#thickenedliquidchallenge with @DrMukeshH: Do thickened fluids benefit people with swallowing problems?

The team at GeriPal started the Thickened Liquid Challenge to raise awareness of the use of thickened liquids (or thickened fluids, as I know them) for people with swallowing difficulties. Thickened fluids are frequently prescribed to people with swallowing difficulties, but the evidence for their long-term benefit is unconvincing, as GeriPal’s Dr Eric Widera explains. In addition, they are unpleasant (as you will see from the videos!) and may result in reduced fluid intake and dehydration. You can read more about it (and watch many videos of the challenge) at GeriPal. Continue reading

FREE Palliative Care Trivia Nights Friday 29 May 2015 for #NPCW15

Palliative Care Australia is hosting a number of FREE trivia nights across Australia during National Palliative Care Week, to raise community awareness of palliative care. Trivia nights will be held on Friday 29th May, 2015, In Sydney, Melbourne, Canberra, Brisbane, Adelaide and Perth. Tickets can be booked for no cost via the Palliative Care Australia website. Prizes are available.

Please consider attending, inviting friends and sharing via social media. Of course, attendees do not need to be affiliated with palliative care – in fact, if they have no knowledge of palliative care, all the better to raise awareness.

Palliverse team members will be at the Melbourne and Perth (and maybe other) trivia nights and we hope to see you there.

Periscope – the latest #SoMe for spreading the Palliative Care message?

Has anyone tried Periscope, the new live-streaming video app from Twitter? I used it earlier this week to watch an interview via health journalist (and all round social media star @croakeyblog) Melissa Sweet’s Periscope account. I’m unsure of the potential of this new app at the moment (it could be a great medium for the #thickenedliquidchallenge) but will try it out this weekend when I’m in Melbourne for the Medicine Social health and social media event. (Palliverse’s own Sonia Fullerton is one of the speakers.) You can watch live or on replay for 24 hours after the event.

If you’d like to play along, you can download the app here and follow @palliverse (and @Elissa_Campbell while you’re at it). I think it’s only for iOS at this stage – sorry Android users.

Is the health system designed to crush the creativity and spirit of health professionals?

Do you ever feel like health professional education and the health system are designed to take talented, intelligent, creative individuals and turn them into machines with no ability to innovate? Do you find yourself banging your head against a wall when even the smallest change for improvement requires hours of paperwork (that you probably submitted via fax), approval by numerous committees and months of waiting? Do you feel trapped in a health care silo? Do you feel ridiculous attending “multidisciplinary” meetings when the multiple disciplines are merely different specialties within your own profession?

If the answer to any of these questions is “Yes”, please keep reading. Continue reading

Funding opportunity for emerging researchers in ageing

Applications for the Australian Association of Gerontology’s R M Gibson Scientific Research Fund are now open. “The aim of the R M Gibson Scientific Research Fund is to encourage good research particularly from newer researchers in the fields of ageing across all disciplines. The R M Gibson Scientific Research Fund will distribute $15,000 amongst three cutting edge research projects in 2015.”

For more information see the AAG website.

Want to learn the FUNdamentals of Quality Improvement?

https://twitter.com/QIFUNdamentals

When Sonia posted about the School for Health and Care Radicals (SHCR) back in January, I had no idea that signing up would unleash the radical within me (all for the investment of a few of hours per week).

I am hoping for a similarly mind-blowing, practice-changing experience with Improvement FUNdamentals, an NHS-led MOOC focussing on quality improvement in health and care.

I am sure that, as with the SHCR, we will form ANZ and palliative care sub-communities. You can read more about it and sign up here. It would be great to have some of the Palliverse community along for the ride.

Elsewhere in the Palliverse – weekend reads

weekendreads

I’d recommend the current issues of New Philospher (#7: Health) and Quarterly Essay (#57: Dear Life) for some palliative care-related reading. If you can’t make it to the book shop here are some online reads:

Truly beautiful words – Before I Go: A Stanford neurosurgeon’s parting wisdom about life and time. (The Washington Post)

EAPC has a new blog series from the patient and carer perspective! (Palliative Stories, EAPC Blog)

The Trouble With Advance Directives. (NY Times)

A doctor discovers an important question patients should be asked. (Washington Post)

When doing everything is way too much. (NY Times) Continue reading

Elsewhere in the Palliverse – Weekend Reads

Has anyone watched Atul Gawande’s Being Mortal series for Frontline in the US? There’s also a selection of shorter videos at the Frontline YouTube page, like the one above.

Oliver Sacks has written a beautiful piece in the New York Times, about his reaction to being diagnosed with a life-limiting illness. (My Own Life: Oliver Sacks On Learning He Has Terminal Cancer) Continue reading

Elissa in Wonderland – Reflections on Research

I feel like I’ve learnt more in the past 3 weeks in my research fellowship than I did in the preceding year of clinical work. It’s a steep learning curve, and one that’s taken me out of my comfort zone.

Doctors are generally very comfortable in their role as clinician, and far less so in other roles, such as manager or researcher. Our training prepares us to be experts in clinical management and even if we don’t know the answer, we know where to go look for it. The positive feedback in clinical work can be rapid (provide an intervention, see an improvement for the patient, repeat, hurrah!), unlike management or research roles. Continue reading

8 Things I Wish I’d Known Before Starting My First Research Project

This is advice I give to people starting out in advanced training in palliative medicine (or geriatric medicine, my other training specialty) when asked about research projects*. It may also be relevant to other clinicians wanting to start out in research. The advice is based on my own experience and from talking to other trainees. One-hundred hours into your project, you do not want to discover that your study design is flawed or your results invalid. This advice may help to prevent that.

  1. Your research supervisor does not need to be the same person as your clinical supervisor. Unless your clinical supervisor is also a researcher, I would advise looking for someone else to supervise you, who has a research background. They do not need to come from your specialty or profession (although obviously some familiarity with your broad research topic is important). They may be based in a different city or country (although it may create complications with ethics approvals if your supervisor is from different institution).

Your supervisor can guide you through your study design. This improves the likelihood of producing valid results, which you can then publish and add to palliative care knowledge for the benefit of palliative care patients (because this is why we’re doing this research thing, right?)

If you’re not sure where to start looking for a supervisor, ask an academic in your field if they can recommend anyone. If you want to do palliative care research, the Palliverse researcher database is a good place to start.

  1. Librarians are very helpful. Most hospitals or health services have librarians who can assist you to use search engines, citation managers and other programs more efficiently. The library probably has resources that you don’t even know about.

Continue reading