This month, we are excited to explore how palliative care can help to support young people in our community living with serious illness! Our upcoming #PALLANZ tweetchat to be held at 7pm (AEST) on Thursday 30th June will discuss topics related to the palliative care needs of children and adolescents and their families. We will also be featuring some guest blogs from new Palliverse Contributors working with young people in Paediatric Palliative Care (#pedpc).
During our #PALLANZ tweetchat, we hope to bring together those interested to talk about how a kid’s #pedpc service can help young people with serious illness to live well; when a young person might meet the #pedpc team; and where they might like to receive care. We’ll also imagine we have a magic wand able to do anything we want to improve the available supports and share these ideas and other helpful resources!
Little Stars is an award-winning series of films about paediatric palliative care, made by Melbourne’s Moonshine Movies and partially crowd-funded (via Indigogo).
They are looking for people to host screenings of the film, particularly around World Hospice and Palliative Care day in October. From their website:
“We encourage you to get behind the project and help us band together towards the goal of ensuring that every child needing palliative care can access it worldwide, thereby relieving the suffering of children and families facing life-limiting illness.
As a result, we’re delighted to invite you to pledge to host a screening or to use the films for public education or advocacy. In return, we will mail you a DVD of the films in the Little Stars collection and a How-to-Host-A-Screening Guide at no cost.”
If you’re lucky enough to have a break over the summer holiday season, I would advise that you to avoid anything work-related. However, if you just can’t pull yourself away from the worlds of palliative care and research, here (in no particular order) are some related links:
Check out the short films from Little Stars TV, sharing stories of paediatric palliative care.
Need a last-minute gift for an older person? See GeriPal’s list of Gifts for Seniors (although my Dad didn’t seem to appreciate it when I shared it with him!)
A medical conference with rapping and singalongs? I’d love to attend this “creative medical conference“, which explores “the spaces between medicine and humanities and media and technology.” (Dotmed conference via Irish Times)
Some of our readers will be able to relate to this piece on the post-PhD slump. I am slowly working my way through the rest of this excellent blog, Patter, from Professor Pat Thomson.
The Heart Sisters blog (@HeartSisters) is a great read for a patient’s perspective of living with heart disease and navigating the health care system.
Another patient blog I recommend is Living with Bob (Dysautonomia) (@RustyHoe). She writes detailed, thoughtful posts about living with chronic illness. Her descriptions of dysautonomia symptoms are eloquent. I can’t do it justice. Check it out.