Motor Neurone Disease (MND) is a fatal neurodegenerative disease affecting some 2000 Australians. Average life expectancy from symptom onset is around 30 months.
Patients show different clinical phenotypes and rates of progression. Death usually results from ventilatory failure secondary to progressive respiratory muscle weakness and can be complicated by aspiration and respiratory infection. Offering respiratory support through non-invasive assisted ventilation (NIV) is considered best practice and can improve quality of life, symptoms and survival in selected patients. Patients usually begin using NIV overnight to improve sleep and daytime wellbeing. Over time, most will use it increasingly across the day, with some becoming NIV dependent.
Some patients who are dependent on NIV may ask that it be stopped. This is their right. It is not assisted suicide or assisted dying, it is withdrawal of medical treatment. Withdrawal of ventilation needs to be thought through and carefully discussed and planned to ensure that the patient is comfortable throughout the process and both staff and family/carers are supported.
This presentation gives the opportunity to hear from and ask questions of specialists in Neurology, Respiratory Medicine and Palliative Medicine about the management of NIV in MND and elective withdrawal of ventilation.
This survey explores the important social, occupational and mental health effects experienced by frontline health workers during the COVID-19 pandemic and beyond. As the pandemic has changed our social and work environments in many different ways, we want to hear the experiences of both frontline health workers who have and have not worked directly with people with COVID-19.
We will examine factors that promote good mental health and wellbeing, as well as risk factors for poorer mental health. Your input will inform recommendations to healthcare organisations and other professional bodies.
This study focuses on the experiences of medical, nursing, allied health, clinical scientists/physiologists/technicians, healthcare students and clerical staff who are working in the following frontline areas:
Hospital Aged Care
People working in other frontline health areas (such as medical or surgical areas) are also welcome to take part.
You do not need to have worked directly with people with COVID-19 to participate, as we would like to hear from all frontline health workers.
The caring@home (www.caringathomeproject.com.au) project is looking for palliative medicine specialists or trainees to review some resources for carers being translated into Vietnamese and Tagalog. caring@home has produced resources for carers to support carers to help manage breakthrough symptoms safely using subcutaneous medicines.
A company that uses accredited translators have been contracted to do the work but the project has also requested the opportunity to have a health care professional, who is a native speaker of the language, to review the translation and subtitles.
The work would be expected to be completed in May and June. They are able to offer a stipend for this work of $800 + GST upon receipt of an invoice.
The work is to review the following after they come back from the translating service:
Would you like to learn more about immunotherapy use and trials in cancer and in palliative care?
Immunotherapy Symptoms Clinical Trials: a new paradigm forum
Palliative, supportive and cancer care professionals are invited to attend the VCCC and CST co-hosted Immunotherapy Symptoms Clinical Trials: a new paradigm forum to progress clinical trials concepts in this evolving oncology field, recognise achievements, celebrate success and make connections for future directions.
Palliative care progress and achievements
The VCCC Building Trial Group Capability Program initial investment is focused on developing the palliative care group as a key priority area. The group’s development and activities have been underway for more than 12 months; it is timely to celebrate progress and achievements.
ANZSPM has received the following request from Dr AnnMarie Hosie, Post-doctoral Research Fellow, IMPACCT – Improving Palliative, Aged and Chronic Care through Clinical Research and Translation, University of Technology Sydney
MEDICAL PRACTICE IN THE TREATMENT OF DELIRIUM
You are invited to participate in a brief (10 minute) online survey about medical practice in the treatment of delirium.
The survey is for medical professionals working clinically in Australia.
Your time and insights towards better understanding of clinical practice for this common and serious medical problem will be greatly appreciated.
Dr Matthew Grant, a palliative care specialist, has published this article in The Conversation describing normal conversations in the course of his daily work.
I love the way he sensitively maneuvers through difficult conversations, allowing the patient to control the content of prognostic information given.
“Not everyone will feel comfortable talking about their future treatment plans like Keith. It’s important I allow Sharon to decide whether or not she wants to talk about a future where she dies, just as I shouldn’t necessarily dissuade Christos from smoking if it gives him pleasure.”
Kimberley Palliative Care Aboriginal Health Worker, Kimika Lee, has been recognised for her tireless work in the community by winning the Leadership and Innovation Award at the Western Australia Regional Achievement and Community Awards this month.
The local Yawuru Broome woman and mother of six said winning the award was a remarkable moment and one she never thought would happen.
In conjunction with World Hospice and Palliative Care Day 2018, the APHN will be holding the second APHN Webinar 2018. Partners all over the region will be screening this webinar at various venues.
AHPN posts, “We are honoured to have Dr Neo Han Yee speaking on the topic of “Management of Dyspnea”. Dr Neo is currently a Consultant at the Department of Palliative Medicine at Tan Tock Seng Hospital.
“Join us! This webinar is FREE for all palliative care colleagues, so SIGN UP NOW at this link. Registration closes when slots have been filled up.
“We would like to thank all participating organisations for hosting this event and supporting this APHN initiative.
“For more information contact Joyce at firstname.lastname@example.org or call +65 6235 5166. ”
From the website I am not sure whether health professionals who are not in the listed locations are able to participate in the webinar. Palliverse will find out and get back to you.
Interested in palliative care in hospitals? I certainly am. In my work as a palliative care consultant in the consultation service in an acute hospital, I see a LOT of unmet need, late referrals, and treatment being undertaken without good conversations about the patient’s goals and needs.
We at Palliverse are very keen to promote improvements at a systems level to improve access to palliative care in the acute setting.
On 17th October, Safer Care Victoria is holding a free webinar on palliative care in hospitals. Our host is Claudia Virdun, who has worked in palliative care within a clinical, project management or education position for over 18 years. Claudia has completed an Honours degree (Nursing), Masters degree in Advancing Professional Healthcare Practice and is currently a Phd Candidate with her research focusing on supporting system-level improvements for palliative care within the hospital setting.
Pre-reading for the webinar include Ms. Virdun’s review and meta-synthesis on what is important to patients and families in end of life care in hospitals.
The webinar takes place at 2PM on 17th October AEDT. For those outside of eastern Australia, here’s a time zone converter.