Palace of Care – A Humbling Day

At the start of the Jail and Bail fundraising event finale our guest speaker Marketing Guru Mike Hutcheson shared entertaining stories from his life and career which inspired us all to think differently. Copies of his latest book were auctioned off within minutes. They can be purchased on his website.

I started my thank you speech with one word.

Why?

I asked everyone to reflect on why they were here at our fundraising event. Why had they chosen to take part this week? They could’ve been at work, or spending their time somewhere else but they choose to spend their time raising funds for my hospice. Why are you on this planet?

I gave them 10 seconds to reflect on their Why before I shared my own.

I am here on this planet to make the world a better place for dying people.

I read out the story about Beds that I had shared last night on Palliverse, LinkedIn and my fundraising page for this event.

The finale was a unique event where all of the bailees, myself included, were too busy fundraising to talk to each other. Necks craned over smartphones and laptops. Beavering away to fundraise as much as possible in the remaining two hours of the event. The 12 busy bailees and their supporters volunteered their time to support our cause.

There’s a lot in the world that can jaundice your vision into cynicism but today I saw people in action for a good cause. It was enlivening to witness community spirit in full flight. Together we did this. A bunch of friendly do-gooders used their creativity to help their fellow community members. Inspirational stuff, everyone from many different walks of life united to crowdfund for hospice.

Four beds had been fundraised for by noon.

Throughout the two-hour finale, we had generated enough funds for five beds and were heading towards six.

I checked my dashboard tonight and found:

The total up to this point is $28051, enough to fund six beds.

And it’s not over yet.

A special thank you to Anonymous for making so many donations.

Thank you to my fellow bailees for being such good sports. Thank you to all donors, your contributions will have a positive impact on the patients and families we serve in our community. Also thank you donors for sharing your kind and encouraging words. They mean a lot to our hospice team. Our patients were people just like you and me, trying to make their way in life when severe illness struck and changed their life journey forever. Knowing you care about them means a lot to them.

Thank you all for making a difference.

Thank you all for Making Hospice Happen.

*Updated* 13/05/16 – Palace of Care/I think therefore I am?: #pallanz Mercy mission #getjnrbak

 

 

Hi everyone,

Situation:  

Poppa is my patient. Grandson “Junior” in Sydney unable to fly back to Auckland because of eye injury. Tearful conversation via internet this morning. Two men heartbroken at the thought that they will never be able to hug each other again.

Background:

Poppa very unwell and worsening rapidly, admitted this morning for hospice care.

Family have tried Cruise lines, Courier companies, travel agents to no avail so far.

Assessment:

Re-uniting Poppa with Junior would provide the greatest comfort.

Recommendation:

Spread the word through all available palliative care networks to see if we can #getjnrbak!

It might have to be via sea because of Junior’s eye injury.

Thanks in advance for your help.

Let’s see if we can provide another example of a real world translation from our Palliative Care virtual community of practice.

Cheers,

James


UPDATE 11/05/16 1700 NZT:

Junior’s medical details were obtained with his permission.

Sean Coleman from Air Ambulance NZ has been very helpful, again – Shipping companies contacted – minimum of 4 day trip by ship.

Freighter Travel company contacted.

Suggestions:  Make-a-Wish foundation could be approached?

Anyone know any super-rich people with a spare super-yacht?


UPDATE 12/05/16 1100 NZT:

Cruise ship company contacted.

No commercial flight options available. Low cabin pressure private jet would cost at least $30000+ one way.

The search continues, people have been leaving suggestions in the comments section, thanks.


UPDATE 12/05/16 1700 NZT:

I made contact with P&O Cruises and they did not have anything available this year.

Junior’s family are also exploring freighter ship options apparently there is a Brisbane to Auckland ship sailing next week. Hamish from Freighter Travel also told me about the same possibility, he was very helpful.

Poppa remains very unwell.

Fingers crossed.


UPDATE 13/05/16 1400 NZT:

No news on the travel front, but Poppa woke up and was comfortable today!

Fingers double crossed that its the start of a trend.

Palace of Care/I think therefore I am? – Special Edition: Palliative Care Mission of Mercy – #getjakbak

Hi everyone this is a last minute fundraising plea to everyone as private citizens.

I am organising for our non-resident patient “Jak” to return back to the Islands. (Real name changed.)

Jak is a 44 year old man with a large abdominal mass found to be cancer with spinal cord compression + lung mets, intra-abdominal abscess resistant to IV Ertapenem – causing fluctuating levels of sepsis.

Has been trying to get back to the Islands for the past month, but hampered by critical illness.

He has stabilized at present and we have one shot at getting him back tomorrow morning at 0915. He can travel if escorted by a doctor. The most discounted fee for a doctor I could negotiate was $3800, which the family could not afford.

I have volunteered my services to look after him on the flight to help Jak get back.

The family with the help of the local Pasifika Community, have fundraised $7400 of the required $10720. They need $NZ3320 by 5pm today in order for Jak to get back home. i.e. in 1.5 hours have received pledges of $720 so far. 1536hrs

So close but yet so far…

Please forward this email on to your own teams and networks.

Every bit pledged will count. I will consider all pledges of assistance.

For those interested in following the journey I will attempt to live tweet/blog it through Twitter:  @palliverse #getjakbak and www.palliverse.com

Thank you for your consideration,

James

1550hrs – $1320
1557hrs – $1520
1611hrs – $1790
1613hrs – $1990

Just need $1330 to grant this young man his dying wish of going home to his family. We can do this team!

1617hrs – $2190
1620hrs – $2210

Only $1110 to go to #getjakbak

1629hrs – $2260
1630hrs – $2425
1631hrs – $2475
1630hrs – $2775
1634hrs – $2925

Only need another $395. Well done team!

1640hrs – $3005
1642hrs – $3085
1642hrs – $3150
1655hrs – $3350
1700hrs – $3400

Thank you everyone we have done it! Any extra funds raised will go towards payment of hospital fees.

Thank you for helping your fellow man. I am proud of you all!

James