About soniafullerton

Palliative physician, internet addict, mum of three.

Study of palliative care triage in Australia

Demand for palliative care services in inpatient, community, outpatient and consultation services is increasing. In the context of finite resources, patients referred should undergo ‘triage’ – derived from the French term ‘trier’ meaning ‘to sort’ – the process of deciding which patients should be treated first based on how urgent their needs are.

A new study conducted in Victoria, Australia, explored palliative care providers’ practices and attitudes towards triaging palliative care needs and their views regarding the implementation of a standardised approach.

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Bring dying refugee to Australia for palliative care, urge health professionals

Thousands of doctors have signed a petition calling on the immigration minister, Peter Dutton, to bring a refugee dying of advanced lung cancer to Australia for palliative care.

The 63-year-old is being held on Nauru and is a member of the persecuted Hazara minority in Afghanistan. He has been formally recognised as a refugee. But the Australian Border Force told the man that he could not come to Australia for palliative care, despite claims that the palliative care available on Nauru is inadequate.

The Australian Border Force  (ABF) has told the 63-year-old patient, who is suffering from advanced lung cancer, that he is deemed to have “refused treatment” because he declined to be moved to Taiwan to die. Cynically, the ABF has also offered the patient $25,000 to return home to Afghanistan. Continue reading

APLI forum Sydney 5 September promoting palliative care in Asia-Pacific

Interesting in helping to develop palliative care in the Asia-Pacific region?

APLI is the Australasian Palliative Link International.

It is a small charitable organisation made up of Australian and New Zealand palliative care clinicians. APLI aims :

  • to develop and foster links between palliative care providers and organisations in Australia and New Zealand and the Asia-Pacific region
  • to raise awareness of the needs of new palliative care services and the need for further development of the discipline in the region.
  • to provide a forum for the exchange of information and ideas between providers of palliative care in the region.

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Life in a hospice – reflections on caring for the dying

We have had an email from the Palliverse – Ann Richardson has kindly made her book “Life in a hospice” available as an e book. Life in a Hospice: reflections on caring for the dying is based on very honest interviews with a variety of hospice staff in England, talking anonymously about the joys and challenges of their work and its impact on their lives.

See below for her email. Let us know if you have read it! Thanks Ann for letting us know

Sonia Continue reading

Pallimed article on heart failure palliative care trial

Thanks to Dr Drew Rosielle for this thoughtful analysis of an important trial, comparing usual care to usual care plus palliative care in ambulatory heart failure patients.

http://www.pallimed.org/2017/07/palliative-care-chf-pal-hf-trial.html

Headline – palliative care improved quality of life. So this article is adding to the literature supporting this idea, which mostly occurs in the malignant domain.

Check out Pallimed if you have time, it’s got great stuff!

Enjoy!

Sonia

 

ANZSPM position on medicinal cannabis

ANZSPM criticises failure to consult on medicinal cannabis

The Australian and New Zealand Society of Palliative Medicine (ANZSPM) is calling for improved consultation with end-of-life care experts after yesterday’s Senate decision on medicinal cannabis.

ANZSPM President, Dr Carol Douglas FAChPM, expressed concern that the decision will have ramifications for both patient and practitioner protections:

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Dying to talk?

Palliative Care Australia brings you this youtube video which you can share with patients, families and friends…

Jean Kittson says it’s important to complete the Dying to Talk Discussion Starter and encourages you to speak to your loved ones about your end-of-life care wishes.

If you make any advance care plans, bonus points for documenting something in writing it and sharing it with your substitute decision maker, your MyHealthRecord, your  GP and local hospital!

 

Integrated Palliative Care – what does this mean in 2017?

The team at @Palliverse are huge fans of Prof Jenny Philip, an inspirational speaker and all round wise and skilled person!

Come along to Monday Lunch (it’s a good lunch) next week and see Jenny share her thoughts on

Monday Lunch Live with Prof Jennifer Philip

8th May 2017

The Role of Integrated Palliative Medicine in Best Cancer Care

Victorian Comprehensive Cancer Centre

Lecture Theatre B, Level 7

305 Grattan St, Melbourne, VIC 3000

Book Now : come along, catch up live via webinar, or later when you have time. 

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Dying2learn? Join the conversation about death and dying

Our colleagues at CareSearch  are developing and running a ‘Massive Open Online Course’ (MOOC) on death and dying (Dying2Learn) for the second year in a row.

The CareSearch MOOC will provide an opportunity for any Australian to openly and supportively discuss, learn, and contribute to discussions on social issues around death and dying. The MOOC has been created for the general public in Australia, but everyone is invited to join us.

Registrations open on 27th of March for a start on 3rd April. It will run for five weeks.

It will include learning modules covering:

  1. How does today’s society engage with death and dying? How do we use language to describe it? What about the role of t.v. and film?
  2. What does death ‘look’ like? How is death and dying portrayed in the media?
  3. If death is the problem, is medicine the answer? A look at what we die of, the role of medicine, and prolonging life versus prolonging death.
  4. Digital dying: Death during the internet age.

Want to know more? Please visit www.caresearch.com.au/Dying2Learn

6th International Conference on Advance Care Planning and End of Life Care (ACPEL) in Canada

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Details at a glance:
Event: 6th International Conference on Advance Care Planning and End of Life Care (ACPEL)
Theme: Conversations Matter
Date: September 6-9, 2017
Location: The Banff Center, Banff, Alberta Canada