Bring dying refugee to Australia for palliative care, urge health professionals

Thousands of doctors have signed a petition calling on the immigration minister, Peter Dutton, to bring a refugee dying of advanced lung cancer to Australia for palliative care.

The 63-year-old is being held on Nauru and is a member of the persecuted Hazara minority in Afghanistan. He has been formally recognised as a refugee. But the Australian Border Force told the man that he could not come to Australia for palliative care, despite claims that the palliative care available on Nauru is inadequate.

The Australian Border Force  (ABF) has told the 63-year-old patient, who is suffering from advanced lung cancer, that he is deemed to have “refused treatment” because he declined to be moved to Taiwan to die. Cynically, the ABF has also offered the patient $25,000 to return home to Afghanistan. Continue reading

APLI forum Sydney 5 September promoting palliative care in Asia-Pacific

Interesting in helping to develop palliative care in the Asia-Pacific region?

APLI is the Australasian Palliative Link International.

It is a small charitable organisation made up of Australian and New Zealand palliative care clinicians. APLI aims :

  • to develop and foster links between palliative care providers and organisations in Australia and New Zealand and the Asia-Pacific region
  • to raise awareness of the needs of new palliative care services and the need for further development of the discipline in the region.
  • to provide a forum for the exchange of information and ideas between providers of palliative care in the region.

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Supported decision-making for aged care providers: Launch of a Policy Development Guideline

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Researchers from the Cognitive Decline Partnership Centre are releasing a Policy Development Guideline on Supported Decision-Making for aged care providers in Australia. Supported Decision-Making is a rights-based approach aimed at enabling people living with disability to make and/or communicate decisions about their own lives. Supported Decision-Making is promoted within the Convention on the Rights of Persons with Disabilities and the Australian Law Reform Commission’s National Decision-Making Principles. This area is also topical for aged care providers, given current reviews of guardianship legislation in a number of Australian states.

This free seminar will give an overview of the broader research project, and explain the process of guideline development, with tips for implementation in aged care settings.

Registration is free, but places are limited.

 

 

Final Program for Palliative Care Nurses Australia (PCNA) Biennial Conference: Fostering Excellence in Palliative Care

It’s not too late to register for this year’s Palliative Care Nurses Australia Conference in Brisbane!

PCNAust18 Conference Banner_18

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What matters most? #NPCW18

 

National Palliative Care Week 2018 is just around the corner. This year, we are asking Australians what matters most – to them, to their family & friends, and to their communities?  Continue reading

One weekend, two funerals

A few weeks ago I had the unusual circumstance of attending two events to mark the passing of people in my life, in the same weekend. One was for a family member, and one for a close friend. I have wanted to reflect on how we express ourselves and each other in funeral practices. The events were very different, and having them so close upon each other made the contrast seem quite noticeable. Both expressed the love and loss in touching ways. Below is a short pastiche of images and moments, which I hope will paint a picture.

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Of monkeys, metrics and quality palliative care

What does quality palliative care mean? It is a more complicated question than it seems.
question Stefan Baudy

Question! Stefan Baudy

Healthcare systems have been grappling with defining quality care for some time. Some aspects of quality care, such as equitable and timely access, are understood and broadly applicable regardless of the type of care provided. Others fit more awkwardly with palliative care provision.

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Dr Christina Puchalski to visit WA for #NPCW18

Great news for WA palliative care folk, with one of the big names in palliative care visiting Perth as part of National Palliative Care Week 2018. Dr Puchalski will be appearing at free events for the public and for those working in palliative care, thanks to the PaSCE team from Cancer Council WA. See below for more details, via PaSCE:

The Palliative and Supportive Care (PaSCE) team, from Cancer Council WA, is delighted to bring Dr Christina Puchalski to Perth, Western Australia from Washington D.C., USA during the 2018 National Palliative Care Week. We hope Dr Puchalski’s visit to Perth will enable WA health professionals to learn more about the science of spirituality and the integration of spirituality in their practice.

EVENTS Continue reading

Palliative Care Specialist Job Vacancy

Hi everyone,

If you are a Palliative Care Specialist and want to join a team that is constantly trying to make the world a better place for dying patients please check out this job vacancy available at Totara Hospice South Auckland, by  clicking here.

At least an 0.6FTE position is available but this has recently become negotiable potentially up to 1.0FTE for the right candidate.

Please share this post with anyone you think might be interested.

Cheers,

James

National Advance Care Planning Week April 16-22

The following media release was circulated this morning by Advance Care Planning Australia

National effort to start an important conversation

National Advance Care Planning Week, April 16-22

Health sector leaders from across Australia have joined forces to promote awareness of the inaugural National Advance Care Planning Week, with hosted events across the nation from Kalgoorlie, Western Australia to Cape Barren Island in Tasmania.

Together they are asking Australians of all ages and health to consider who they would like to speak for them if they were too sick to speak for themselves and what health care decisions they would want them to make.

National Advance Care Planning Week ambassadors represent clinical experts, researchers, authors and peak body and policy leaders, Australia-wide. They include:

•           Dr Chris Moy, Chair of the Ethics and Medico-legal Committee of the Australian Medical Association

•           Dr Karen Detering, Medical Director of Advance Care Planning Australia

•           Dr Will Cairns, Clinical Lead for Queensland’s Strategy for Care at the End of Life

•           Ms Liz Callaghan, CEO of Palliative Care Australia

•           Dr Craig Sinclair, Research Fellow at the Rural Clinical School of Western Australia

Launching for the first time in Australia and funded by the Australian Government, National Advance Care Planning Week is part of an international public awareness effort, coinciding with significant advance care planning initiatives being held in the USA, Canada and New Zealand.

Minister for Health the Hon. Greg Hunt MP is pleased that this important health initiative is garnering support across Australia and focussing attention on advance care planning – a concept not well understood by the general public, but a critical part of healthy ageing.

“Around half of Australians will not be able to make their own end-of-life medical decisions, yet few people take the active steps required to enable control of their future health care. The week will challenge all Australians to start conversations with loved ones about what living well means to them,” says Minister Greg Hunt.

Dr Karen Detering, Medical Director of Advance Care Planning Australia commented, “the evidence is clear that advance care planning can help alleviate stress for people who find themselves asked to make medical decisions for loved ones in need”.

“Do it for yourself. Do if for your loved ones. And ideally do it when you’re fit and well – don’t leave it to chance on the day you present at the emergency room,” says Dr Detering.

More than 100 community groups and health care organisations across Australia have signed up to host an event as part of the initiative, starting an important conversation in their community about making their future health care preferences known.

People can get involved in National Advance Care Planning Week by hosting or attending an event to raise awareness or by finding out more information about advance care planning.

National Advance Care Planning Week is an initiative of Advance Care Planning Australia.

-ENDS-

What is advance care planning?
Advance care planning promotes care that is consistent with your goals, values, beliefs and preferences. It prepares you and others to plan for future health care and a time when you may no longer be able to communicate those decisions yourself. 


Key facts

·         Around half of Australians will not be able to make their own end-of-life medical decisions

·         A third of Australians will die before the age of 75

·         85% of people die after a chronic illness, not a sudden event

·         Research shows that advance care planning can reduce anxiety, depression and stress experienced by families and that they are more likely to be satisfied with their  loved one’s care.

About Advance Care Planning Australia
Advance Care Planning Australia (ACPA) is a national program funded by the Australian Government Department of Health, enabling Australians to make the best choices for their life and health care.

We believe advance care planning is a heartfelt conversation and a personal statement that goes way beyond filling in a form. It’s a commitment to honour and respect an individual’s values and choices. We want to enable every Australian to make the best choices for their life and health care, based on their personal values and beliefs.

ACPA increases advance care planning resources across health sectors and NGOs, improves workforce capability, produces information resources for diverse consumers and communities, and builds the evidence base.


Media enquiries
Please contact us for interview with an advance care planning expert or individuals who can share personal stories about advance care planning.

Download our event media kit, visit the media page.

Rebecca Camilleri
email: rebecca.camilleri@austin.org.au
phone: 03 9496 6653 | 0407 832 093