2015 in the Palliverse – palliative care reading

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Are you looking for some reading over the summer holidays (or winter if you’re that way inclined)? Over the next fortnight, we’ll be looking back at some of our posts over the past year. We’ve been to conferences, reflected on clinical and research experiences, shared palliative care educational resources (#FOAMPal) and hosted guest contributors.

A good place to start for palliative care reading is our “Elsewhere in the Palliverse” posts, curated lists of palliative care articles, blog posts, educational resources and the occasional video from Australia, New Zealand, and beyond. This year we’ve shared fifteen “Elsewhere in the Palliverse” posts. We’ve had special editions for events like World Hospice and Palliative Care Day, Dying to Know Day, and Halloween.

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Elsewhere in the Palliverse – Weekend Reads

photo by David Mao itsdavo

Welcome to this weekend’s reads. People seem to enjoy the cute animal stories, so I’ve included one (near the end, if you want to read it first).

The latest paediatric palliative care video (below) from Little Stars is about treating chronic pain in children. It’s nice to see how the interdisciplinary team interacts with, and respects, the girl in the video.

An article that is all over my social media feeds this week: Knowing How Doctors Die Can Change End of Life Discussions. It also brought back to mind this article on How Doctors Die. (NPR)

“I felt like I was beating up people at the end of their life…I would be doing the CPR with tears coming down sometimes, and saying, ‘I’m sorry, I’m sorry, goodbye.’ Because I knew that it very likely not going to be successful. It just seemed a terrible way to end someone’s life.” Continue reading

Elsewhere in the Palliverse – Weekend Reads

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Hope everyone is enjoying the live tweet-feed from the 11th Asia Pacific Hospice Conference in Taipei, Taiwan #APHC2015. Just between you and me, I think James has gone slightly crazy as he morphs into a rapid-fire, live-tweeting demon from Taiwanese folklore. For a more measured account of the first few days of the conference, check out this article from ehospice.

Other interesting things to help you while away your weekend:

  • Weather forecasting and prognostication (Pallimed)
  • Global atlas of palliative care at the end of life (WHO / WHPCA)
  • Rita Charon on honouring the stories of illness (YouTube)
  • Anything but the D word in this famous sketch from Monty Python (YouTube)
  • The latest issue of the ANZSPM Newsletter

Happy May Day / International Workers’ Day!

Elsewhere in the Palliverse – Weekend Reads

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(Jacaranda tree in the Royal Botanic Gardens, Sydney)

comprehensive review of Medicare was announced this week, which has the potential to significantly impact how healthcare is delivered in Australia. Opinions abound (a small sample here, herehere, and here) but details are scarce. This announcement is timely, with the release of Australian Medical Association’s annual report card on public hospital services last week (reactions here and here) and the upcoming launch of Choosing Wisely Australia on April 29th (more on this herehere and here).

Also this week, Queensland and Victoria joined New South Wales in conducting clinical trials on the use medicinal cannabis (other reports herehere and here). Information about the trial and law reform process can be found here, here and here. Palliative Care Australia has also provided a submission.

Other reads:

  • Physician suicide, burnout and self-care
  • How to answer the question: “Am I dying?”
  • Book of abstracts for the 14th World Congress of the European Association for Palliative Care

Finally, it’s ANZAC Day: Lest we forget.

Elsewhere in the Palliverse – Weekend Reads

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(Another beautiful day in Apollo Bay)

Conversations that Count Day took place across New Zealand this week (on April 16th). Read a selection of the various conversations and discussions generated around this event hereherehere, here, here and here.

At the same time, the US National Healthcare Decision Day promoted similar conversations across the pacific. An excellent collection of resources from Pallimed can be found here.

The Victorian Auditor-General’s Office released its report on the provision of palliative care services in the state this week. It’s findings and recommendations are both heartening and  worrying. Mainstream and palliative care media responses can be found here and here.

The Australian Medical Association also released its position statement on Palliative Approach in Residential Aged Care Facilities earlier this week.

Many of us love a great TED talk. Haven’t heard of them? Or simply looking for a few more to feed your addiction? Check out this playlist on “New ways to think about death”.

A few reflective pieces to fill your head and heart this weekend:

And finally, here’s another plug for our new fellow survey.

Have a lovely weekend everyone!

Elsewhere in the Palliverse – reading list

This TED Talk “How Not To Be Ignorant About the World” by Dr Hans Rosling (@HansRosling – Swedish medical doctor, statistician and Professor of International Health) and his son Ola Rosling is an entertaining and eye-opening look at how our biases and intuition lead to misconceptions. (For the record, I vote like a Swede – not a chimp.)

The beautiful poem Japanese Maple by the Clive James (written while he is dying) has been all over my social media feeds this week. Here’s The Guardian‘s take on why it’s resonating with people.

Bioethicist Ezekiel Emanuel writes in the Atlantic on Why I Hope to Die at 75. And here’s a rebuttal from Alex Smith at GeriPal.

Making a case for the integration of palliative care in policies on ageing and dementia – a European perspective (EAPC Blog)

More on dementia – Ageism and death anxiety (ehospice UK)

In Australia: Call for a Royal Commission into Nursing Home Care (ABC Radio National)

And a more positive look at residential aged care: A Nursing Home Can Be a New Beginning (Adele Horin)

An interview with the Groundswell Project (Dying Wishes – Australian Ageing Agenda)

The NHS (UK) has an End of Life Guidance app! (iTunes store)

The Institute of Medicine (US) released a report entitled “Dying in America: Improving Quality and Honoring Individual Preferences Near the End of Life.” There’s been a lot of discussion about it on palliative care social media and the mainstream media over the past week. Pallimed has a nice summary.

Terminally ill, but constantly hospitalised. (NPR)

Many Palliverse readers would be able to relate to this – The reality of nurses completing their own research (EAPC Blog)

If you haven’t already, consider signing the Montreal Declaration for palliative care (AHPCA Blog)

Also consider crowdfunding Little Stars, a movie about paediatric palliative care.