#PalliCOVID #PallANZ tweetchat 7/4

#PalliCOVID #PallANZ (3)

Please join us for another tweetchat on Tuesday 07/04/2020 to discuss palliative care in Australia and New Zealand during the COVID-19 / novel Coronavirus pandemic. Find out from special guests Prof Meera Agar @meera_agar (Board Chair of Palliative Care Australia @Pall_Care_Aus) and A/Prof Leeroy William @drleeroyw (President of the Australian and New Zealand Society of Palliative Medicine @ANZSPM) what has been happening in this space since our last tweetchat – and share your experiences and resources with other palliative care practitioners from across our region!

When?

Who?

  • Palliative care clinicians, researchers, managers, policymakers, patients and carers
  • Interested / involved in helping our communities live, die and grieve well in the face of the life-threatening COVID-19 / novel Coronavirus pandemic
  • Living or working in Australia and New Zealand

How?

What?

  • Topic 1: Social distancing rules (e.g. restricting visitors & limiting funeral gatherings) have changed the way we care for the dying & grieve for the dead. How can we help patients & families to live well, die well, grieve well AND flatten the curve?
  • Topic 2: Telehealth and working-from-home poses unique challenges to a touchy-feely, team-based specialty like palliative care. Please share a story about how you’ve adapted (or not!) to these evolving work practices.
  • Topic 3: Meera & Leeroy – can you please give us an update on the work of the Australian COVID-19 Palliative Care Working Group? Does anyone else have any updates / policies / resources that they would like to share?

We hope you can join us for another great discussion!

 

#PalliCOVID #PallANZ tweetchat 23/3

#PalliCOVID #PallANZ

Please join us and other palliative care clinicians from across Australia and New Zealand on Monday 23/03/2020 for a tweetchat on the COVID-19 / novel Coronavirus pandemic.

When?

Who?

  • Palliative care clinicians, researchers, managers, policymakers, patients and carers
  • Interested / involved in helping our communities live, die and grieve well in the face of the life-threatening COVID-19 / novel Coronavirus pandemic
  • Living or working in Australia and New Zealand

How?

What?

  • Topic 1: Please share a story about your #COVID19 #Coronavirus experience so far – at work, at home and/or online
  • Topic 2: Have you come across any useful #COVID19 #Coronavirus resources that others might find helpful?
  • Topic 3: How can we look after ourselves and each other during the #COVID19 #Coronavirus pandemic?

We hope you can join us for a great discussion about this global public health challenge!

 

Palliating in a pandemic

It’s hard to overstate the impact of the novel Coronavirus on health systems around the world. It’s particularly poignant for palliative care workers, so familiar with dying, to imagine the loss and grief. We try to image what it could be like for health care workers at the front line. Soon we will not have to imagine, as we will be at the front line.

This article, written in 2010 about influenza by Dr Downar and Dr Seccareccia, is prescient.

Twitter as always is an invaluable source of dialogue on this issue. Try out this thread    from @AmitAryaMD  – you don’t need to be able to use Twitter to read it.

How are your teams and health care service preparing for the pandemic in Australia, New Zealand and elsewhere?

 

 

Putting the CAR-T before the horse?

Dr Benjamin Thomas’s excellent thread about economic justice for palliative care patients in the context of the announcement of a likely announcement regarding the Government funding around 200-250 patients for $500,000 each to receive CAR-T treatment.

He calculates what we could do for palliative care patients with the same money.

Worth a read! Thanks Ben @andiyarus

https://threadreaderapp.com/thread/1222006604289101824.html

 

 

Announcement re CAR-T funding

 

Inspired to improve your communication skills?

 Cancer Council WA delivers the very successful workshop on communication skills training, perfect for the situations described in our article earlier today.

For more information in WA see here

Cancer Council Victoria also has a variety of education and communication workshops and resources.

Know a great resource for communication skills? Comment below.

Continue reading

#advancecareplanning seminar in Melbourne 9 August

Featuring not one but two Palliverse tweeps, @csinclair28 and @sonialf, this seminar at Peter MacCallum Cancer Centre in central Melbourne, Australia will be of interest to the healthcare sector including aged care and acute care.

Well-coordinated and appropriate person-centred care is a key priority. It’s becoming increasingly important for the healthcare sector to better understand advance care planning, which supports an individual’s values, goals and preferences.

Presented by Advance Care Planning Australiathe Department of Health and Human Servicesthe Office of the Public Advocate and Peter MacCallum Cancer Centre, this Melbourne-based Victorian seminar will be run by recognised leaders in the field of advance care planning in Australia. To find out more about the program, see the agenda here.

The topics covered include advance care planning across sectors, legal considerations and local initiatives. The event is recommended for professionals leading and implementing advance care planning in health services, residential aged care and primary care.

Venue: Peter MacCallum Cancer Centre – Lecture Theatre B, 305 Grattan Street, Melbourne VIC 3000.

Date: Friday, 9 August 2019, 9:00am – 4:30pm. Registration and refreshments start at 8:00am.

Program: see the agenda here.

Cost: $100 (including GST).

Catering: Included in the ticket price.

Registration

Register on Eventbrite here.

Registration closes Friday 26 July 2019 at 9pm AEST.

 

Palliative care and #ausvotes19

It’s election time again! Honestly, we have not had a new Prime Minister for ages in Australia. We sadly can’t have Jacinda Ardern, but there it is.
Dr Benjamin Thomas (@andiyarus)  has been tweeting up a storm putting pressure on the powers-that-be and the powers-that-wannabe in advocating for #palliativecare patients in the upcoming election. He visited the @Palliverse to answer a few questions for us. Continue reading

Survey – clinical trials in specialist palliative care

If you are a nurse, doctor or allied health professional in a specialist palliative care service please consider contributing to the survey below. It does not take long.

“Attitudes of Palliative Care Practitioners Towards Enrolling Patients in Clinical Trials

We would appreciate your participation in this survey as a health care professional who provides care to patients in palliative care settings.
Continue reading

Conversations with patients in palliative care by Dr Matthew Grant

Dr Matthew Grant, a palliative care specialist, has published this article in The Conversation describing normal conversations in the course of his daily work.

I love the way he sensitively maneuvers through difficult conversations, allowing the patient to control the content of prognostic information given.

   “Not everyone will feel comfortable talking about their future treatment plans like Keith. It’s important I allow Sharon to decide whether or not she wants to talk about a future where she dies, just as I shouldn’t necessarily dissuade Christos from smoking if it gives him pleasure.”

Continue reading

webinar – palliative care in hospitals 17th October 2PM AEST

Interested in palliative care in hospitals? I certainly am. In my work as a palliative care consultant in the consultation service in an acute hospital, I see a LOT of unmet need, late referrals, and treatment being undertaken without good conversations about the patient’s goals and needs.

We at Palliverse are very keen to promote improvements at a systems level to improve access to palliative care in the acute setting.

On 17th October, Safer Care Victoria is holding a free webinar on palliative care in hospitals. Our host is Claudia Virdun, who has worked in palliative care within a clinical, project management or education position for over 18 years. Claudia has completed an Honours degree (Nursing), Masters degree in Advancing Professional Healthcare Practice and is currently a Phd Candidate with her research focusing on supporting system-level improvements for palliative care within the hospital setting.

Pre-reading for the webinar include Ms. Virdun’s review and meta-synthesis on what is important to patients and families in end of life care in hospitals.

The webinar takes place at 2PM on 17th October AEDT. For those outside of eastern Australia, here’s a time zone converter.