Palace of Care – Where There’s a Will

Photo by Miguel Bruna on Unsplash

Willpower can be like a superpower for some people. Through sheer force of will they can make themselves stand up from their deathbed and walk to the toilet. I’ve witnessed people hold on until the arrival of overseas relatives. People who I can’t explain through physiology how they could still be possibly alive two weeks after they had any oral intake of food or fluid. What hidden reserves do they draw upon to sustain themselves? I don’t know, I can’t explain it with science. There is still much we do not know.

Let the force be with you. Well, it certainly is with some of my patients. The sheer force of determination. Or is it love? Or faith? People can hold on to life despite the worst of circumstances. Viktor E. Frankl and others could survive concentration camps because they had something to continue living for. What if you do not want to live any longer? What if life is full of pain and has become unbearable? What if you spent your whole life in control but have lost control at the end of your life?

I’ve seen many former professional people who had spent their careers in charge of people, struggle when they have lost control. They included school principals, charge nurses, managing directors, coaches and military leaders. They had guided their staff through difficult situations but had trouble guiding themselves through their final situation. The existential distress of dying caused them much suffering. Some of them would’ve requested an assisted death if it had been available to them. Some people will try their hardest to die and may wake up disappointed each morning they survive.

I’ve watched feeling powerless as people put as much effort as possible into dying naturally. They willed themselves to stop living and expended many hours in distress when it didn’t work. As in the rest of their lives when they wanted to achieve something they had pushed as hard as they could. Striving with the full force of their will to grab onto something that would take them away. Losing their last shreds of patience and sometimes shaking their faith, they kept trying harder and harder, beyond exhaustion.

Until.
They.
Finally.
Let.
Go.

Other people, like my patient from Europe, could let themselves go. They may have said their goodbyes to the people they needed to. They might have had one last family reunion or spent one last night with their loved ones. They did what they needed to, finished their business, and then relaxed and let themselves drift away. To sleep perchance to dream.

Guest Post – Rishika Iyer 5th Year Medical Student – Addressing the empathy in the room: a poem

Of the words most used in medical school,
Empathy is number one.
Em-pa-thy, they recite from the dictionary. Diligently, we write it down.
From the German, einfühlung, or ‘in feeling’, noun:
‘the ability to understand another person’s feelings, experience, and so on’

And I wonder,
Why they fail to teach us of the Germans,
Who felt the need to combine ein with fühlung and give it meaning.
What 19th century experiences must have underpinned such a decision?
I wonder,
Who are these people that sense deeply, perceive freely?
Where can I find a dictionary of their stories?

Because in the end,
A ‘so on’ isn’t something we can rote learn.
It gathers cobwebs inside a brain that is unable to sit still.
Between tutorials and theatre lists and post-acute Ward rounds,
We forget that true empathy surpasses what we write down.

So I thank you,
From the bottom of a heart that’s still growing,
For bringing life to a phrase that German scholars gave meaning.
Once elusive, empathy runs through the very veins of this establishment,
And I create my own dictionary of stories that exemplify this.

Rishika joined our hospice team for the past five weeks. She generously wrote this poem reflecting on what she had learned during her time with us. Thank you Rishika, we look forward to reading more of your writing in the future.