This month, we are excited to explore how palliative care can help to support young people in our community living with serious illness! Our upcoming #PALLANZ tweetchat to be held at 7pm (AEST) on Thursday 30th June will discuss topics related to the palliative care needs of children and adolescents and their families. We will also be featuring some guest blogs from new Palliverse Contributors working with young people in Paediatric Palliative Care (#pedpc).
During our #PALLANZ tweetchat, we hope to bring together those interested to talk about how a kid’s #pedpc service can help young people with serious illness to live well; when a young person might meet the #pedpc team; and where they might like to receive care. We’ll also imagine we have a magic wand able to do anything we want to improve the available supports and share these ideas and other helpful resources!
Little Stars is an award-winning series of films about paediatric palliative care, made by Melbourne’s Moonshine Movies and partially crowd-funded (via Indigogo).
They are looking for people to host screenings of the film, particularly around World Hospice and Palliative Care day in October. From their website:
“We encourage you to get behind the project and help us band together towards the goal of ensuring that every child needing palliative care can access it worldwide, thereby relieving the suffering of children and families facing life-limiting illness.
As a result, we’re delighted to invite you to pledge to host a screening or to use the films for public education or advocacy. In return, we will mail you a DVD of the films in the Little Stars collection and a How-to-Host-A-Screening Guide at no cost.”
Welcome to this weekend’s reads. People seem to enjoy the cute animal stories, so I’ve included one (near the end, if you want to read it first).
The latest paediatric palliative care video (below) from Little Stars is about treating chronic pain in children. It’s nice to see how the interdisciplinary team interacts with, and respects, the girl in the video.
“I felt like I was beating up people at the end of their life…I would be doing the CPR with tears coming down sometimes, and saying, ‘I’m sorry, I’m sorry, goodbye.’ Because I knew that it very likely not going to be successful. It just seemed a terrible way to end someone’s life.”Continue reading →