Come along to talk to Dr Sonia and consumer Holli about advance care planning during Advance Care Planning week 2022. 11:00 24th March online
Our lives are increasingly digitised. I remember when my grandparents died, we went through their paper phone contact book to find out who we had to call. Now, with everything from banking to social media taking place online, things have changed.
How can we prepare for our #digitaldeath, after our bodies have died? What will your #digitalafterlife look like? #EOLC #pallanz
Here is a link to an animated video https://youtu.be/9UOe7otnRDw
|Opportunity for Australian members: $2,000 National Palliative Care Award – Nominate now!|
|Dear Australian readers,|
Do you have an hour or so this week to take the time to recognise someone who has made an important contribution to palliative care? Award winners are eligible to receive $2,000 (for individual awards) or $4000 (for team awards) to go toward professional development.
This year there are four new awards with the aim to recognise a broader range of people, including the work in Aboriginal and Torres Strait Islander communities, generalist areas, community-based care, and Paediatric palliative care.
The form will roughly take 20 minutes to complete. The person nominating will need to gain approval from the nominee and document whether this person has received an award in the past.
There is a 5000 character written piece that needs to address the criteria of the particular award which can be found here –
There are now 11 award categories
Excellence in palliative care-rural and remote
Excellence in palliative care in an aged care setting
Outstanding achievement by a volunteer
Excellence in palliative care-Paediatric Palliative Care
Excellence in palliative care-Community Based Care
Excellence in Generalist Palliative Care
Excellence in Aboriginal and Torres Strait Islander palliative care
Organisation/ Team Awards
Outstanding Teamwork Award
Innovation in Palliative Care
Please help PCA and ANZSPM celebrate our heroes.
The team at Palliative Nexus is presenting a webinar about death and dying which will be of interest to the #pallanz community. It’s on a laptop near you on Wednesday the 31st of March at 16:00 AEST
Professor Jennifer Tieman will outline her work on the Dying2Learn MOOC (Massive Online Open Course). It won an Innovation in Palliative Care award in 2017.
Prof Tiemen is the Palliative and Supportive Services and Matthew Flinders Fellow, College of Nursing and Health Sciences at Flinders University.
She will discuss the research arising from this excellent MOOC including community perspectives on death and dying.
Please register here: http://go.unimelb.edu.au/5mpi
TITLE: Development of a core outcome set for effectiveness trials of interventions to prevent and/or treat delirium in palliative care (Del-COrS)
We are currently looking for volunteers including: patients, family members, carers, healthcare professionals and researchers with experience of delirium in palliative care.
Participants would complete two online surveys to establish their views on the outcomes that are important to include in future studies of interventions to prevent or to treat delirium in palliative care. We will subsequently invite participants to a meeting to discuss the findings and vote on outcomes they consider important.
Our goal is to develop international consensus on a core outcome set for research studies of treatments within a palliative care setting to prevent, and/or treat delirium.
Researchers look at the effects of potential treatments on patients by measuring an ‘outcome’. For example, in a study of how well a new delirium treatment works in a palliative care setting, an ‘outcome’ might be: whether a person hurt themselves because of delirium.
When a set of main outcomes has been agreed for a health condition, it’s called a ‘core outcome set’. This would allow all studies of delirium in palliative care to be compared and combined.
Please contact Dr Anna Bryans (Research Team Member) at firstname.lastname@example.org if you are interested in participating and pass on this information to anyone who may wish to take part.
The Palliative Care Advice Service is a phone-based service for people in Victoria, Australia, seeking access to specialist guidance and advice. It offers an advice service for those living with a life-limiting illness and those who support them. The service is for family, friends and neighbours as well as all healthcare workers.
Specialist nurses and doctors provide information about serious illness and symptoms, being a caregiver and the palliative care service system.
For healthcare workers, it offers guidance about prescribing, symptom management, locating appropriate services and decision-making.
The Parkville Integrated Palliative Care Service at The Royal Melbourne Hospital runs the service from 7am – 10pm, seven days a week. The Advice Service is free, confidential and available for everyone in Victoria.
To contact the Palliative Care Advice Service you can call 1800 360 000 or visit www.pcas.org.au for further information.
Offering a structured family meeting conducted in a hospital setting for patients with advanced disease receiving palliative care may be helpful in reducing family caregiver distress and enhancing their sense of preparation for the caregiving role.
The purpose of this study was to assess the effect of structured family meetings on patient and family caregiver outcomes and to determine the cost-benefit and resource implications of implementing family meetings into routine practice.
Family caregivers in the intervention group had significantly lower psychological distress scores and higher preparedness scores two weeks after the intervention, but the scores were not significantly different two months after the patient died.
The family meetings in intervention participants were structured according to published guidelines and tailored to the needs of the patient and family.
In summary, the guidelines incorporate:
(1) principles for conducting family meetings;
(2) pre-meeting procedures, such as liaising with the patient/family and prioritising issues;
(3) deciding who needs to attend the family meeting;
(4) a procedure for conducting the meeting; and
(5) strategies for follow up after the meeting; including phoning the primary family caregiver 2 days later to discern if discussion and actions arising from the meeting were helpful.
What is already known about the topic?
A family meeting (also known as a family conference) is a clinical tool for healthcare providers to facilitate communication and care planning with patients and their family caregivers.
Whilst these meetings are considered integral to palliative care they are commonly not provided systematically, nor according to best available evidence.
Implications for practice
Hospital staff should consider conducting a family meeting as soon as feasible after admission of a patient with advanced disease, or referral to the palliative care team where resources allow. This is commensurate with guidelines and standards for family support. It is also in keeping with the concept of ‘early’ palliative care for which there is a growing evidence base.
Click on the following hyperlinks if you fancy a read or a quick listen:
Keep washing those hands and social distancing.
Take care and have a great weekend!
Dr Barbara Hayes and Prof Joe Ibrahim have combined forces to make this elegant simple Youtube resource to explain not for resuscitation orders, cardiopulmonary resuscitation, and advance care planning for patients and families.
It works through the differing perspectives of medical teams and patients and their families to explain why sometimes CPR can do more harm than good.
Happy #advancecareplanning week!
It’s hard to overstate the impact of the novel Coronavirus on health systems around the world. It’s particularly poignant for palliative care workers, so familiar with dying, to imagine the loss and grief. We try to image what it could be like for health care workers at the front line. Soon we will not have to imagine, as we will be at the front line.
This article, written in 2010 about influenza by Dr Downar and Dr Seccareccia, is prescient.
Twitter as always is an invaluable source of dialogue on this issue. Try out this thread from @AmitAryaMD – you don’t need to be able to use Twitter to read it.
How are your teams and health care service preparing for the pandemic in Australia, New Zealand and elsewhere?