Advance care planning survey for health professionals in Australia

Message from Advance Care Planning Australia:

 

Are you a doctor, nurse, social worker or allied health professional working with people affected by cancer?  We need your help to better understand the barriers and enablers of advance care planning for people with cancer.

Advance Care Planning Australia, supported by funding by Cancer Australia, is leading research to help more Australians affected by cancer to access the benefits of advance care planning.

Participation is easy and requires only 15 minutes of your time to complete an online survey. With your involvement we can help more people with cancer to receive care consistent with their values, goals and preferences.

Survey: http://bit.ly/2Cm44Es

Inspired to improve your communication skills?

 Cancer Council WA delivers the very successful workshop on communication skills training, perfect for the situations described in our article earlier today.

For more information in WA see here

Cancer Council Victoria also has a variety of education and communication workshops and resources.

Know a great resource for communication skills? Comment below.

Continue reading

AusDoc article – Dying doctor has some lessons on how to tell patients bad news

I have shamelessly reposted from AusDoc and therefore some readers may not be able to see this behind the paywall – if so I do apologise!

As a doctor of almost 40 years, US internal medicine specialist Dr Ron Naito started to suspect he may have pancreatic cancer from his symptoms and test results.

Dr Ron Naito
Dr Ron Naito. Photo: Vimeo

But his own doctors made such a poor job of telling him the diagnosis, that he’s devoting his final months of life to teaching students the skills of delivering bad news.

“When doctors deliver bad news to their patients, every word carries meaning, and you need to choose your words very wisely. We can and must do better at this. All doctors can learn these skills, and the good news is that there are now excellent training programs available to support them.”

For more reading see here.

Sonia

#advancecareplanning seminar in Melbourne 9 August

Featuring not one but two Palliverse tweeps, @csinclair28 and @sonialf, this seminar at Peter MacCallum Cancer Centre in central Melbourne, Australia will be of interest to the healthcare sector including aged care and acute care.

Well-coordinated and appropriate person-centred care is a key priority. It’s becoming increasingly important for the healthcare sector to better understand advance care planning, which supports an individual’s values, goals and preferences.

Presented by Advance Care Planning Australiathe Department of Health and Human Servicesthe Office of the Public Advocate and Peter MacCallum Cancer Centre, this Melbourne-based Victorian seminar will be run by recognised leaders in the field of advance care planning in Australia. To find out more about the program, see the agenda here.

The topics covered include advance care planning across sectors, legal considerations and local initiatives. The event is recommended for professionals leading and implementing advance care planning in health services, residential aged care and primary care.

Venue: Peter MacCallum Cancer Centre – Lecture Theatre B, 305 Grattan Street, Melbourne VIC 3000.

Date: Friday, 9 August 2019, 9:00am – 4:30pm. Registration and refreshments start at 8:00am.

Program: see the agenda here.

Cost: $100 (including GST).

Catering: Included in the ticket price.

Registration

Register on Eventbrite here.

Registration closes Friday 26 July 2019 at 9pm AEST.

 

Palliative care and #ausvotes19

It’s election time again! Honestly, we have not had a new Prime Minister for ages in Australia. We sadly can’t have Jacinda Ardern, but there it is.
Dr Benjamin Thomas (@andiyarus)  has been tweeting up a storm putting pressure on the powers-that-be and the powers-that-wannabe in advocating for #palliativecare patients in the upcoming election. He visited the @Palliverse to answer a few questions for us. Continue reading

Survey – clinical trials in specialist palliative care

If you are a nurse, doctor or allied health professional in a specialist palliative care service please consider contributing to the survey below. It does not take long.

“Attitudes of Palliative Care Practitioners Towards Enrolling Patients in Clinical Trials

We would appreciate your participation in this survey as a health care professional who provides care to patients in palliative care settings.
Continue reading

Advance care planning week 1-5 April

National Advance Care Planning Week encourages all Australians to speak up about their future healthcare preferences and make sure their voice is heard and respected, regardless of what the future brings.

“If you were really ill, and could not speak to the doctors about the health care you wanted and did not want,

WHO would speak for you?

and WHAT would they say?”

#acpweek19

How can people get involved?

– visit acpweek.org.au for more information and access the relevant forms in their state or territory.
-attend a National Advance Care Planning Week event
-request a free email starter pack

Hot topics – Melbourne 27th March

Keen to learn more? Here is the page you need

 

PaCCSC survey for health professionals on cancer cachexia anorexia syndrome

EXPERIENCES OF HEALTH CARE PROFESSIONALS DEALING WITH CANCER ANOREXIA CACHEXIA SYNDROME (CACS) (UTS HREC ETH18-2870)

As a health care professional seeing advanced cancer patients who have CACS in your daily practice, you are invited to take part in this online survey. The research will identify barriers, knowledge and management gaps in clinical practice. The survey will take approximately 15 minutes to complete and participation is voluntary and anonymous.
The project is supported by the Palliative Care Clinical Studies Collaborative (PaCCSC) located at the University of Technology Sydney. For more information, please feel free to contact Ms Linda Brown, National Manager, PaCCSC on PaCCSC@uts.edu.au.

Thank you for your time.

link: https://redcap.research.uts.edu.au/surveys/?s=Y984LHMD3Y

Please note: if you have previously completed the survey, please ignore the request.

Sertraline in symptomatic chronic breathlessness: a double blind, randomised trial

It’s a Thing, that we tend to publish and read studies that show that new medications or interventions improve things, rather than that a possible treatment or intervention does not help. But both are important, right? If a treatment that is being given to people is shown to not work, we need to know about that too.

The prolific team at PaCCCS including Professors Currow and Agar have published a trial of sertraline (an antidepressant) in breathlessness and found it did not improve breathlessness scores compared with those taking a placebo tablet. Quality of life improved slightly in those taking the sertraline, however. Overall, they felt that sertraline did not provide benefit.  Continue reading