Merryn Gott (@MerrynGott) spoke about the ‘last taboo’ in our community: the invisible and sometimes unexpected costs of providing care at the end of life, which are often not explored in clinical and almost never measured in policymaking and research. She also discussed the impact of culture, ethnicity and gender on who is bearing these financial and non-financial costs. To find our more, read her open access @PalliativeMedJ article here.
Meera Agar (@meera_agar) discussed the growing evidence base around delirium care in the palliative care setting. Management of this complex, distressing, life-threatening, but often reversible syndrome is challenging. Non-pharmacological strategies and a system-wide approach to organizing and delivering care are crucial, as research into various drug treatments continue to demonstrate a lack of clear benefit and the potential for harm. Meera recommends iDelirium for more information about this important area of palliative care.
Pippa Hawley reflected on the lack of evidence around the use of medicinal cannabis – despite the immense interest from (and considerable experience of) our communities. How should clinicians respond while the scientific and legal issues are sorted out? Ask questions, keep an open mind & work with our patients!
Douglas McGregor explored the interface between heart failure and palliative care. He referenced Sarah Goodlin’s open access article, Merryn Gott’s study while discussing prognostic uncertainty and clinician paralysis; and observed that most guidelines still see palliative care as relevant only at the very end of life, rather than a key component of chronic disease management. Amy Gadaud’s (@agadoud) review was flagged as a good place to start when considering issues around early integration.
Sam Bloore stimulated and inspired delegates with his fascinating talk about dying well in a culture of bitcoin and botox. How can palliative care adapt, survive and thrive in this changing cultural landscape characterized by information overload, mindless distraction and incoherence? We must remain a “subversive” counterculture and continue to strive towards caring deeply and meaningfully!
In addition to these amazing plenaries, fully (and at times even over-)subscribed workshops on the overlap between palliative care and addiction medicine / chronic pain, aged care, literature and the arts were held, alongside numerous excellent oral and poster presentations from specialists and trainees. The enthusiastic and well-informed audience present during all of the sessions was another highlight for me (and I’m sure all of the other speakers and delegates)!
It’s been a wonderful few days in Perth. A big thank you to the Conference organizing committee, chaired by Derek Eng (@dr_engd), for inviting team @Palliverse to be part of this great event. Thanks also to all of you for engaging with #ANZSPM16 on social media. Keep an eye out for our upcoming tweet chats, during which we will continue the conversation about the changing landscape of palliative care!
This week, Palliverse will be hosting the @WePublicHealth rocur (“rotating curation”) Twitter account. You can read more about @WePublicHealth, “an experiment in citizen journalism meets public health”, over at Croakey blog.
This week, Palliverse will discuss a number of public health palliative care topics such as equitable access to palliative care in Australia/New Zealand and globally, access to essential pain medicines, Compassionate Communities, advance care planning, and more. Continue reading →
The team at GeriPal started the Thickened Liquid Challenge to raise awareness of the use of thickened liquids (or thickened fluids, as I know them) for people with swallowing difficulties. Thickened fluids are frequently prescribed to people with swallowing difficulties, but the evidence for their long-term benefit is unconvincing, as GeriPal’s Dr Eric Widera explains. In addition, they are unpleasant (as you will see from the videos!) and may result in reduced fluid intake and dehydration. You can read more about it (and watch many videos of the challenge) at GeriPal. Continue reading →
The latest update of the Palliverse researchers database is here! Our numbers continue to grow and we will be talking about (and hopefully recruiting for) the database as a poster presentation at the upcoming Asia Pacific Hospice Conference in Taipei, Taiwan. Come and say hello in person if you will also be attending!
Once again, if you’ve have any stories associated with the database, we’d love to know! Email us at Palliverse@gmail.com
Thanks to everyone who joined us in person or online today for our presentation at the PCRNV Forum. A special mention must go to James for his great webinar effort! Here is the transcript and analytics for you to enjoy! If you would like to join the Researchers Database, please fill in this Database invitation and send it back to us at Palliverse@gmail.com
Team Palliverse is excited to be presenting at the upcoming Palliative Care Research Network Victoria (PCRNV) Forum on March 24th at 5pm AEDT (2pm AWST; 7pm NZDT). We will be talking about the use of social media in palliative care research and clinical practice. Join us in person, via webinar or on twitter!