Our colleagues at CareSearch are developing and running a ‘Massive Open Online Course’ (MOOC) on death and dying (Dying2Learn) for the second year in a row.
The CareSearch MOOC will provide an opportunity for any Australian to openly and supportively discuss, learn, and contribute to discussions on social issues around death and dying. The MOOC has been created for the general public in Australia, but everyone is invited to join us.
Registrations open on 27th of March for a start on 3rd April. It will run for five weeks.
It will include learning modules covering:
How does today’s society engage with death and dying? How do we use language to describe it? What about the role of t.v. and film?
What does death ‘look’ like? How is death and dying portrayed in the media?
If death is the problem, is medicine the answer? A look at what we die of, the role of medicine, and prolonging life versus prolonging death.
Details at a glance: Event: 6th International Conference on Advance Care Planning and End of Life Care (ACPEL) Theme: Conversations Matter Date: September 6-9, 2017 Location: The Banff Center, Banff, Alberta Canada
Palliverse is a fan of twitter and social media in general increasing awareness and uptake of palliative care. This analysis of search terms in twitter shows that awareness of palliative care looks to be increasing in the US, compared to in the UK where it is well established.
Internet search query analysis can be used to demonstrate the rapidly increasing public awareness of palliative care in the USA McLean, S., Lennon, P., Glare, P. BMJ Support Palliat Care. 2017; 0:bmjspcare-2016-001171v1-bmjspcare-2016-001171.
A lack of public awareness of palliative care (PC) has been identified as one of the main barriers to appropriate PC access. Internet search query analysis is a novel methodology, which has been effectively used in surveillance of infectious diseases, and can be used to monitor public awareness of health-related topics.
We aimed to demonstrate the utility of internet search query analysis to evaluate changes in public awareness of PC in the USA between 2005 and 2015.
Methods Google Trends provides a referenced score for the popularity of a search term, for defined regions over defined time periods. The popularity of the search term ‘palliative care’ was measured monthly between 1/1/2005 and 31/12/2015 in the USA and in the UK.
Results were analysed using independent t-tests and joinpoint analysis. The mean monthly popularity of the search term increased between 2008–2009 (p<0.001), 2011–2012 (p<0.001), 2013–2014 (p=0.004) and 2014–2015 (p=0.002) in the USA. Joinpoint analysis was used to evaluate the monthly percentage change (MPC) in the popularity of the search term. In the USA, the MPC increase was 0.6%/month (p<0.05); in the UK the MPC of 0.05% was non-significant.
Although internet search query surveillance is a novel methodology, it is freely accessible and has significant potential to monitor health-seeking behaviour among the public. PC is rapidly growing in the USA, and the rapidly increasing public awareness of PC as demonstrated in this study, in comparison with the UK, where PC is relatively well established is encouraging in increasingly ensuring appropriate PC access for all.
Palliative doctors and trainees and those interested in pain management might want to check out the upcoming pain management workshop at the shiny new Victorian Comprehensive Cancer Centre.
“This workshop is ideally suited to general practitioners, perioperative physicians, anaesthetists and pain specialists who seek an update on evidence-based management of acute pain in the perioperative setting. We will also highlight the latest research aimed at reducing the transition of acute pain to subacute and chronic pain and its associated morbidity.”
She detailed some powerful anecdotes, including the story of two sisters whose mother lay dying in a hospital. The cost of parking was prohibitive and the daughters took it in turns to sit in the car watching out for the parking inspector. When their mother died, only one of the daughters was there; the other was in the car. Continue reading →