Palace of Care – Before You Go

Photo by Ekaterina Shakharova on Unsplash

Yesterday afternoon she told her story well. She recounted her recent bouts of illness which had culminated in her last hospital admission. She was keen to go home as soon as possible. The way she looked it appeared she had a good chance of making it there. The plan was to optimise her symptom control and then discharge home would be considered. She was in good spirits and was glad to have arrived in our inpatient unit.

The first night was disturbed by worsened pain, agitation and confusion. When we reviewed her the following morning, she was very unwell. This once talkative lady was unable to respond to voice. We diagnosed that she was dying. Generations of the family were asked to gather together to say goodbye to our patient as her time appeared to have shortened. Her medications were adjusted to maintain comfort.

I was surprised when her son told me that his mother had woken up and was talking to her family again. This was in time for the visit by her grandchildren. She enjoyed seeing them, hugging them and talking to them during a nice afternoon. By the evening she was exhausted and drifted off into another restless sleep. She never woke up again.

My science couldn’t explain how this dying lady had gathered what remained of her limited energy in order to be there for her visiting grandchildren. The last hurrah or the final rally is something I have witnessed too many times in palliative care settings. It really is a thing. A person can wake up from a coma to provide a final gift to their loved ones. Yet another mystery we often encounter at the end of life.

Palace of Care – Surprise!

Photo by Tyler Nix on Unsplash

“Where is your pain?”

He grimaced as he pointed towards the left side of his neck.

“How would you score it out of 10, with zero being no pain and 10 the worst you’ve ever felt?”

Jaw clenched tightly he opened his gritted teeth to tell me, “7 out of 10.”

It looked more like 17.

The pillow seemed to swallow up his head. Loose skin covered his arms and torso, signs of significant weight loss.

“I’m not sure if I’ll make it.”

He was scheduled to be heading home at the end of the month, but I was unsure if he’d still be alive at the end of the week. “I don’t know either, but we’ll take it one day at a time.”

Over the next three days, he worsened each day, heading back home was not going to be an option. The family would have to bring home to him instead. They made urgent plans to travel to visit him. The clock was ticking away his life. Would they make it in time?

Yes.

Their arrival had a surprising effect.

His face brightened when they came to see him. He became more alert and he was able to recognise each of his family members.

The next day he was able to eat more food.

Two days later he walked to the bathroom without assistance.

Five days later he wanted to go to the home of one of his local children.

His family’s arrival from afar had improved his condition in ways that medications could not.

The power of love had provided him and his family with bonus time. It might not last long but they would make the most of it at home together.

He died twenty days later surrounded by his family.

I think therefore I am? – Milestones

Photo by Towfiqu barbhuiya on Unsplash

There is something about the human spirit, some amazing inner strength that people have that allows them to hold on for special occasions. Two major milestones for people are Christmas Day and New Year’s Day. Out of the past ten years I have worked 8/10 of the New Year’s holidays. What usually happened was that no matter what spiritual belief people had they would likely hold on for Christmas Day, and possibly for New Year’s Day and then we would see a large number of people dying once they had achieved their milestone(s.)

Sometimes it can be living through their wedding anniversary, or beyond a loved one’s birthday.
People often will try not to die on a significant other’s birthday, so that the birthday will not be spoiled from thence on.

How does a comatose person even know the date let alone know what the time is? Somewhere deep inside ticks a very accurate body clock? People may be holding on for special occasions such as the wedding of their child, or grandchild. Or it might be the birth of the newest family member.

In Aotearoa New Zealand a lot depends on the national religion. People will hold on for the Rugby World Cup – the Rubgy League World Cup, not so much.

How can a person sense their environment when they physiologically have been made insensate?

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