Elsewhere in the Palliverse – Weekend Reads

photo by David Mao itsdavo

I hope you enjoy this selection of articles (and some links to photos and videos) about palliative care, research and related topics. If you make it to the bottom, I’m interested to know what you think of the last link. Please share your thoughts, and any recommendations, in the comments section.

  • “Why is so difficult to prognositicate?” asks neurologist Jules Montague, examining cases of poor prognostication throughout history. (Why doctors get it wrong, The Guardian UK)
  • Team Palliverse still have a place in our heart for textbooks, and we love it even more when their editors write blog posts. To mark the release of the fifth edition of the Oxford Textbook of Palliative Medicine, the OUP blog is publishing a 3-part series titled “Facing the challenges of palliative care”. Part 1 (Continuity) and Part 2 (Development) are available now. (Oxford University Press)

  • Dr Thomas J Lynch makes the argument for patient-centred outcomes research (PCOR) in palliative care, on the ever excellent End of Life Studies blog.

It appears to me that patient-centeredness is indeed the key to outcome measurement in palliative care – more than at any other time in a person’s life it is the “end” where there truly is a “point” to patient-centered research.

  • I remember following US journalist Scott Simon as he tweeted from his dying mother’s bedside in 2013. He recently published a memoir, “Unforgettable: A Son, a Mother, and the Lessons of a Lifetime.” This article briefly examines social media as a “public space for mourning”. (“Unforgettable”: Would you tweet about your mother’s death? Australian Financial Review)

“No one seemed to care, or even notice me. It’s already very easy to feel ignored in New York City, but as Kikuchiyo-san, I sometimes felt totally invisible” 

  • Here’s one idea for writing a thesis: write daily blog posts – even if you don’t publish them. (Writing in the middle, The Thesis Whisperer)

One thought on “Elsewhere in the Palliverse – Weekend Reads

  1. I am not too old Elissa… my 5 year risk of dying is 0.3% which is equivalent to that of a 32 year old woman living in the UK. This is a bit (ahem) younger than I actually am. Win!
    The death simulation thing is very .. bizarre. I wonder how it effects participants after the experience, does it influence their attitudes to life and death?

    Like

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