Annie’s Story

Palliverse is excited to welcome a  Guest Contributor – Molly Williams – who shares with us “Annie’s Story” ahead of our #PALLANZ tweetchat on paedriatic palliative care (#pedpc) this Thursday 30th June at 7pm AEST.

Molly Williams

Pictured: Dr Molly Williams

Molly is a paediatric oncologist now in the last 6 months of training in paediatric palliative care. She has a particular interest in supportive care in cancer – the idea of creating a culture of concurrent curative and palliative cancer management & giving kids the best chance of cure while not sacrificing their quality of life fills her with enthusiasm & glee! She has a personal fascination with positive psychology and creative anachronisms, and makes her own beer, cheese and tonic water!

Hope you can join us at #PALLANZ  on Thursday to chat about many more stories like Annie’s. If you would like to share your story with our community, email us at palliverse@gmail.com

@AnnaLCollins


Annie’s Story, As Told By Her Doctor

By Mollie Williams

This is a story about working in paediatric palliative care. It is all about Annie, which is not her real name actually but it is a perfectly true story apart from that. Continue reading

#ANZSPM16 Conference 2016 – early bird registration closing soon!

ANZSPM 2016

The Australian and New Zealand Society of Palliative Medicine (ANZSPM) will be holding its biennial scientific meeting in Perth between 8-11th September, 2016. The theme of ANZSPM 2016 Conference (#ANZSPM16) is “The Changing Landscape of Palliative Care”.

Palliverse is excited to announce that we will be working with ANZSPM to enhance the overall Conference experience by harnessing the power of social media.  We will be facilitating the sharing of knowledge from the Conference, encouraging discussion and debate within and beyond the Conference halls, and providing hands-on social media support before, during and after the event.

If you haven’t registered yet and you are keen to come, why wait?  You can find out more about the event and register for it here.  And – if you register by the 30th of June you will be eligible for an early-bird discountContinue reading

Upcoming #PEDPC #PallANZ Tweetchat

Palliative Care Needs of Children & Adolescents

This month, we are excited to explore how palliative care can help to support young people in our community living with serious illness! Our upcoming #PALLANZ tweetchat to be held at 7pm (AEST) on Thursday 30th June will discuss topics related to the palliative care needs of children and adolescents and their families. We will also be featuring some guest blogs from new Palliverse Contributors working with young people in Paediatric Palliative Care (#pedpc).

During our #PALLANZ tweetchat, we hope to bring together those interested to talk about how a kid’s #pedpc service can help young people with serious illness to live well; when a young person might meet the #pedpc team; and where they might like to receive care. We’ll also imagine we have a magic wand able to do anything we want to improve the available supports and share these ideas and other helpful resources!

PallANZ 201606

Continue reading

New web resource: End of Life law in Australia

A new website from the Australian Centre for Health Law Research aims to provide practical legal information for consumers, practitioners and the community, in relation to End of Life law in Australia.

End of Life law in Australia covers the key aspects of the law for each Australian jurisdiction, and includes laws relating to advance directives, guardianship, palliative care, withholding and withdrawing life-sustaining treatment, organ donation and euthanasia.

Please contact ACHLR Coordinator Penny Neller for further information and/or contributions.

 

Control & Decision Making

elizabeth

Taken from my hospital room on a good day

I’ve been in hospital for the last three weeks, and have just returned back home (finally!).  It has been both a very difficult physical experience dealing with pain management and a wound, but also a mental journey for me.

 

A lot of what I read about palliative care, and my own experiences as well, have been about control; the control that palliation gives you over the time you, as an individual, have left, rather than the often more passive involvement of care when engaging in active treatment.  Throughout my treatment, I’ve been eager – possibly to my own mental and emotional detriment – to remain highly active with what has been going on.  I make guesses as to what might be causing pain or discomfort or other symptoms, explaining to my doctor what it must mean as he compassionately and respectfully listens to my ideas that I’ve gotten from my half-hearted reading of an abstract from a medical journal.  Continue reading

An unexpected journey into aged & palliative care

albany wind farm

Albany wind farm

This post is a year overdue. If I were to have written this in April 2015, the title would have been “The tale of two deaths” where I would have reflected upon the peaceful, managed and expected passing of a 93-year-old aged care patient contrasted with the tragic accidental death of a 19-year-old patient whom I’d seen only a week earlier.

But what I’ve learnt is that tragic accidents are random, unexpected and do not happen often. More importantly I have been involved in the end-of life care of several patients since then, that have taught me a great deal about palliative care medicine, the value of open and frank conversations with family and some of the myths surrounding the management of death.

This is also a story of my maturity through being stretched and learning that the part of medicine that I ran away from the most has ended up becoming my greatest passion and future, aged and palliative care.

Continue reading

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