Palace of Care – Hot Potato

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Increasing doses of pain relief had not eased his pain. He was becoming confused and sleepy. The decision was made to admit him, there was a lot to sort out. His main caregiver was his wife and she was exhausted. Neither of them had slept for days. His medication list was like a pharmacy textbook and included members of almost every medication category. Many medications had sedating side effects. Polypharmacy – One man, 25 medications. We started to remove as many medications as possible.

We took away one medication per day over the next weeks. If there were no ill effects we would remove the next one, and the next one. His liver enzymes had been working overtime for many years. Medications had been started to treat the side effects of other medications. Older medications which were not working for his condition had been continued for a long time, as he had always been on them. We trimmed his list down as much as we could, removing ten items. We needed to be able to justify every medication that we kept on his list. Slowly but surely he resurfaced. He was able to sleep at night and be awake during the day. At the same time, we worked on his pain.

There were several different pains in various joints of his body. It had started almost ten years ago, and it had taken years for him to be diagnosed with an illness which caused multiple joint pains. The pain was never fully controlled, it became a chronic pain case and he had been referred by his chronic pain specialist for pain control. We searched all of his electronic medical records but could not find a life-limiting illness, he did not fit into our referral criteria. He had terrible pain but was not dying of anything. (I believe that chronic pain doesn’t just shorten quality of life but likely quantity as well.) He had been living with his physical suffering for almost a decade. I suspected that he had suffered from non-physical pain for much longer following a harrowing loss over four decades ago, that he couldn’t talk about. I’m not sure he had ever dealt with his grief, and instead poured himself into the work of helping others. We continued to work on his pain and over the next weeks we had brought it mostly under control.

The pain would still flare up at times but overall was better controlled. His medication list had had dramatic weight loss. We began to make discharge plans. His family told us that his wife had health issues of her own, and they worried about the elderly couple and how well they coped looking after each other. With the family’s input, we made plans to transfer him to a long-term care facility. It had been a successful admission and we discharged him from our unit. As he had no other specialist palliative care needs we discharged him from our service back to the care of the chronic pain team and his general practitioner. The couple showed their appreciation with many hugs as we said goodbye to them.

I think therefore I am? – Hospice Discharges

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Discharge from a hospice is a good thing. It doesn’t happen often. Most people die under our care. Occasionally there will be some people who actually stabilise and even improve so much that they no longer require our care. Possibly one of their treatments has worked, and their illness has been controlled. We are not sure how long this stable period will last, but they should make the most of it.

We’re happy to provide our services to those who need them, and we are also happy to step back if our services are no longer required. As I said this is rarely the case. It can be a real bonus for the person to do much better than any of us would’ve imagined. It’s a bonus for us as well to have uncommon success stories. If we discharge you from our service maybe we should hand out a commemorative t-shirt or a baseball cap. “I survived hospice!”

In this line of work, you have to remain open-minded and flexible. Almost anything could happen and you have to be able to go with the flow. Nature can be so fickle at times and what is going to happen can’t be predicted. There is an element of chaos in all of our lives. Some people will have a natural tendency to not be neat and tidy. They might not act as predicted. A chaotic life will lead to a person having a chaotic death as well. People stay true to their nature, even in the end.