Pause Program for Carers – Matisse Alive

Matisse Alive

This program has been developed specifically for those who are supporting a person receiving palliative care.

You’re invited to take some time out for a mindful journey through the Matisse Alive exhibition, where you can explore guided slow-looking techniques and discuss observations and insights in a paced experience.

It’s an opportunity to engage with art and with your own feelings in a supported environment; share experiences with like-minded people; acknowledge your identity apart from your caring role; and enjoy ‘in-the-moment’ pleasure. You’ll also discover how mindful activities can support self-care, and learn skills and strategies that can be transferred to the care environment.

The experience is facilitated by artist and researcher Dr Gail Kenning and Danielle Gullotta, senior access programs producer at the Art Gallery of New South Wales.

The program is a partnership between the Art Gallery, Palliative Care NSW and the University of the University of Technology Sydney.

Saturday 12 March 2022, 9.30am – 11:00am

Art Gallery of NSW, Art Gallery Road, Sydney NSW 2000

Entry is free, bookings required

Advance Care Planning International 2022 Webinar Series – “Advance care planning – what’s in the pill?”

Photo by Christin Hume on Unsplash

Following on from a successful digital conference in 2021, the Advance Care Planning International (ACP-i) Committee is excited to announce a series of webinars in 2022, focusing on how different healthcare systems are implementing advance care planning.

Each of these webinars will put a spotlight on one country, with invited speakers giving presentations which will investigate the different components and ingredients that go into successful ACP programs in their country or region. In other words, exploring “what’s in the ACP pill?” Webinars will be one hour in duration, with one or two expert presenters and time for panel discussion and Q&A.

The first of these webinars will go down under, with presentations from Australia (Tuesday March 22nd 10pm-11pm AEDT) and Aotearoa/New Zealand (Wednesday March 23rd 10am-11am). The webinars are free to attend, but registration is required through the ACP-i website.

The Australian webinar on Tuesday March 22nd will feature Jill Mann (Barwon Health ACP Program Manager) and Dr Leyton Miller (Queensland Health Palliative Care Consultant), with the session facilitated by Dr Craig Sinclair (University of New South Wales). For more details and to register, visit https://www.acp-i.org/

In a stroke of good planning (or was that good fortune?), the Australian webinar will also occur during National Advance Care Planning Week 2022. Advance Care Planning Australia coordinates this annual awareness-raising week, with a series of events being held around Australia, in person and online. The key message is ‘Your Choice. Now and Always.’ To find out more about events in your area, visit the Advance Care Planning Australia website.

As part of 2022 National Advance Care Planning Week, we hope you can attend and participate in this global conversation.

Research Position Advertised

Research Fellow, Palliative and Supportive Care

HammondCare is looking for a post-doctoral researcher, who has a passion for research which can improve palliative and supportive care.  Working within the Centre for Learning & Research in Palliative Care, the Research Fellow provides high level support for the research effort in palliative & supportive care across the organisation. 

This role offers a post-doctoral researcher an excellent opportunity to develop their research skills, experience and track record within the themes of palliative and supportive care.

  • Position based at Pallister House, Greenwich Hospital.
  • Part time (0.6 FTE), flexible working arrangements. Three years fixed term position.
  • Provide high level support for research in palliative and supportive care

Closing Date: 1st August 2021

For further information about the role and the information pack can be found at  https://www.hammond.com.au/careers/current-vacancies/RF-NSW

For enquiries please contact Prof Josephine Clayton, Director, Centre for Learning & Research in Palliative Care, HammondCare on jclayton@hammond.com.au 

Research on health practitioner norms and wellbeing in the context of assisted dying legislation

question Stefan Baudy

Health practitioners are invited to participate in research concerning the assisted dying legislation in Victoria, and how it will affect health practitioner well-being and norm development, particularly in the work context. This study is being conducted by researchers from Flinders University.

Interested health practitioners can find out more and participate in the research here.

The researchers would also like to request that if you think it is appropriate, you share this invitation with other health practitioners. Please also feel free to contact the research team directly with any comments or questions (via the link above).

Love is not enough: National Advance Care Planning Week 2020

ACPWeek2020 video

This video, produced by Advance Care Planning Australia, encourages fit and healthy Australians to more seriously consider why advance care planning is important in their lives.

Australian couples were put to the test by asking them how well they know their loved one. While they were mostly able to correctly answer questions about preferred foods and holiday destinations, when it came to questions about end-of-life choices, things take an interesting turn…

Please watch the video and feel free to share it with your network #LoveIsNotEnough
National Advance Care Planning Week runs from 23 – 27 March 2020, and currently has 140 events scheduled, in locations across Australia. For more information, or to host an event, visit the ACP Week website

 

 

Research nurse position

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Research Nurse 2019 Final

Whisper No More

‘Whisper No More‘ is a learning package that contains stories from Aboriginal people about their experience of cancer. Linked to a decade of research, it was prompted by findings from ‘A whispered sort of stuff‘, a report on a study undertaken with mid-west communities in Western Australia.

‘Whisper No More’ is freely available online for registered users and includes videos, discussion questions and links to key articles and websites. There is also specific content relating to future planning and discussions about end of life care.

FINAL_Flyer_WhisperNoMore_180528 (palliverse)

Understanding decision-making among people living with dementia

Decision-making in dementia survey

Researchers from the University of Western Australia and the Cognitive Decline Partnership Centre are trying to understand more about how Australian healthcare professionals understand and make judgements on decision-making among people living with dementia.

If you are an Australian health care professional or aged care worker and provide care, services or treatment to people living with dementia as part of your role, you are invited to participate in this short, online survey.

The study information and survey is available here

Supported decision-making for aged care providers: Launch of a Policy Development Guideline

SDM_SydneyLaunch_Email_RELEASE.jpg

Researchers from the Cognitive Decline Partnership Centre are releasing a Policy Development Guideline on Supported Decision-Making for aged care providers in Australia. Supported Decision-Making is a rights-based approach aimed at enabling people living with disability to make and/or communicate decisions about their own lives. Supported Decision-Making is promoted within the Convention on the Rights of Persons with Disabilities and the Australian Law Reform Commission’s National Decision-Making Principles. This area is also topical for aged care providers, given current reviews of guardianship legislation in a number of Australian states.

This free seminar will give an overview of the broader research project, and explain the process of guideline development, with tips for implementation in aged care settings.

Registration is free, but places are limited.

 

 

One weekend, two funerals

A few weeks ago I had the unusual circumstance of attending two events to mark the passing of people in my life, in the same weekend. One was for a family member, and one for a close friend. I have wanted to reflect on how we express ourselves and each other in funeral practices. The events were very different, and having them so close upon each other made the contrast seem quite noticeable. Both expressed the love and loss in touching ways. Below is a short pastiche of images and moments, which I hope will paint a picture.

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