Centre for Palliative Care – lecture on palliative sedation by A. Prof Jenny Philip

The Centre for Palliative Care in Melbourne runs a series of Hot Topics lectures for the field. They have kindly published videos of their recent talks, which we would like to share with you.

The Palliverse team are going to start a collection of resources in free open access medical and nursing education (#FOAMed and #FOANed) relative to Palliative Care, and here’s the first addition to the collection.

A.Prof Jenny Philip is a wonderful speaker and takes us on a journey through the controversial issue of palliative sedation. Starting with definition (variable) and incidence (also variable), she describes for us some European guidelines on palliative sedation and then guides a panel of experienced palliative care professionals through three cases exploring issues in palliative sedation.

goo.gl/pAm3Y2

Palace of Care – Musical Interlude

After a tough fortnight at work I decided to change things up a bit at our Multi-disciplinary team meeting this morning.

We’ve been using an iPad to take notes from the meeting for a while now, and today I tried to make it a more multi-media affair.

As well as recording the patients’ stories I also tried to match each of them to an appropriate piece of music.

The rather diverse playlist and patient list eventually became:

Tammy Wynette – Stand by your man – after discussing a man whose ex-wife had returned to look after him.

Imagine Dragons – Radioactive – the correct pronunciation of a patient’s surname.

Avril Lavigne – Complicated – a patient’s complex family dynamic.

The Black Eyed Peas – Where Is The Love – a patient’s long-term relationship with their spouse.

Alicia Keys – Falling – a patient who had repeatedly been falling…over.

Bob Dylan – Blowin’ in the Wind – a patient with malignant bowel obstruction who had started passing flatus.

Cheers,

James

The first conversation

He does not want to talk to me, that much is clear. He has had enough of doctors. He is a man of few words. His eyes do not meet mine. His coarse, calloused farmer’s hands play purposelessly with the starched white of the hospital bed sheet. The gentle hiss of his oxygen is barely heard over the hum of the city traffic below.

Out of his element.

“Tell me, what have the doctors told you about your medical condition?”

A useful question. I need to know how much he knows about his cancer. Not just what he knows, but what he doesn’t know and importantly, what he wants to know.

I have three cancers, he tells me. Lung cancer and brain cancer and bone cancer. The treatment isn’t working. There’s nothing more they can do for me.

A good start. I hit the last bit first. There is always something we can do for you, I say. It’s true, we can’t cure your cancer. But I want to talk to you about the pain you are getting, and the cough. Are there any other symptoms you’d like me to think about? I pick up a few new symptoms that have not been discussed before; low mood, low appetite, altered taste. He becomes more animated. We discuss treatment options and come up with a plan.

I am under some time pressure as he is to be discharged later today, back to the country, several hours drive away. I have fifteen other patients to see. I need to work fast while appearing to work slow. I elect not to correct him on there being three different cancers as I have other things I want to tackle first.

It’s a big ask for a man without high levels of health literacy and education who has just had shocking news. This is my challenge — to put information into terms that he can understand and remember. I pull out a piece of paper to summarize what we have talked out as I go.

Sometimes, often, my agenda is different to the patient’s; it’s good to be aware of this. My agenda today is to talk to my patient about dying and end of life care. He will probably not see another specialist in palliative care in the future.

“Are there any other questions you would like to ask me? Anything that’s worrying you that we have not talked about?”

No, he says. Yes, he means. He looks away. I wait. It’s harder than it sounds. I am better at talking and listening than silence. Silence is a tool, I remind myself. I count to ten very slowly.

I would rather not do this now, but I won’t see him again. Would you like to talk to me about dying?

“I saw my mum die,” he tells me. It was a bad death, with confusion, pain. We talk about his mother’s death. Often, care for the dying is not just about the person, it lives on in memories of those who watched, for decades.

We move on to the specifics of what is likely to happen to him in the next few weeks, the plans to manage his care. Oxygen. Don’t smoke with oxygen. Medications. Who to call if things go wrong. I reassure him that he should be comfortable, that plans are in place to look after him at home, we will speak to the district nurses and to his family doctor about what he might need. Options for care at home or at the local hospital. We agree he does not want to come back to the city again. He does not want to talk about the actual dying bit so I leave it. I give him the piece of paper with the summary of what we have talked about, and make the same old joke I always make about my bad handwriting. If you have any other questions or worries, please feel free to ask, I tell him.

“Thanks,” he tells me and his eyes meet mine again. “I really appreciate you talking with me.”

“It was a pleasure, “ I say, and mean it.

Sonia Fullerton is a palliative care physician in Australia and can be reached on Twitter @sonialf.

I think, therefore I am? – Please take a seat

What the heck was going on in the lounge? A patient’s family and the doctors were sitting on the floor with their legs crossed. Were they about to break out into song? Kumbaya my lord, Kumbaya…? Was this part of the Hospice Yoga Initiative? Mat-time at a new New Zealand charter school? No, it was actually a family meeting.

Family meetings are common occurrences in healthcare settings and are organized in order to convey a point of view, or to try to bring together disparate points of views. These events may actually be the first chance that some of the key stakeholders, i.e. the family and the healthcare team, actually have to meet each other. The first time that the next of kin has made time to meet with the health care team looking after their loved one. First impressions as within any first meeting are important. As you can only meet for the first time once, you’d better do your best to make sure it goes well. In order to establish a trusting therapeutic relationship between the patient, their family and the health-care team, rapport must be established quickly. Every encounter can count, but not everything can be planned for. Continue reading

Palace of Care – Mate

I thought to myself while I was talking to him today, I’m really going to miss this guy, who I’ve been calling mate.

Some people will really pull on your heart-strings. Mate is one of those people. He’s really unwell, and his time is very limited, but he’s still charming the ‘socks off’ of all of the ladies. He’s always very polite, and well-mannered. I’ve been looking after him for the past week or so, and he has been deteriorating on an almost daily basis. He never complains and has never liked to cause a fuss. He’s a shy man, who doesn’t want to be a nuisance, I’ve had to almost beg him to ask for pain relief when he needs it. He has been through an awful lot of pain. It has improved since he came under our care, but it is still there. He has never complained, either before or after his illness was discovered.
Continue reading

Palace of Care

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Hi everyone,

Join me in sharing stories from the lighter/brighter side of Palliative Care.

Cheers,

James

Homelessness in palliative care

Thanks to Michael Bramwell, from Melbourne City Mission, for the following slides:

Homelessness in palliative care

Sonia learns a new word and hopes to impress her colleagues

It’s always a great pleasure to learn a new word and I had such a pleasure this week with “analgesia dolorosa”. In fact, two new terms as it’s also known as analgesia algera.

A pain specialist colleague (thanks C) used the term in reference to a patient who had presented with chest wall numbness and such severe nipple pain on light touch that he has difficulty wearing shirts. He went on to be diagnosed with a metastatic malignancy infitrating his thoracic vertebrae.

So, analgesia dolorosa is different from hyperalgesia which is an increased pain sensation from a normally painful stimulus, and I guess a variation on allodynia which is pain from a normally non painful stimulus.

 

Drop it in to a ward round near you and amaze your colleagues!

 

Sonia