Review article concerning hospital end of life care in NEJM

Not the traditional festive season article perhaps, but this review article by Dr Blinderman and the late Dr Billings provides a good summary in a very reputable and widely read journal concerning end of life care in hospitals in the United States.

Is end of life care in hospital in the US different?

The article reports that 29% of deaths take place in hospitals in America, a bit lower than I would have expected. In Australia, 54% die in hospital but this includes inpatient palliative care deaths which are excluded from the US figure of 29%.

According to AIHW, 42% of the Australians who died in hospital had some involvement from palliative care  (42% of 54% in hospital deaths is 23%) About a third of patients who died as an admitted patient in hospital (a third of 54% is about 15%) died in inpatient palliative care. That still leaves us behind the US, with around 36% dying in a non palliative inpatient Australian hospital bed compared to 29% in the USA.

Interestingly the NEJM article does not refer to subcutaneous medications which are the mainstay of terminal care medication administration in Australia, New Zealand and the UK. Do US practitioners use less SC medication?

Personally I don’t find that cough and nausea are so troubling at the end of life, and we would promote meticulous mouth care for dry mouth ahead of pharmacological management.

The article also advises us to avoid benzodiazepines for delirium including at the end of life, which I found surprising.

Dear reader, do you have any thoughts? What is end of life care like in hospitals in your neck of the woods?

 

European association for palliative care early researcher award

Know a hot young palliative care researcher? Or perhaps you ARE a hot young palliative care researcher?

You might be interested to investigate this award for early palliative care researchers. There are other awards for post docs and for clinical research

http://www.eapcnet.eu/research2016/

You will have to get your proverbial skates on as applications close 13th December. The EAPC research congress is in Dublin in June 2016.

 

 

 

Palace of Care – When a man loves a woman

2When a man loves a woman

They had spoken their marriage vows decades ago, but things didn’t work out as planned. They split up many years ago – for whatever reason? I never found out, it was just too inappropriate to ever ask.

The ex-wife became progressively more unwell over the past months. The ex-husband arrived from many thousands of miles to help out, leaving his second family behind.

Things rapidly worsened, and she started to lose her functional abilities. She knew that the end of her life was coming and she made preparations for her own funeral. Her anxiety worsened as her body and it’s senses started to fail her. She became increasingly confused and uncomfortable. The family tried their very best to keep her at home, but they became physically and emotionally exhausted, and could not cope as her condition worsened.

She was admitted to our in-patient unit and knew that she would die there. Now that death was soon approaching, it made her fear grow to intolerable levels. He promised his ex-wife that he would be at her side until the very end, his calm and steady voice brought peace to her. The days passed and her condition deteriorated, sleep became a brief and unfamiliar acquaintance to him. He was physically drained, emotionally wrought but yet he was dedicated to maintaining his vigil.

I’m not sure what he said to her that last night, but I know that he emptied out his heart. He told me with tears in his eyes that after he had said what he needed to her, that she had taken her last breath, and then her life was over.

I’m not sure what had happened to them in the past, to break them apart, but when she needed him the most, he had been there.

Death and dying in the media

coming up

Q&A. Love it or loath it, or maybe a bit of both. But there is no denying that it strikes a chord with a sizable portion of the Australian population who would perhaps rather not be watching A Current AffairToday Tonight or their new lovechild: The Verdict. Continue reading

Caring for the spirit

Pastoral Care Week 2015

It’s Pastoral Care Week!

The 2015 theme Spiritual Care Together offers those of us working in the area of palliative care an opportunity to take the time to pause; to reflect, and consider the ways in which we all can, and do, contribute to spiritual care for the dying and their families.

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World Hospice and Palliative Care Day 2015

WHPCD15

World Hospice and Palliative Care Day is a global day of action organised by the Worldwide Hospice Palliative Care Alliance and held on the second Saturday of October every year. It aims to:

  • Raise awareness of the needs of people and families living with a life-limiting illness
  • Create opportunities to talk about the issues around improving access to hospice and palliative care around the world
  • Raise funds to develop and support hospice and palliative care services around the world

The theme this year is “Hidden Lives, Hidden Patients” – focusing on people whose palliative care needs are often not recognised, such as children, indigenous people, those living in rural settings, prisoners, soldiers, and lesbian, gay, bisexual, transgender and intersex individuals.

To help to raise awareness about “Hidden Lives, Hidden Patients”, Palliverse and Palliative Care Australia invite everyone to join us for a tweet chat on Thursday, October 8th using the hashtag #PallANZ  Continue reading

Decision Assist – education for GPs in EoL care

GPs in Australia are managing increasing numbers of older Australians with complex progressive conditions. I am managing a project that is producing education and resources to support GPs provide the best care of this patient cohort in the last year of life. Palliative medicine specialists and trainees have an opportunity to participate in this project by letting informing their networks of the activities of the project and participating in educating GPs in their service’s catchment area to help promote linkages.  This blog post is to give you all an outline of this work and information on how to get more involved.

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Palace of Care – My kingdom for a horse…

Stig Nygaard Pårup  Christmas 2010

Stig Nygaard
Pårup
Christmas 2010

A few years ago I had formulated a plan to reunite a patient, who had been in inpatient care for a number of months, with his horse who I had been informed, he missed dearly. Something had been lost during the clinical handover – the patient had actually sold his horse some months prior. Instead I arranged for him to receive the Trackside horse-racing channel, and assured him that he could do phone-betting. I filed the plan away in the recesses of my brain, and looked forward to bringing it out again if the opportunity ever arose again to make use of it.

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Renal supportive care weekend

St George model

[Prof Mark Brown discussing the renal supportive care model at St George Hospital]

21-23rd August, 2015 | St George Hospital, Sydney

It was the fifth annual symposium but the first master class. A truly multi-disciplinary audience comprising nephrology, palliative care, geriatrics, trainees, specialists, nurses, social workers, dieticians, et al met on a warm and wet weekend at the St George Hospital in Sydney. All shared a commitment to making life better for individuals with advanced kidney disease. Continue reading

Palliverse people’s database

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(Image: University of Michigan Library Card Catalog by dfulmer / CC BY)

We have updated the Palliverse researchers database and temporarily renamed it “Palliverse peoples database“.

Why, I hear you ask?  Continue reading