National Palliative Care Week 2015 at Alfred Health

How would you choose to live, if you were diagnosed with a life-threatening illness?

What are the most important things in your life? What can’t you live without?

Pal and Carey - #NPCW15 mascots #dyingtotalk

Pal and Carey – #NPCW15 mascots #dyingtotalk

The theme of National Palliative Care Week (24-30th May) this year is “Dying to talk; talking about dying won’t kill you”. In fact, talking about how you want to live and die can be empowering and bring you closer to those who matter most to you. On the other hand, not talking about it can lead to regret – both for you but also for those you leave behind.

As part of National Palliative Care Week, the Palliative Care Service at Alfred Health hosted a public forum on Monday, discussing the topic: “The Top Five Regrets of the Dying”, based on a book by Australian palliative care nurse Bronnie Ware.

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Posters from the 11th Asia Pacific Hospice Conference

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Here is a collection of posters from the recent Asia Pacific Hospice Conference in Taipei – primarily by researchers and clinicians from Australia and New Zealand. Enjoy!

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Reflections from Taipei – 11th Asia Pacific Hospice Conference

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Over 1300 delegates from the Asia-Pacific region and beyond congregated in the Taipei International Conference Centre at the beginning of May for the 11th Asia Pacific Hospice Conference (APHC). With a theme of “Transforming Palliative Care”, there was a particular focus on public health and the development of palliative care in countries where it is not yet well established. It was wonderful to meet clinicians, policymakers, teachers and researchers from near and far – from China to the Philippines, Mongolia to Saudi Arabia, Argentina and the United Kingdom – and discuss shared problems and discover new ways of doing things!

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Elsewhere in the Palliverse – Weekend Reads

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Hope everyone is enjoying the live tweet-feed from the 11th Asia Pacific Hospice Conference in Taipei, Taiwan #APHC2015. Just between you and me, I think James has gone slightly crazy as he morphs into a rapid-fire, live-tweeting demon from Taiwanese folklore. For a more measured account of the first few days of the conference, check out this article from ehospice.

Other interesting things to help you while away your weekend:

  • Weather forecasting and prognostication (Pallimed)
  • Global atlas of palliative care at the end of life (WHO / WHPCA)
  • Rita Charon on honouring the stories of illness (YouTube)
  • Anything but the D word in this famous sketch from Monty Python (YouTube)
  • The latest issue of the ANZSPM Newsletter

Happy May Day / International Workers’ Day!

Elsewhere in the Palliverse – Weekend Reads

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(Jacaranda tree in the Royal Botanic Gardens, Sydney)

comprehensive review of Medicare was announced this week, which has the potential to significantly impact how healthcare is delivered in Australia. Opinions abound (a small sample here, herehere, and here) but details are scarce. This announcement is timely, with the release of Australian Medical Association’s annual report card on public hospital services last week (reactions here and here) and the upcoming launch of Choosing Wisely Australia on April 29th (more on this herehere and here).

Also this week, Queensland and Victoria joined New South Wales in conducting clinical trials on the use medicinal cannabis (other reports herehere and here). Information about the trial and law reform process can be found here, here and here. Palliative Care Australia has also provided a submission.

Other reads:

  • Physician suicide, burnout and self-care
  • How to answer the question: “Am I dying?”
  • Book of abstracts for the 14th World Congress of the European Association for Palliative Care

Finally, it’s ANZAC Day: Lest we forget.

Elsewhere in the Palliverse – Weekend Reads

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(Another beautiful day in Apollo Bay)

Conversations that Count Day took place across New Zealand this week (on April 16th). Read a selection of the various conversations and discussions generated around this event hereherehere, here, here and here.

At the same time, the US National Healthcare Decision Day promoted similar conversations across the pacific. An excellent collection of resources from Pallimed can be found here.

The Victorian Auditor-General’s Office released its report on the provision of palliative care services in the state this week. It’s findings and recommendations are both heartening and  worrying. Mainstream and palliative care media responses can be found here and here.

The Australian Medical Association also released its position statement on Palliative Approach in Residential Aged Care Facilities earlier this week.

Many of us love a great TED talk. Haven’t heard of them? Or simply looking for a few more to feed your addiction? Check out this playlist on “New ways to think about death”.

A few reflective pieces to fill your head and heart this weekend:

And finally, here’s another plug for our new fellow survey.

Have a lovely weekend everyone!

New fellow survey

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(Image via wikipedia)

Are you a “new fellow”? Have you recently qualified (or about to qualify) as a palliative medicine specialist (FAChPM +/- FRACP)?

Transitioning from advanced training to consultant-hood can be a challenging time in one’s career. Help us understand how best to support you by completing this brief and anonymous survey: https://www.surveymonkey.com/s/NZ97VVL

Thank you!

Palliverse researchers database update

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(Image: University of Michigan Library Card Catalog by dfulmer / CC BY)

The latest update of the Palliverse researchers database is here! Our numbers continue to grow and we will be talking about (and hopefully recruiting for) the database as a poster presentation at the upcoming Asia Pacific Hospice Conference in Taipei, Taiwan. Come and say hello in person if you will also be attending!

Once again, if you’ve have any stories associated with the database, we’d love to know! Email us at Palliverse@gmail.com

Happy Easter everyone!

#PCRNV15 Forum

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Thanks to everyone who joined us in person or online today for our presentation at the PCRNV Forum. A special mention must go to James for his great webinar effort! Here is the transcript and analytics for you to enjoy! If you would like to join the Researchers Database, please fill in this Database invitation and send it back to us at Palliverse@gmail.com

Palliative care funding opportunities update

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(Image by by Jeff Belmonte)

NHMRC

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