“And I want one at the hospital, one here at the nursing home and one with the GP.” P and I have just been talking about the breathing difficulties that led to him being hospitalized last week. Continue reading
Uncovering ethics: The first steps
What’s new in research?
Trial published in JCO suggests even experienced clinicians benefit from communication skills training… AND so do their patients!
A study by Fujimori and colleagues examined the effects of a person-centred communication skills training program for 30 oncologists who were randomised to either receive the training or not. A total of 1,192 patients who had consultations with participating oncologists reported their psychological distress, satisfaction, and trust in the oncologist. In addition, oncologists were objectively assessed on their performance and confidence in communication using simulated, videotaped consultations. Those oncologists who received the training improved on several communication outcomes. While the training did not significantly impact patient’s satisfaction with their oncologist, patients reported greater trust in their oncologist and less depression. Results suggest experienced clinicians (9.3 – 30.3 years of practice) can benefit from communication skills training, and accordingly, so do their patients.
Have a read: http://jco.ascopubs.org/content/early/2014/06/09/JCO.2013.51.2756.abstract
Study reference: Fujimori M, Shirai Y, Asai M, Kubota K, Katsumata N, Uchitomi Y. The effect of communication skills training program for oncologists based on patient preferences for communication when receiving bad news: A randomized controlled trial. J Clin Oncol 2014, June 9 [Epub ahead of print]
The first conversation
He does not want to talk to me, that much is clear. He has had enough of doctors. He is a man of few words. His eyes do not meet mine. His coarse, calloused farmer’s hands play purposelessly with the starched white of the hospital bed sheet. The gentle hiss of his oxygen is barely heard over the hum of the city traffic below.
Out of his element.
“Tell me, what have the doctors told you about your medical condition?”
A useful question. I need to know how much he knows about his cancer. Not just what he knows, but what he doesn’t know and importantly, what he wants to know.
I have three cancers, he tells me. Lung cancer and brain cancer and bone cancer. The treatment isn’t working. There’s nothing more they can do for me.
A good start. I hit the last bit first. There is always something we can do for you, I say. It’s true, we can’t cure your cancer. But I want to talk to you about the pain you are getting, and the cough. Are there any other symptoms you’d like me to think about? I pick up a few new symptoms that have not been discussed before; low mood, low appetite, altered taste. He becomes more animated. We discuss treatment options and come up with a plan.
I am under some time pressure as he is to be discharged later today, back to the country, several hours drive away. I have fifteen other patients to see. I need to work fast while appearing to work slow. I elect not to correct him on there being three different cancers as I have other things I want to tackle first.
It’s a big ask for a man without high levels of health literacy and education who has just had shocking news. This is my challenge — to put information into terms that he can understand and remember. I pull out a piece of paper to summarize what we have talked out as I go.
Sometimes, often, my agenda is different to the patient’s; it’s good to be aware of this. My agenda today is to talk to my patient about dying and end of life care. He will probably not see another specialist in palliative care in the future.
“Are there any other questions you would like to ask me? Anything that’s worrying you that we have not talked about?”
No, he says. Yes, he means. He looks away. I wait. It’s harder than it sounds. I am better at talking and listening than silence. Silence is a tool, I remind myself. I count to ten very slowly.
I would rather not do this now, but I won’t see him again. Would you like to talk to me about dying?
“I saw my mum die,” he tells me. It was a bad death, with confusion, pain. We talk about his mother’s death. Often, care for the dying is not just about the person, it lives on in memories of those who watched, for decades.
We move on to the specifics of what is likely to happen to him in the next few weeks, the plans to manage his care. Oxygen. Don’t smoke with oxygen. Medications. Who to call if things go wrong. I reassure him that he should be comfortable, that plans are in place to look after him at home, we will speak to the district nurses and to his family doctor about what he might need. Options for care at home or at the local hospital. We agree he does not want to come back to the city again. He does not want to talk about the actual dying bit so I leave it. I give him the piece of paper with the summary of what we have talked about, and make the same old joke I always make about my bad handwriting. If you have any other questions or worries, please feel free to ask, I tell him.
“Thanks,” he tells me and his eyes meet mine again. “I really appreciate you talking with me.”
“It was a pleasure, “ I say, and mean it.
Sonia Fullerton is a palliative care physician in Australia and can be reached on Twitter @sonialf.
More current funding opportunities!
From Cancer Council Western Australia:
- PhD Top Up Scholarship. Details here. Closes October 31st.
- Honours Scholarships. Details here. Closes November 12th.
From Australian Rotary Health:
- Indigenous Health Scholarship. Details here. Opens December 1st.
From the Australian Research Council
- Various schemes open now/soon, such as the Discovery Early Career Researcher Award. Details here.
Check out other funding opportunities at CareSearch.
I think, therefore I am? – Please take a seat
What the heck was going on in the lounge? A patient’s family and the doctors were sitting on the floor with their legs crossed. Were they about to break out into song? Kumbaya my lord, Kumbaya…? Was this part of the Hospice Yoga Initiative? Mat-time at a new New Zealand charter school? No, it was actually a family meeting.
Family meetings are common occurrences in healthcare settings and are organized in order to convey a point of view, or to try to bring together disparate points of views. These events may actually be the first chance that some of the key stakeholders, i.e. the family and the healthcare team, actually have to meet each other. The first time that the next of kin has made time to meet with the health care team looking after their loved one. First impressions as within any first meeting are important. As you can only meet for the first time once, you’d better do your best to make sure it goes well. In order to establish a trusting therapeutic relationship between the patient, their family and the health-care team, rapport must be established quickly. Every encounter can count, but not everything can be planned for. Continue reading
Bethlehem Griffiths Research Foundation scholarships & grants
The Bethlehem Griffiths Research Foundation provides funding support to scientists and health professionals undertaking research projects in the areas of palliative care and progressive neurological diseases.
Applications for 2016 project/equipment grants between $20,000 and $50,000 are due in June 2015. Details can be found here.
Applications for 2015 PhD scholarships are due on 6th February, 2015. Details can be found here.
Elsewhere in the palliverse – Weekend reads without Elissa
Dear Friends,
Another week has passed and there is much to tell, but before we get into let spare a quick (and envious) thought for Elissa who can’t be with us to post today because she is in the middle of a well earned holiday.
Now down to business.
This clip from the Center to Advance Palliative Care (CAPC) describes a novel analogy for our selves that works neatly with a description of palliative care.
The animation is part of a suite of resources that the CAPC has made available here. Continue reading
Tell me, which healthcare hashtags should I follow on twitter?
Too easy.
Symplur has come up with this fantastic list of healthcare hashtags.
You can search for areas of interest, eg. “palliative”
http://www.symplur.com/search/%23palliative
(Hey! I am 6th in worldwide palliative influencers!!)
I am off to check some of them out!
Sonia
Getting the numbers: Clinical trials in palliative care
Clinical medicine is informed by a number of traditions: important among these are the learnings drawn from randomized clinical trials. We may surmise that a new treatment will be effective, but the patient is the teacher, and there is an ethical imperative to carefully monitor the effects of a given treatment. But what of trials among terminally ill patients, receiving palliative care? Continue reading
