strong palliative care health service connections… am I wrong Bro?
This article has not succeeded in reversing my bias in favour of New Zealand.
Palliative data nerds will no doubt recall this fascinating study in Scotland by Professor Clark et al. Published in Palliative Medicine, and quickly attaining the journal’s highest-ever Altmetrics score (1) , Clark showed that among 10,743 inpatients in 25 Scottish teaching and general hospitals on 31 March 2010, 3,098 (28.8%) patients died during the one-year follow-up period. The findings were replicated in 2013 with similar results.
The study by the fabulous Professor Merryn Gott et al showed that on the same date, the corresponding figure in New Zealand (including obstetrics) was about half at 14.5%. Patients at higher risk of dying were the elderly of over 80 years of age, Maori, those with cancer, those from socially disadvantaged backgrounds, and those admitted under medical specialties rather than surgical.
New Zealand seems to provide better end of life care outside the hospital setting, with stronger end-of-life care in the aged care setting. This has certainly been a focus for service development in Australia as well.
How would we rate in Australia I wonder?
I would love to hear from international colleagues