Hot topic

Hot topic webinar by the Centre for Palliative Care

Management of NIV in MND & elective withdrawal of ventilation

 4:00PM – 5:00PM Wednesday 30th June 2021

https://www.centreforpallcare.org/events/75/hot-topic-webinar-management-of-non-invasive-assisted-ventilation-in-motor-neurone-disease-and-elective-withdrawal-of-ventilation

Motor Neurone Disease (MND) is a fatal neurodegenerative disease affecting some 2000 Australians. Average life expectancy from symptom onset is around 30 months. 

Patients show different clinical phenotypes and rates of progression. Death usually results from ventilatory failure secondary to progressive respiratory muscle weakness and can be complicated by aspiration and respiratory infection. Offering respiratory support through non-invasive assisted ventilation (NIV) is considered best practice and can improve quality of life, symptoms and survival in selected patients. Patients usually begin using NIV overnight to improve sleep and daytime wellbeing. Over time, most will use it increasingly across the day, with some becoming NIV dependent. 

Some patients who are dependent on NIV may ask that it be stopped. This is their right. It is not assisted suicide or assisted dying, it is withdrawal of medical treatment. Withdrawal of ventilation needs to be thought through and carefully discussed and planned to ensure that the patient is comfortable throughout the process and both staff and family/carers are supported. 

This presentation gives the opportunity to hear from and ask questions of specialists in Neurology, Respiratory Medicine and Palliative Medicine about the management of NIV in MND and elective withdrawal of ventilation.

Register

#CrazySocks4Docs – #PalliativeCare Edition

Join Team Palliverse for #CrazySocks4Docs day on Friday 4th June 2021!

We will be wearing your craziest socks & hosting a zoom chat to shine a light on the mental health of palliative care doctors, nurses, allied health professionals, researchers, educators, managers & leaders. COVID-19 has made it harder for all of us trying to do our bit for palliative care – those working on the frontline, behind the scenes & on the home front. So to misquote Timothy Leary for our pandemic generation – let’s all “turn up, zoom in & chill out”!

  • Grab a well-deserved drink / generous amounts of chocolate / cuddly animal or doona & settle into a comfy chair / snug beanbag / cozy bed around 8pm NZST (New Zealand) 6pm AEST (Sydney / Melbourne / Brisbane / Canberra) / 5:30pm ACST (Adelaide) / 4pm AWST (Perth) on Friday 4th June 2021
  • Pick up your laptop / tablet / phone & punch in / click on / head to: https://usc-au.zoom.us/j/89540252267
  • Be excellent to each other while catching up with old friends, making new ones & chatting about anything, everything & all things palliative care & self care!