Accessible video about NFR (not for resuscitation) orders for patients and families

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Dr Barbara Hayes and Prof Joe Ibrahim have combined forces to make this elegant simple Youtube resource to explain not for resuscitation orders, cardiopulmonary resuscitation, and advance care planning for patients and families.

It works through the differing perspectives of medical teams and patients and their families to explain why sometimes CPR can do more harm than good.

Happy #advancecareplanning week!

Sonia

Palliating in a pandemic

It’s hard to overstate the impact of the novel Coronavirus on health systems around the world. It’s particularly poignant for palliative care workers, so familiar with dying, to imagine the loss and grief. We try to image what it could be like for health care workers at the front line. Soon we will not have to imagine, as we will be at the front line.

This article, written in 2010 about influenza by Dr Downar and Dr Seccareccia, is prescient.

Twitter as always is an invaluable source of dialogue on this issue. Try out this thread    from @AmitAryaMD  – you don’t need to be able to use Twitter to read it.

How are your teams and health care service preparing for the pandemic in Australia, New Zealand and elsewhere?

 

 

Study shows why cancer patients are asking for medicinal cannabis

I can tell you, it’s true! Many cancer patients are asking their clinicians for medicinal cannabis – but worryingly,  around one in four patients believing it will help in control or cure the cancer, a Victorian study has found.

This study was carried out by a team at the Victorian Comprehensive Cancer Centre and Parkville Integrated Palliative Care Service, lead by Dr Stacey Panozzo, investigated the characteristics and medicinal cannabis requests of 1700 patients with breast, colorectal, melanoma and oesophageal cancer patients attending the three centres over a six month period in 2018-2019.

The study was also featured in this Limbic Oncology article.

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Putting the CAR-T before the horse?

Dr Benjamin Thomas’s excellent thread about economic justice for palliative care patients in the context of the announcement of a likely announcement regarding the Government funding around 200-250 patients for $500,000 each to receive CAR-T treatment.

He calculates what we could do for palliative care patients with the same money.

Worth a read! Thanks Ben @andiyarus

https://threadreaderapp.com/thread/1222006604289101824.html

 

 

Announcement re CAR-T funding

 

Advance care planning survey for health professionals in Australia

Message from Advance Care Planning Australia:

 

Are you a doctor, nurse, social worker or allied health professional working with people affected by cancer?  We need your help to better understand the barriers and enablers of advance care planning for people with cancer.

Advance Care Planning Australia, supported by funding by Cancer Australia, is leading research to help more Australians affected by cancer to access the benefits of advance care planning.

Participation is easy and requires only 15 minutes of your time to complete an online survey. With your involvement we can help more people with cancer to receive care consistent with their values, goals and preferences.

Survey: http://bit.ly/2Cm44Es

Inspired to improve your communication skills?

 Cancer Council WA delivers the very successful workshop on communication skills training, perfect for the situations described in our article earlier today.

For more information in WA see here

Cancer Council Victoria also has a variety of education and communication workshops and resources.

Know a great resource for communication skills? Comment below.

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AusDoc article – Dying doctor has some lessons on how to tell patients bad news

I have shamelessly reposted from AusDoc and therefore some readers may not be able to see this behind the paywall – if so I do apologise!

As a doctor of almost 40 years, US internal medicine specialist Dr Ron Naito started to suspect he may have pancreatic cancer from his symptoms and test results.

Dr Ron Naito
Dr Ron Naito. Photo: Vimeo

But his own doctors made such a poor job of telling him the diagnosis, that he’s devoting his final months of life to teaching students the skills of delivering bad news.

“When doctors deliver bad news to their patients, every word carries meaning, and you need to choose your words very wisely. We can and must do better at this. All doctors can learn these skills, and the good news is that there are now excellent training programs available to support them.”

For more reading see here.

Sonia

#advancecareplanning seminar in Melbourne 9 August

Featuring not one but two Palliverse tweeps, @csinclair28 and @sonialf, this seminar at Peter MacCallum Cancer Centre in central Melbourne, Australia will be of interest to the healthcare sector including aged care and acute care.

Well-coordinated and appropriate person-centred care is a key priority. It’s becoming increasingly important for the healthcare sector to better understand advance care planning, which supports an individual’s values, goals and preferences.

Presented by Advance Care Planning Australiathe Department of Health and Human Servicesthe Office of the Public Advocate and Peter MacCallum Cancer Centre, this Melbourne-based Victorian seminar will be run by recognised leaders in the field of advance care planning in Australia. To find out more about the program, see the agenda here.

The topics covered include advance care planning across sectors, legal considerations and local initiatives. The event is recommended for professionals leading and implementing advance care planning in health services, residential aged care and primary care.

Venue: Peter MacCallum Cancer Centre – Lecture Theatre B, 305 Grattan Street, Melbourne VIC 3000.

Date: Friday, 9 August 2019, 9:00am – 4:30pm. Registration and refreshments start at 8:00am.

Program: see the agenda here.

Cost: $100 (including GST).

Catering: Included in the ticket price.

Registration

Register on Eventbrite here.

Registration closes Friday 26 July 2019 at 9pm AEST.

 

Palliative care and #ausvotes19

It’s election time again! Honestly, we have not had a new Prime Minister for ages in Australia. We sadly can’t have Jacinda Ardern, but there it is.
Dr Benjamin Thomas (@andiyarus)  has been tweeting up a storm putting pressure on the powers-that-be and the powers-that-wannabe in advocating for #palliativecare patients in the upcoming election. He visited the @Palliverse to answer a few questions for us. Continue reading

Survey – clinical trials in specialist palliative care

If you are a nurse, doctor or allied health professional in a specialist palliative care service please consider contributing to the survey below. It does not take long.

“Attitudes of Palliative Care Practitioners Towards Enrolling Patients in Clinical Trials

We would appreciate your participation in this survey as a health care professional who provides care to patients in palliative care settings.
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