#PALLANZ tweet chat: Palliative Care Yarning

PallANZ 201603 altPalliverse acknowledges the traditional custodians of the lands on which we live, and we pay respect to Elders past and present. We also acknowledge the important contribution of Aboriginal and Torres Strait Islander people to Australian society.

The delivery of high-quality, culturally sensitive and respectful palliative care services to Indigenous communities is critically important. In the Australian context, a recent press release from NACCHO highlights some of the key issues, including the need to partner with Indigenous communities to develop and implement culturally appropriate services.

In the spirit of respectful, inclusive communication and ongoing learning, we invite you to join us for an online “Palliative Care Yarning” tweet-chat on 31st March 2016. This tweet-chat will be an opportunity to discuss some key issues in palliative care for Indigenous and First Nation peoples, including Aboriginal and Torres Strait Islander people in Australia.

When? Thursday, 31st March 2016

  • 4:00pm AWST Perth
  • 5:30pm ACST Darwin
  • 6:00pm AEST Brisbane
  • 6:30pm ACDT Adelaide
  • 7:00pm AEDT Canberra, Sydney, Melbourne, Hobart
  • 9:00pm Wellington, Auckland, Christchruch

What? Topics for discussion:

  • T1 What does high quality Indigenous palliative care mean to you?
  • T2 How can we improve equity in palliative care delivery to Indigenous communities across remote, regional and urban settings?
  • T3 How can existing services collaborate with Indigenous communities in palliative care? (eg training, advocacy, service delivery)
  • T4 How will the services of the future deliver high quality Indigenous palliative care?

As always, we ask that you include the topic tag (e.g. T1) in your response to each topic, and include the #PALLANZ hashtag in your response. As the #PALLANZ community is international, we respectfully encourage use of the term ‘Indigenous people’ where referring to Indigenous and First Nations people and communities from across the world during the tweet-chat. The @Palliverse moderator for this tweet-chat (@csinclair28) will be responsive to any specific requests or feedback from participants regarding appropriate and respectful language.

You don’t have to be an expert, a Twitter whiz, or even live in Australia or New Zealand to join – in fact, we strongly encourage those new to Twitter and from beyond our shores to join us and share your views!

For those new to Twitter check out our tutorial here.

Looking forward to talking soon.

Elsewhere in the Palliverse – Halloween edition

photo by David Mao itsdavoToday (in some parts of the world) it’s Halloween or, as Caitlin Doughty (@TheGoodDeath) calls it, “Culturally Sanctioned Morbidity Appreciation Day.” Please enjoy these links, which have nothing to do with Halloween but may have something to do with palliative care.

Is death taboo? The Groundswell Project conducted a quick survey. The results may surprise you. (The Groundswell Project)

Health researcher on a mission to get Indigenous men talking about prostate cancer and sexual health (ABC News)

“It’s about starting a conversation…[Doctors need to] throw in a phrase like how you going, how’s the old boy, is he getting up, is he getting the job done?”

“…I find men want to talk about it, but someone has to start the conversation with them.”

The silver tsunami is actually silver-brown. How does end-of-life care differ for minorities? asks geriatrician and palliative care doctor VJ Periyakoil (@palliator) in the Washington Post.

Pulitzer prize-winner Tina Rosenberg visits La Crosse, Wisconsin, home of the Respecting Choices program, where 96% of adults reportedly participate in advance care planning discussions. (Talking Early About How Life Should End, New York Times).

And now, a video about advance care planning!

Going to work, writing letters for the future and speaking your mind: Day-to-day living when you know you’re dying (Independent, UK)

In Australia: Federal Government to legalise growing of medicinal cannabis; Labor calls for nationwide scheme (ABC News). Apparently, we’re all for it: Legalised medical marijuana opposed by only 7% of Australians, poll shows (Guardian Australia)

Here’s a strange story to finish the list – “Parkinson’s disease: Scottish woman Joy Milne prompts study after claiming ability to smell condition.” Odd. Thanks to my colleague Dr Bornshin for the link. (ABC News)