Palliative Care Needs of Children & Adolescents
This month, we are excited to explore how palliative care can help to support young people in our community living with serious illness! Our upcoming #PALLANZ tweetchat to be held at 7pm (AEST) on Thursday 30th June will discuss topics related to the palliative care needs of children and adolescents and their families. We will also be featuring some guest blogs from new Palliverse Contributors working with young people in Paediatric Palliative Care (#pedpc).
During our #PALLANZ tweetchat, we hope to bring together those interested to talk about how a kid’s #pedpc service can help young people with serious illness to live well; when a young person might meet the #pedpc team; and where they might like to receive care. We’ll also imagine we have a magic wand able to do anything we want to improve the available supports and share these ideas and other helpful resources!
Together with the CEO of Palliative Care Australia (@PCACEO), @palliverse invites you to get online and join the #pallanz chat next week to share your experiences, ask your questions and talk about the key issues for young people in our community living with serious illness. Everyone is welcome – young people, carers, community members, and health professionals – we encourage you to give to a try!
What?
Topics for discussion:
- T1: What can #pedpc mean for children and adolescents living with serious illness & when is the ‘right’ time to meet the #pedpc team?
- T2: Communication needs of children, adolescents and their families in #pedpc: key issues & responses
- T3: What is your ideal #pedpc place of care and why: home, hospital or hospice?
- T4: If you had a magic wand, what would you do to improve #pedpc for children and adolescents living with serious illness?
- CT: Closing thoughts or helpful #pedpc resources
Who?
Everyone with an interest in these issues is welcome, including:
- Young people living with chronic illness, serious illness, life-limiting illness and their siblings, friends, parents or carers
- Clinicians, researchers.
- Health service managers, administrators, policymakers.
- Other interested members of the community.
- Anyone who wants to learn more about palliative care.
When?
Thursday, 30th June 2016
- 5:00pm AWST Perth
- 6:30pm ACST Adelaide, Darwin
- 7:00pm AEST Canberra, Sydney, Melbourne, Hobart, Brisbane
- 9:00pm NZST Wellington, Auckland, Christchurch
How?
The @Palliverse moderator for this tweet-chat will be Anna Collins (@AnnaLCollins). If you would like to ask your questions, or share your ideas and experiences with our #PALLANZ community, but are unable to join us on 30 June – please contact @AnnaLCollins via twitter or email us (Palliverse@gmail.com) ahead of the tweetchat.
If you are new to twitter or have never participated #PALLANZ tweetchat, check out our tutorial here. Once you have a twitter account, just type the hashtag #PALLANZ into the search bar at the time of the tweetchat and click ‘live’ to watch the chat unfold. You can join in by adding the hashtag #PALLANZ to your tweets.
Ahead of the chat, be sure to check out Marmaduke’s Story from the wonderful Little Stars series, shared by Palliative Care Australia. This is the story of one Australian family caring for their young son at home with the help of palliative care support in the community. If you would like to share your own story with us, we’d love to hear from you Palliverse@gmail.com
Look forward to welcoming you to #PALLANZ soon.
@AnnaLCollins for @Palliverse
palliverse.com 