Palace of Care/I think therefore I am? – Announcement

Head in HandsPhoto by Alex Proimos under Flicker Creative Commons

To my Palliverse team-mates and our internet friends,

I just wanted to say that it has been a real pleasure working with you all on our Palliverse adventure.

I think we all deserve to give ourselves pats on our backs as we have achieved a lot in our limited collected spare time.

Unfortunately I will have to leave the team, and I apologize in advance for doing it in such a public fashion.

I have thought long and hard about it and with much regret I have to make the right decision for myself and my young family, at this stage in our lives.

It is with a heavy heart that I must bid you all farewell for now. It has been fun while it has lasted and I’ve been very fortunate to have you all in my Palliative Care life. Continue reading

#PCRNV15 Forum

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Thanks to everyone who joined us in person or online today for our presentation at the PCRNV Forum. A special mention must go to James for his great webinar effort! Here is the transcript and analytics for you to enjoy! If you would like to join the Researchers Database, please fill in this Database invitation and send it back to us at Palliverse@gmail.com

Using social media to enhance your clinical and research practice #PCRNV15

PCRNV logo

Team Palliverse is excited to be presenting at the upcoming Palliative Care Research Network Victoria (PCRNV) Forum on March 24th at 5pm AEDT (2pm AWST; 7pm NZDT). We will be talking about the use of social media in palliative care research and clinical practice. Join us in person, via webinar or on twitter!

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Recognising Health – even at the end of life

Recently I had the great privilege of attending the launch of the Lowitja Institute’s Recognise Health campaign at Parliament House in Canberra.

I was invited to represent Palliative Care Nurses Australia at the launch, and was equally delighted to see Liz Callaghan, CEO of Palliative Care Australia, also in attendance to support this important initiative.

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global interventions at the end of life

Professor David Clark’s team are investigating global interventions in end of life and palliative care.
This research project is led by the University of Glasgow and supported by the Wellcome Trust.

Here is a very snappy short youtube video….

Sonia

Reflections on research – supervision and deadlines

Flinders street

Like @Elissa_Campbell, five weeks ago, rather than starting a new clinical rotation at the beginning of the medical year, I too embarked on a research fellowship. For the next twelve months, instead of trying to fit in training requirements and research projects around clinical duties, I have the luxury of being able to devote pretty much all of my time to thinking and learning about research, reading studies properly instead of quickly scanning through papers, and talking to other researchers and clinicians – who are almost always encouraging, interested and incredibly generous with their time and advice.

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#lettertome : A twitter campaign to improve how we share information with patients part 2.

Here is the long awaited second part of Dr Chris Sanderson’s thoughts about #lettertome, where doctors write letters to PATIENTS instead of other doctors……

The idea of #lettertome goes further than sharing a copy of the standard doctors’ letter with the patient. Instead of writing about patients, maybe we could be writing to them. When we reconceptualise what we do in terms of patient-centered care, a letter can have very valuable functions:

  • It explicitly addresses the patient’s role in their own care, as part of the team, and helps them to follow up their own part in the treatment plan
  • It can restate and confirm the discussion that has been held with the patient, for them to use and refer back to – helping to overcome problems for patients of misunderstanding, mishearing, or simply missing much of what is said because they are overwhelmed
  • Likewise, the GP and other clinicians can know exactly what has been communicated to the patient about their situation
  • It can affirm the clinician’s care for the patient, and their plans to address the patient’s problems
  • It can invite the patient to correct or update information that is being shared about them
  • It conveys a fundamental message of respect, of collaboration, and of transparency in communication, and helps the patient to understand how the network of clinicians caring for them are working together in their care – who is doing what, and how they are staying in touch with each other to address the patient’s problems.

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Elsewhere in the Palliverse – Weekend Reads

Has anyone watched Atul Gawande’s Being Mortal series for Frontline in the US? There’s also a selection of shorter videos at the Frontline YouTube page, like the one above.

Oliver Sacks has written a beautiful piece in the New York Times, about his reaction to being diagnosed with a life-limiting illness. (My Own Life: Oliver Sacks On Learning He Has Terminal Cancer) Continue reading

Elissa in Wonderland – Reflections on Research

I feel like I’ve learnt more in the past 3 weeks in my research fellowship than I did in the preceding year of clinical work. It’s a steep learning curve, and one that’s taken me out of my comfort zone.

Doctors are generally very comfortable in their role as clinician, and far less so in other roles, such as manager or researcher. Our training prepares us to be experts in clinical management and even if we don’t know the answer, we know where to go look for it. The positive feedback in clinical work can be rapid (provide an intervention, see an improvement for the patient, repeat, hurrah!), unlike management or research roles. Continue reading

Lighting a candle in the darkness

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“It’s better to light a candle than to curse the darkness” is the mantra of
Dr Bruce Robinson, a lung cancer specialist and professor at the University of Western Australia.

© Nevit Dilmen [CC BY-SA 3.0 , via Wikimedia Commons

© Nevit Dilmen [CC BY-SA 3.0 , via Wikimedia Commons


Founder of The Fathering Project, Bruce has created an Australian example of a public health approach to end of life care. This approach focuses largely on ‘upstream’ social determinants of health that affect an entire population, while the ‘downstream’ focus relates more to clinical treatment of a ‘patient’ presenting to a health service.

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