Palace of Care – The End of the Race

Photo by Cedrik Wesche on Unsplash

She had always been a strong lady, throughout her whole life. She may have done things slowly but always in a methodical fashion, and if it was done by her, it was done well. As it was in life, so it was in death.

Anyone else would likely have died a week ago, but she was holding on as she had too much to live for. She worried about her husband, physically he still looked like he had for the past twenty years but his ability to think and remember had started fading years ago. She had looked after him well, and had to increase her efforts since the dementia started to steal him away from her. He was still polite and kindly, but at times he would forget who she was, and would forget who he was too.

She had been told that the grandchildren were on their way back from overseas, she wasn’t able to acknowledge this. She was mostly unconscious, but would occasionally stir when being turned or when fed small spoonfuls of water. This was done with a special teaspoon which had a hollow mesh structure and the handle served as a straw.

The middle grandchild would arrive that evening, and she would do her best to hold on despite apnoeas of up to 15 seconds. The grandchild arrived and required Rapid Antigen Testing before we would let them in, a negative test would mean it was okay. The swab was taken and processed, the timer was set, 15 minutes before the test could be verified. Time drags on when you are waiting for something.

Tick, tock, tick tock.

A negative RAT test allowed the grandchild to reunite with their grandmother.

Phew….

Our patient died six hours after her reunion with her grandchild.

The eldest grandchild was still making their way back from half the world away and arrived 14 hours after our patient’s death.

RIP Strong Little Queen

Palace of Care – Father and Son

Photo by Vinicius “amnx” Amano on Unsplash

Covid 19 the gift that keeps on giving. Why does it have to be so generous? It has affected everyone and everything in the world, and the hospice is no different. We have had to impose visiting restrictions on our patients and their families in order to limit spread of the virus. Covid restrictions and quarantine requirements have led to some of the most upsetting situations that I have witnessed during my career.

When someone is dying, it is natural to want to be with them, to support them in their moment of need. They were there for you when you needed them the most, and you want to reciprocate if you can. Even before Covid it could be difficult to travel back home thousands of miles, trying your best to make it before your loved one dies. During Covid it has been that much worse.

My patient came in because of severe pain, a common reason for admission for many of my patients. His wife accompanied him, and they both looked exhausted. His pain had been poorly controlled over the weekend, and the nights had been especially long. The medications did not seem to work for long, they gave him a brief period of respite before the pain would come right back. It was almost cruel to be granted that small packet of relief, and then it would be roughly dragged out of his grasp again. This cycle repeated itself over what felt like a long two days. By Monday they needed help and he was admitted into hospice.

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Palace of Care – Love Changes Everything Part 2

Photo by Jackie Tan on Unsplash

The new normal had been in practice for some months. Receiving chemotherapy, recovering from the treatment, then a short break before the cycle started all over again. It was the short breaks that she looked forward to the most, when they could be free from feeling really unwell, almost normal again. Apart from the changed taste buds, and unrecovered appetite. At least they could enjoy each other’s company and smoke their favourite cigarettes together. Although they came from vastly different backgrounds and family origins, they had been amazed that they had so much in common. “In sickness and in health,” they had said as a part of their wedding vows, and he had certainly fulfilled his part. The doting husband, always there to help, he had never missed any of the appointments. He would text or call her from work during the day. She really needed him during the weeks after chemotherapy, these were her low periods when she had never felt more unwell. At times she almost didn’t want to start the next cycle, but he managed to convince her each time. That this was something that they would be going through together. His devotion had kept her going throughout the tough days and nights. Even in the midst of illness she felt blessed as he was standing by his woman.

It was the week after cycle four, they were just about to enter the recovery phase, and had planned to take a small trip to their favourite beach. They hadn’t been since last summer, things had been too hectic. This would be their chance to get away from the city, and their problems. He had gone to work as usual, he had prepared her breakfast before leaving, allowing her to sleep in. It was getting close to lunch-time and she was looking forward to saying good morning to him, he’d usually call her during his lunch break. No call came. Strange. She texted him but there was no reply. She noticed that there was a message on their answerphone. She listened to the message, it was his boss. Asking her to call him. What’s going on? What’s happened?

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*Updated* 18/05/16 – Palace of Care/I think therefore I am? -#getjnrbak – Extra, extra read all about it! #pallanz

Hi everyone,

Apologies for the late update, I’ve been clinically busy while working the weekend.

We – Palliverse and the family of “Poppa” and “Junior” are still trying to find a way to make their reunion happen.

With the family’s permission here is a photo from yesterday morning’s ward round:

Shirts

“Aloha” from Saturday morning from two guys who are fashion-forward? Poppa is trying to hold on for Junior.

The link to Poppa and Junior’s Story was shared through the social media by myself, the Palliverse community and the family.

I was pleasantly surprised that the link to the post appeared as a headline on Friday 13th May’s edition of the #hpmglobal paper.li – Thank you very much Jim Cleary!

I was informed by the family that one of NZ’s national papers had contact them and they were interviewed last night.

This resulted in the following story appearing this morning:

Screen Shot 2016-05-15 at 22.20.18

Snapshot of from the New Zealand Herald website – Click here to read the full story.

I’m checking out a few more traditional media leads in order to spread the word further.

I’m also trying to contact sailing clubs as suggested by others’ helpful comments.

Fingers are still crossed.


Update 18/05/16 1700 NZT:

Poppa is still holding on, but is getting mighty fatigued.

Junior is on the mend which is good to hear.

Since the NZ Herald on Sunday story we have received a number of helpful emails.

Apparently another NZ newspaper has shown interest in running our story.

I’ve emailed a number of NZ radio shows, an Australian newspaper, and whatever else that myself and other people can think of. I’ve started writing a letter to Santa Claus, the tooth fairy and others in the Pantheon.

Received by Palliverse today was an email from one of the major shipping companies with a desire to “try to make it happen.” I have passed on the details to the family to make direct contact.

This is the most promising lead so far.

Fingers crossed to the power of 10! Say your prayers folks.