With a theme of ‘Fit for the Future’, the 13th Australian Palliative Care Conference utilised a coordinated and multifaceted social media strategy to enhance the delegates’ experience and reach new audiences globally. This was achieved through the concerted efforts of team Palliverse (@Palliverse) and other key individuals, including Christian Sinclair (@ctsinclair). Continue reading
Here’s the latest collection of reads for your weekend, with palliative care news from around the world, research and social media advice, and a palliative pet care story. As always, please enjoy and share your thoughts in the comments below.
Today is World Refugee Day, at a time when world refugee numbers are at their highest since WWII. A new Palliative Care in Complex Humanitarian Emergencies (PALCHE) network has launched to help address the unmet palliative care needs of the world’s >60 million refugees. Read about it (and find out how to get involved) at ehospice.
Hi and welcome to the first “Elsewhere in the Palliverse” for 2015. There is an (unintentional) geriatric flavour to this week’s links. This is possibly because today marks the end of a six-month geriatrics rotation for me, or maybe because another year has ended and birthday has passed. Regardless, I hope that Palliverse readers enjoy the following links:
Dementia researchers Muireann Irish and Rebekah Ahmed give their take on the new film adaptation of Still Alice, a novel about a 50 year old woman who is diagnosed with Alzheimer’s disease. Have you read the book? Will you see the movie? (Still Alice: A rare look at how dementia steals memories from millions – The Conversation)
Professor Rod McLeod gives some background on his article in this month’s European Journal of Palliative Care, ‘Making it easier to die at home – an innovative programme in New South Wales, Australia’. (Making it easier to die at home – EAPC Blog)
Social media is a broad term that includes all sorts of online platforms and interactions, from the blogs* I follow (and share) via my RSS reader, to Youtube videos, Facebook, Twitter, LinkedIn, slideshare and beyond. This week’s “Elsewhere in the Palliverse” visits the intersection of social media, palliative care and research.
- Watch the ehospice interview with Atul Gawande at their YouTube channel (above).
- Is it possible to crowd fund a palliative care service? As I write this, the Resolution Care team are within USD $7000 of their USD $100 000 goal, with 19 hours to go. (via one of our favourite blogs, Pallimed)
- If you don’t have time for Twitter, perhaps you should make time to read this… (by Carl Heslop aka @CarlosDenWA, a rural RN and public health PhD student in WA, via @croakeyblog)
- Discussion of palliative care on Twitter is largely positive, and increasing, finds a study from Dr Amara Nwosu (of the Marie Curie Institute in Liverpool), published earlier this year in BMJ Supportive & Palliative Care (via ehospice)
- Some tips for conference organisers on how to optimise conference tweeting, by Sydney urologist and Twitterati Dr Henry Woo (@DrHWoo).
- Henry’s advice is especially important when designing patient-friendly conferences (from @Colin_Hung at the Healthcare Leadership Blog).
- Croakey shares 10 tips for using social media to promote health: reflections from Fertility Week. (Okay, so “Fertility Week” doesn’t immediately scream “palliative care and research” but these tips are translatable to palliative care promotion.)
- Two articles from Sydney entomologist Dr Cameron Webb, Can social media increase the exposure of newly published research? and From publication to the public: Can blogging scientific papers stop people getting sick? (Short answer – yes!)
- The UK-based CotEcast is a podcast for clinicians who care for older patients. The episodes have great names (and content), like “Breaking Bad Bones” and “The F Word”.
- What do you think about the possibility of “Google Science”? (How Google Science Could Transform Academic Publishing, via Wired)
*including palliverse.com, of course!
Another week has passed and there is much to tell, but before we get into let spare a quick (and envious) thought for Elissa who can’t be with us to post today because she is in the middle of a well earned holiday.
Now down to business.
This clip from the Center to Advance Palliative Care (CAPC) describes a novel analogy for our selves that works neatly with a description of palliative care.
This TED Talk “How Not To Be Ignorant About the World” by Dr Hans Rosling (@HansRosling – Swedish medical doctor, statistician and Professor of International Health) and his son Ola Rosling is an entertaining and eye-opening look at how our biases and intuition lead to misconceptions. (For the record, I vote like a Swede – not a chimp.)
Making a case for the integration of palliative care in policies on ageing and dementia – a European perspective (EAPC Blog)
More on dementia – Ageism and death anxiety (ehospice UK)
In Australia: Call for a Royal Commission into Nursing Home Care (ABC Radio National)
And a more positive look at residential aged care: A Nursing Home Can Be a New Beginning (Adele Horin)
The NHS (UK) has an End of Life Guidance app! (iTunes store)
The Institute of Medicine (US) released a report entitled “Dying in America: Improving Quality and Honoring Individual Preferences Near the End of Life.” There’s been a lot of discussion about it on palliative care social media and the mainstream media over the past week. Pallimed has a nice summary.
Many Palliverse readers would be able to relate to this – The reality of nurses completing their own research (EAPC Blog)
If you haven’t already, consider signing the Montreal Declaration for palliative care (AHPCA Blog)
Also consider crowdfunding Little Stars, a movie about paediatric palliative care.