APLI forum Sydney 5 September promoting palliative care in Asia-Pacific

Interesting in helping to develop palliative care in the Asia-Pacific region?

APLI is the Australasian Palliative Link International.

It is a small charitable organisation made up of Australian and New Zealand palliative care clinicians. APLI aims :

  • to develop and foster links between palliative care providers and organisations in Australia and New Zealand and the Asia-Pacific region
  • to raise awareness of the needs of new palliative care services and the need for further development of the discipline in the region.
  • to provide a forum for the exchange of information and ideas between providers of palliative care in the region.

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Supported decision-making for aged care providers: Launch of a Policy Development Guideline

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Researchers from the Cognitive Decline Partnership Centre are releasing a Policy Development Guideline on Supported Decision-Making for aged care providers in Australia. Supported Decision-Making is a rights-based approach aimed at enabling people living with disability to make and/or communicate decisions about their own lives. Supported Decision-Making is promoted within the Convention on the Rights of Persons with Disabilities and the Australian Law Reform Commission’s National Decision-Making Principles. This area is also topical for aged care providers, given current reviews of guardianship legislation in a number of Australian states.

This free seminar will give an overview of the broader research project, and explain the process of guideline development, with tips for implementation in aged care settings.

Registration is free, but places are limited.

 

 

What matters most? #NPCW18

 

National Palliative Care Week 2018 is just around the corner. This year, we are asking Australians what matters most – to them, to their family & friends, and to their communities?  Continue reading

One weekend, two funerals

A few weeks ago I had the unusual circumstance of attending two events to mark the passing of people in my life, in the same weekend. One was for a family member, and one for a close friend. I have wanted to reflect on how we express ourselves and each other in funeral practices. The events were very different, and having them so close upon each other made the contrast seem quite noticeable. Both expressed the love and loss in touching ways. Below is a short pastiche of images and moments, which I hope will paint a picture.

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Of monkeys, metrics and quality palliative care

What does quality palliative care mean? It is a more complicated question than it seems.
question Stefan Baudy

Question! Stefan Baudy

Healthcare systems have been grappling with defining quality care for some time. Some aspects of quality care, such as equitable and timely access, are understood and broadly applicable regardless of the type of care provided. Others fit more awkwardly with palliative care provision.

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Palliative Care Specialist Job Vacancy

Hi everyone,

If you are a Palliative Care Specialist and want to join a team that is constantly trying to make the world a better place for dying patients please check out this job vacancy available at Totara Hospice South Auckland, by  clicking here.

At least an 0.6FTE position is available but this has recently become negotiable potentially up to 1.0FTE for the right candidate.

Please share this post with anyone you think might be interested.

Cheers,

James

National Advance Care Planning Week April 16-22

The following media release was circulated this morning by Advance Care Planning Australia

National effort to start an important conversation

National Advance Care Planning Week, April 16-22

Health sector leaders from across Australia have joined forces to promote awareness of the inaugural National Advance Care Planning Week, with hosted events across the nation from Kalgoorlie, Western Australia to Cape Barren Island in Tasmania.

Together they are asking Australians of all ages and health to consider who they would like to speak for them if they were too sick to speak for themselves and what health care decisions they would want them to make.

National Advance Care Planning Week ambassadors represent clinical experts, researchers, authors and peak body and policy leaders, Australia-wide. They include:

•           Dr Chris Moy, Chair of the Ethics and Medico-legal Committee of the Australian Medical Association

•           Dr Karen Detering, Medical Director of Advance Care Planning Australia

•           Dr Will Cairns, Clinical Lead for Queensland’s Strategy for Care at the End of Life

•           Ms Liz Callaghan, CEO of Palliative Care Australia

•           Dr Craig Sinclair, Research Fellow at the Rural Clinical School of Western Australia

Launching for the first time in Australia and funded by the Australian Government, National Advance Care Planning Week is part of an international public awareness effort, coinciding with significant advance care planning initiatives being held in the USA, Canada and New Zealand.

Minister for Health the Hon. Greg Hunt MP is pleased that this important health initiative is garnering support across Australia and focussing attention on advance care planning – a concept not well understood by the general public, but a critical part of healthy ageing.

“Around half of Australians will not be able to make their own end-of-life medical decisions, yet few people take the active steps required to enable control of their future health care. The week will challenge all Australians to start conversations with loved ones about what living well means to them,” says Minister Greg Hunt.

Dr Karen Detering, Medical Director of Advance Care Planning Australia commented, “the evidence is clear that advance care planning can help alleviate stress for people who find themselves asked to make medical decisions for loved ones in need”.

“Do it for yourself. Do if for your loved ones. And ideally do it when you’re fit and well – don’t leave it to chance on the day you present at the emergency room,” says Dr Detering.

More than 100 community groups and health care organisations across Australia have signed up to host an event as part of the initiative, starting an important conversation in their community about making their future health care preferences known.

People can get involved in National Advance Care Planning Week by hosting or attending an event to raise awareness or by finding out more information about advance care planning.

National Advance Care Planning Week is an initiative of Advance Care Planning Australia.

-ENDS-

What is advance care planning?
Advance care planning promotes care that is consistent with your goals, values, beliefs and preferences. It prepares you and others to plan for future health care and a time when you may no longer be able to communicate those decisions yourself. 


Key facts

·         Around half of Australians will not be able to make their own end-of-life medical decisions

·         A third of Australians will die before the age of 75

·         85% of people die after a chronic illness, not a sudden event

·         Research shows that advance care planning can reduce anxiety, depression and stress experienced by families and that they are more likely to be satisfied with their  loved one’s care.

About Advance Care Planning Australia
Advance Care Planning Australia (ACPA) is a national program funded by the Australian Government Department of Health, enabling Australians to make the best choices for their life and health care.

We believe advance care planning is a heartfelt conversation and a personal statement that goes way beyond filling in a form. It’s a commitment to honour and respect an individual’s values and choices. We want to enable every Australian to make the best choices for their life and health care, based on their personal values and beliefs.

ACPA increases advance care planning resources across health sectors and NGOs, improves workforce capability, produces information resources for diverse consumers and communities, and builds the evidence base.


Media enquiries
Please contact us for interview with an advance care planning expert or individuals who can share personal stories about advance care planning.

Download our event media kit, visit the media page.

Rebecca Camilleri
email: rebecca.camilleri@austin.org.au
phone: 03 9496 6653 | 0407 832 093

ABC radio Perth says that it’s time to talk about death and your end of life plan

http://www.abc.net.au/radio/perth/programs/focus/an-organised-death/9563772

This FOCUS discussion examines what it means to respect the final wishes of the dying.

And how can any of us do that, when most of us are reluctant to even bring it up?

There’s the nitty-gritty stuff like a will, powers of attorney and advanced-health-directives.

And then there are the things around the edges; where do you want to spend your final hours, what will happen to your pets and what do you want played at your funeral?

Taking part in the discussion is nurse practitioner, Shannon Tassell and Dr Margaret Sealey, a palliative care counsellor from Murdoch University.

Duration: 36min 35sec

Broadcast: 

I think therefore I am? – The D word

It was only about 80 years ago when communities all over the world were much more familiar with Death and Dying. This was before antibiotics, modern surgical techniques and lots of medical technologies had been invented. Now Death and Dying are not so obvious and it is not uncommon for 30+ year olds to have never been to a funeral before in their life.

Even now, Death and Dying are still D words that are avoided by many clinicians as they try to ‘protect’ their patients. Who are they really trying to protect? Themselves?

Other D words could be:

Denial

Disavowal

Disillusionment

Disappointment

Despair

Defeat

These were some of the D words that came to mind while listening to this podcast:

Dr Kathryn Mannix talks about her best-selling book “With the end in mind,” and reflects on her Palliative Care career

Have a listen and let me know what you think.

James

Death and digital media seminar Melbourne 26th April 17:00

The Centre for Palliative Care is hosting what will be a thought-provoking session on the intersection of death and digital media. As someone who is periodically startled by Facebook mentions of people who have died, I am looking forward to this.

“The focus of this presentation will be to outline some of the key issues surrounding death in the digital age. This will include a critical overview of how people mourn, commemorate and interact with the dead through digital media.

The presenters will briefly map the historical and shifting landscape of digital death by considering a range of social, commercial and institutional responses to technological innovations. Discussion will centre around multiple digital platforms through a number of case studies drawn from Australia, North America and Europe.

Through these case studies they will offer fresh insight and analysis into emerging practices through which digital technologies are used to mourn, commemorate and interact with the dead.

You won’t want to miss this 21st century overview of death and social media.”

For more information email centre.palliativecare@svha.org.au

http://www.centreforpallcare.org/events/32/hot-topic-death-and-digital-media

Cheers, Sonia