Palace of Care – Why Me?

Photo by BP Miller on Unsplash

J: Hey man, I’m sorry for your loss. Do you have a few minutes brother?

X: Yeah.

J: Let’s go in there again. [Points to the right] You asked me why your Dad would only talk about it in your presence. I think he knew you would be able to handle it.

X: [Nod]

J: The family meeting the other afternoon was tough. Your Dad told everyone how he felt and what he wanted but the family weren’t able to listen, especially Aunty.

X: [Nod]

J: Even with all the voices raised, I heard what you said, how you advocated strongly on your Dad’s behalf. He heard it as well. You had his back, that’s why he said it in front of you first. You were really there for your him when he needed support the most, that’s something to be proud of. That impressed me, you’re a good man.

X: Thanks Doc.

J: Dad didn’t get exactly what he wanted but the gods heard his cry for help and responded.

X: [Nod]

J: You take care brother.

X: [Handshake]

Palace of Care – Gotta Work

Photo by Kyle Hanson on Unsplash

He loved to work. He said it made him happy. He said it took his mind away from what he was going through with his illness. The doctor had given him bad news. Time was going to be short, possibly only weeks left to live. He still wanted to work, he had asked his boss to bring in a laptop, and other work equipment. He said he wouldn’t do too much work, and that if he was too tired he would stop.

His wife looked doubtful and talked about trying to spend all her time with him, but he chose to work even when she was there. This was something that she couldn’t bear to watch. It had happened too often. She wanted me to tell him to stop working. I couldn’t tell this dying man not to do something that would make him happy. I tried to negotiate a compromise between them.

“I’m not here to tell you what to do. You’ve been told you might only have weeks left to live. How you use your time is up to you. I can’t make those decisions for you. You need to think about how you want to spend whatever time and energy you have left. I’m here to take away whatever stress I can. I don’t want you two arguing at this stage of your relationship. Why don’t we try to balance things out more? Your wife needs to take a break, maybe go home for a few hours a day. Why don’t you work when she has gone out? When she comes back, then it’s time to stop working. Do you both think that will work? My staff and I will keep an eye on you, we don’t want you overdoing it, and if it looks like you are exhausting yourself we will tell you to work less. Thank you both for agreeing to try this out. I will be checking in with you both, to see how much breaks/work you both have/do.”

I wasn’t sure how well it would go. It is hard not to be yourself after a lifetime of being in the role. People stay true to themselves right to the end. That being said just in the past days he had agreed to be baptised into his wife’s life-long religion. A huge change for a man who had been an atheist over his adulthood. I would try to keep an open mind and see what happened next.

Palace of Care – GPS

Photo by Brecht Denil on Unsplash

You are the driver, not me.

You’re in charge.

I’m just here to help you.

Think of me as your GPS.

I’m here to guide you.

To try to make your journey as smooth as possible.

I’m going to show you what is up ahead of you.

I’ll do my best to anticipate the dangers or obstacles to come.

I’m going to present you with options.

I will make my recommendations but it is up to you which path you want to take.

I will listen to you, so please tell me what you want, what you need.

I will help you get through this journey, and your family too.

You’re the driver.

It’s all about you, not me.