Palace of Care – I want to try

Photo by Robyn Louise on Unsplash

How was your walk around the garden?

It was good, nice to be in the sun again, I couldn’t do that at the hospital. I got a bit puffed and had to stop a few times, but I’m okay.

Any pain anywhere?

No, not at the moment. There was before but the medication helped.

Please tell us if you are uncomfortable, we don’t want you to put up with pain or anything else making you uncomfortable.

Okay, I’m good at the moment.

Did you tell the doctors in the hospital that you wanted to go back home to the Islands?

Yes.

What did they say?

They weren’t too keen. They said that I probably wouldn’t make it because of the illness.

What do you think?

I really want to go home. I came here to have treatments, but there are no treatments left. I want to go home and see everyone else.

I think that you still have a chance to go back, but we have to act on it fast, as things can change fast at any time. We’re going to check your blood tests and see what needs to be done. We want you as comfortable as we can get you. You might still not make it.

I want to at least try to go. If I can’t go then I’ll stay, but I want to try.

Okay, we’re aiming to get you back home. We’ll look at your medications and arrange for stuff that you can take with you. We’re going to ask our other team members to help you make plans to travel as soon as possible. If it works out, great, if not at least we have tried.

Thanks, doctor.

Okay we’re going to try to make it happen, see you later.

Bedside Lessons – 18b. A troubled young man Part 2

Photo by krakenimages on Unsplash

His blood test results came back and were unusually good, the blast cells were reduced in numbers compared to on admission. Bloods were repeated weekly, and they continued to improve, to the point that there were no longer blast cells present at all. The Haematologist was contacted about this unexpected finding. She was surprised as his blood tests hinted at something that they had never been able to achieve before. Was this a remission?

A bone marrow biopsy was urgently organised, and revealed a pre-Christmas miracle – remission was confirmed. Somehow his disease had been controlled, by what we all did not know. Plans were hastily made for our patient to undergo a bone marrow transplant, with everyone’s hopes raised that it would lead to longer term control.

Our patient had mixed emotions, since he had become sick this was the first time that he had received good news, and he didn’t know how to handle it. He didn’t celebrate his remission as much as his family and clinicians did, as he couldn’t totally believe it. He was discharged home to his family’s rented home for Christmas together, with everyone hoping that a better year lay ahead.

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