Elsewhere in the Palliverse – social media edition

Social media is a broad term that includes all sorts of online platforms and interactions, from the blogs* I follow (and share) via my RSS reader, to Youtube videos, Facebook, Twitter, LinkedIn, slideshare and beyond.  This week’s “Elsewhere in the Palliverse” visits the intersection of social media, palliative care and research.

*including palliverse.com, of course!

 

Uncovering ethics: To stay or to go (Bob’s story)

“I am done. I am over,” says Bob before failing back to the pillow with quiet momentum.

“It’s like he is rushing down a river, and we have nothing we can do to slow him down,” says his daughter. Her voice is strong and carries the pain of her words in a no nonsense way, like it is not a burden at all. They are both strong like this, a family trait, and their strength fills the room. It almost vibrates with the effort.

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Continue reading

What’s new in research?

New trial published in the Lancet Respiratory Medicine provides evidence for early integration of palliative care in patients with advanced disease suffering from breathlessness.

Higginson and colleagues randomised 105 people with advanced disease and refractory breathlessness (MRC dyspnoea scale score >2) to receive a breathlessness support service or usual care. The breathlessness support service involved, sequentially: 1) An outpatient clinic appointment involving assessment and treatment by respiratory medicine and palliative care clinicians, as well as a breathlessness information and management pack;  2) An allied health home assessment and promotion of self-management techniques approximately 2-3 weeks post the clinic; and 3) A final discharge planning outpatient clinic appointment with a palliative care clinician approximately 4 weeks post the clinic.

Mastery of breathlessness symptoms significantly improved for patients attending the breathlessness support service, compared to usual care (16% improvement, p=0.048). For patients with COPD and interstitial lung disease (but not cancer): survival rate from randomisation to 6 months was greater in those who attended the breathlessness support service (94%) versus usual care (75%), as was overall survival (p=0.048). Total health care costs calculated from patient-reported health service use were not significantly different between groups.

Have a read: http://www.thelancet.com/journals/lanres/article/PIIS2213-2600(14)70226-7/fulltext

Higginson IJ, Bausewein C, Reilly CC, Gao W, Gysels M, Dzingina M et al. An integrated palliative and respiratory care service for patients with advanced disease and refractory breathlessness: a randomised controlled trial. The Lancet Respiratory Medicine. 2014. 2(12):979-987. DOI: 10.1016/S2213-2600(14)70226-7

 

Elsewhere in the Palliverse – weekend reads

Gratuitous holiday snap unrelated to post

Gratuitous holiday snap unrelated to post

I’ll be spending the weekend enjoying the sunshine reminiscing over holiday snaps catching up with tweets from #CancerCongress, #PPCConference, #COSA2014 working on an ethics proposal. If you’re looking for something to do, try this reading list.

Tweets from the afterlife: social networking with the dead – from @ConversationEDU

This is another article from the Death and Dying series on the fantastic website The Conversation. We’ve shared a couple of these articles before and I would recommend reading the rest over at The Conversation.

Tweets from the afterlife: social networking with the dead

By Bjorn Nansen, University of Melbourne; James Meese, University of Melbourne; Martin Gibbs, University of Melbourne; Michael Arnold, University of Melbourne, and Tamara Kohn, University of Melbourne

Media technologies have operated as both a means of communicating news of a death and memorialising the deceased for a significant period of time, moving from traditional epitaphs, eulogies, wakes and inscription in stone to centuries-old obituaries printed and circulated in newspapers. So where are we now? Continue reading

4th International Public Health & Palliative Care Conference: Call for Abstracts Extended

Great news for all of you secretly hoping for a reason to visit the UK next May – Abstracts submissions for the 4th International Public Health & Palliative Care Conference, Bristol May 11th-16th 2015, have been extended to December 7th.

PHPC Conference BannerThis conference builds on the momentum from previous international public health and palliative care conferences – in Kerala, India (2009); Dhaka, Bangladesh (2011); and Limerick, Ireland (2013).

The conference theme Community Resilience in Practice promises to attract a diverse array of presenters to share the valuable work that is happening in the international space of Public Health and Palliative Care.

So, what are you waiting for?  Hey, I’m even considering a second submission!

You can access the full call for abstracts here

OR, if you would like to get a bit more of an idea about what a public health approach to palliative care entails, check out Bill’s Story on YouTube

Social media – health care hashtags

Greetings dear readers,

You may have caught up with past posts such as Twitter 101 and Twitter 102.

But, you may ask, how do I know which hashtags will be interesting for me?

Wonder no more. Here is a list from Symplur of healthcare hashtags.

The ones I look at are #HPMglobal (hospice and palliative medicine global), #HPM (you can work that one out), #HCLDR (health care leaders), #HCSMANZ (health care and social media Australia and New Zealand). There are some patient-centred ones I dip into like #BCSM (breast cancer social media) and #LCSM (lung cancer social media).

Continue reading

Advance Care Planning Australia Conference Day 1 wrap-up

The inaugural Advance Care Planning Australia conference is underway in Melbourne, hosted by Austin Health.  Day one saw a launch by Hon. David Davis MLC, who reflected on the Victorian Government’s support for advance care planning and acknowledged the specific contribution of work focused on increasing the concordance between patient preferences, and the actual care delivered, as a marker of success in end-of-life care.

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Toast, heat packs, and other banned substances

I recently fell into a twitter conversation that started with an innocent tweet by Dr Ros Taylor (@hospicedoctor):toasttwitter

I was surprised to learn that toast, a humble source of warmth of comfort, is banned in some hospitals. Continue reading

Elsewhere in the Palliverse – Weekend Reads (featuring zombies)

Here’s some palliative care and research related links to peruse in the week ahead (most found via Twitter):

ABC News interviews Atul Gawande about “modern medicine’s treatment of dying patients.” Dr Gawande is all over social media and the news, even in Australia (and in Legoland)!

Current and former Chairs of the Australian and New Zealand College of Anaesthetists Mortality Sub-Committee write in The Age about the challenges that not for resuscitation orders can pose for anaesthetists.

The ASCO Post reviews a review article from JAMA Internal Medicine, about end-of-life discussions and advanced care planning. In summary, it’s all good.

In Canada’s Globe & Mail, “End-of-life patients aren’t being heard“.

Geriatrician Louise Aronson writes in The Lancet about ageism in medicine, and ageing as “the human life-cycle’s neglected step-child.”

Presenting at a conference? Improve your presentation with zombie apocalypse principles.

Meanwhile, on October 31st, GeriPal explored the unmet palliative care needs of zombies. And check out the zombie pain scale!

Finally, join the weekly (zombie-free) #hpmglobal tweetchat on Monday (17/11/14 at 11pm AEDT) to discuss an article from BMJ Supportive & Palliative Care about support networks of end-of-life carers. #hpmglobal chat is hosted by Aussie ex-pat Dr Jim Cleary (@jfclearywisc), with participants from several continents. For instruction in how to participate in a tweetchat, see Sonia’s post Twitter 102.

I hope you enjoy these and stay safe from zombies!

 

Elissa