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About soniafullerton

Palliative physician, mum of three.

Hello, my name is…..

I go to see John* on the ward. He’s been admitted for pain management. He tells me that the plan is for some chemotherapy next week. Who was it who said that? I ask. He shook his head. “I dunno, there are so many…. I have no idea who most of them are. “

It can be so hard to work out who is who in the health care setting.

Dr Kate Grainger was a senior doctor in the NHS in the UK when she was diagnosed with cancer. She was shocked that people looking after her and even doing procedures on her did not introduce themselves. Before her death, she started a worldwide campaign called #hellomynameis. Its aim is to encourage healthcare staff to introduce themselves to patients. This improves patient satisfaction, participation in care, and also patient safety.

One thing that can help is to understand how the hierarchy works in the hospital setting. Yes, it’s a hierarchy! The consultant, or senior doctor, is the leader of the medical team. An inpatient in a hospital bed might see them every few days.

The doctors who come around each day to see all their patients are the registrar, the mid-level doctor who makes the day to day medical decisions. They are likely to be in a training program to become a specialist.

The most junior member of the medical team is a resident, who can also be called an intern or junior medical officer. They don’t make as many management decisions themselves, but carry out the requests of the registrar and consultant.

Alongside the many excellent bedside nurses caring for you, you may also be seen by allied health professionals. These could include a physiotherapist, an occupational therapist, a social worker, a pharmacist, a spiritual care worker, and more.

Make sure you know who the team members are who are looking after you. I hope everyone greets you with a friendly, “Hello, my name is….”

Have you had an experience in the hospital setting where it was hard to work out who was who?

Hot topic

Hot topic webinar by the Centre for Palliative Care

Management of NIV in MND & elective withdrawal of ventilation

 4:00PM – 5:00PM Wednesday 30th June 2021

https://www.centreforpallcare.org/events/75/hot-topic-webinar-management-of-non-invasive-assisted-ventilation-in-motor-neurone-disease-and-elective-withdrawal-of-ventilation

Motor Neurone Disease (MND) is a fatal neurodegenerative disease affecting some 2000 Australians. Average life expectancy from symptom onset is around 30 months. 

Patients show different clinical phenotypes and rates of progression. Death usually results from ventilatory failure secondary to progressive respiratory muscle weakness and can be complicated by aspiration and respiratory infection. Offering respiratory support through non-invasive assisted ventilation (NIV) is considered best practice and can improve quality of life, symptoms and survival in selected patients. Patients usually begin using NIV overnight to improve sleep and daytime wellbeing. Over time, most will use it increasingly across the day, with some becoming NIV dependent. 

Some patients who are dependent on NIV may ask that it be stopped. This is their right. It is not assisted suicide or assisted dying, it is withdrawal of medical treatment. Withdrawal of ventilation needs to be thought through and carefully discussed and planned to ensure that the patient is comfortable throughout the process and both staff and family/carers are supported. 

This presentation gives the opportunity to hear from and ask questions of specialists in Neurology, Respiratory Medicine and Palliative Medicine about the management of NIV in MND and elective withdrawal of ventilation.

Register

International opioid conversion survey

The team at MD Anderson ask

Are you a #palliative care provider who prescribes opioids, performs opioid rotations and conversions? If so, please take our 5-10 minute survey to help us with our study. #HPM #HAPC #PALLONC

https://mdanderson.co1.qualtrics.com/jfe/form/SV_3TYiCLWRmO8RRzf

University of Melbourne survey for frontline health professionals on the impact of COVID

STUDY PURPOSE

This survey explores the important social, occupational and mental health effects experienced by frontline health workers during the COVID-19 pandemic and beyond. As the pandemic has changed our social and work environments in many different ways, we want to hear the experiences of both frontline health workers who have and have not worked directly with people with COVID-19.

We will examine factors that promote good mental health and wellbeing, as well as risk factors for poorer mental health. Your input will inform recommendations to healthcare organisations and other professional bodies.

https://covid-19-frontline.com.au/

WE WANT YOU

This study focuses on the experiences of medical, nursing, allied health, clinical scientists/physiologists/technicians, healthcare students and clerical staff who are working in the following frontline areas:

  • Anaesthetics/Peri-operative Care
  • Emergency Medicine
  • General Medicine
  • Hospital Aged Care
  • Infectious Disease
  • Intensive Care
  • Infectious Disease
  • Palliative Care
  • Paramedicine
  • Primary Care
  • Respiratory Medicine

People working in other frontline health areas (such as medical or surgical areas) are also welcome to take part.

You do not need to have worked directly with people with COVID-19 to participate, as we would like to hear from all frontline health workers.

Caring@home seeks translators – Vietnamese and Tagalog

caring@home project – seeking translators

The caring@home (www.caringathomeproject.com.au) project is looking for palliative medicine specialists or trainees to review some resources for carers being translated into Vietnamese and Tagalog.  caring@home has produced resources for carers to support carers to help manage breakthrough symptoms safely using subcutaneous medicines.

A company that uses accredited translators have been contracted to do the work but the project has also requested the opportunity to have a health care professional, who is a native speaker of the language, to review the translation and subtitles.

The work would be expected to be completed in May and June. They are able to offer a stipend for this work of $800 + GST upon receipt of an invoice.

The work is to review the following after they come back from the translating service:

If you are interested in undertaking this work, please contact Karen Cooper, Project Manager for caring@home on E: Karen.Cooper3@health.qld.gov.au or M: 0428 422 818.

Immunotherapy Symptoms Clinical Trials: a new paradigm Melbourne Wed 12th June

Would you like to learn more about immunotherapy use and trials in cancer and in palliative care?

Immunotherapy Symptoms Clinical Trials: a new paradigm forum

Palliative, supportive and cancer care professionals are invited to attend the VCCC and CST co-hosted Immunotherapy Symptoms Clinical Trials: a new paradigm forum to progress clinical trials concepts in this evolving oncology field, recognise achievements, celebrate success and make connections for future directions. 

Palliative care progress and achievements

The VCCC Building Trial Group Capability Program initial investment is focused on developing the palliative care group as a key priority area. The group’s development and activities have been underway for more than 12 months; it is timely to celebrate progress and achievements.

Here is a program for the day

Registrations are now open for the palliative care sessions in the afternoon. Please note you will need to register for morning and afternoon sessions separately.

Survey for Australian doctors – medical practice in treatment of delirium

ANZSPM has received the following request from Dr AnnMarie Hosie, Post-doctoral Research Fellow, IMPACCT – Improving Palliative, Aged and Chronic Care through Clinical Research and Translation, University of Technology Sydney

MEDICAL PRACTICE IN THE TREATMENT OF DELIRIUM

You are invited to participate in a brief (10 minute) online survey about medical practice in the treatment of delirium.

The survey is for medical professionals working clinically in Australia.

Your time and insights towards better understanding of clinical practice for this common and serious medical problem will be greatly appreciated.

For more information, and to begin the survey, please click on this link: Medical practice in the treatment of delirium

If you have any queries, please contact Dr Annmarie Hosie at annmarie.hosie@uts.edu.au

Conversations with patients in palliative care by Dr Matthew Grant

Dr Matthew Grant, a palliative care specialist, has published this article in The Conversation describing normal conversations in the course of his daily work.

I love the way he sensitively maneuvers through difficult conversations, allowing the patient to control the content of prognostic information given.

   “Not everyone will feel comfortable talking about their future treatment plans like Keith. It’s important I allow Sharon to decide whether or not she wants to talk about a future where she dies, just as I shouldn’t necessarily dissuade Christos from smoking if it gives him pleasure.”

Continue reading

Kimika Lee wins leadership and innovation award

Kimberley Palliative Care Aboriginal Health Worker, Kimika Lee, has been recognised for her tireless work in the community by winning the Leadership and Innovation Award at the Western Australia Regional Achievement and Community Awards this month.

The local Yawuru Broome woman and mother of six said winning the award was a remarkable moment and one she never thought would happen.

See the article in Palliative Matters, thanks Palliative Care Australia

Asia Pacific hospice network presents webinar on dyspnoea 29th October

In conjunction with World Hospice and Palliative Care Day 2018, the APHN will be holding the second APHN Webinar 2018.  Partners all over the region will be screening this webinar at various venues.

AHPN posts, “We are honoured to have Dr Neo Han Yee speaking on the topic of “Management of Dyspnea”. Dr Neo is currently a Consultant at the Department of Palliative Medicine at Tan Tock Seng Hospital.

“Join us! This webinar is FREE for all palliative care colleagues, so SIGN UP NOW at this link. Registration closes when slots have been filled up.

“We would like to thank all participating organisations for hosting this event and supporting this APHN initiative.

“For more information contact Joyce at aphn@aphn.org or call +65 6235 5166. ”

From the website I am not sure whether health professionals who are not in the listed locations are able to participate in the webinar. Palliverse will find out and get back to you.