Elsewhere in the Palliverse: Weekend Reads

Hi and welcome to the first “Elsewhere in the Palliverse” for 2015. There is an (unintentional) geriatric flavour to this week’s links. This is possibly because today marks the end of a six-month geriatrics rotation for me, or maybe because another year has ended and birthday has passed. Regardless, I hope that Palliverse readers enjoy the following links:

Dementia researchers Muireann Irish and Rebekah Ahmed give their take on the new film adaptation of Still Alice, a novel about a 50 year old woman who is diagnosed with Alzheimer’s disease. Have you read the book? Will you see the movie? (Still Alice: A rare look at how dementia steals memories from millions – The Conversation)

Professor Rod McLeod gives some background on his article in this month’s European Journal of Palliative Care, ‘Making it easier to die at home – an innovative programme in New South Wales, Australia’. (Making it easier to die at home – EAPC Blog)

Continue reading

Social media – find of the day

Admittedly it’s early in the day…. but here’s my find of the day.

The Palliative Review by @kpedmonds  just floated across my Twitter feed.


It’s got a STACK of good reading, from utility of thickened fluids in dysphagia to a thoughtful piece on palliative research priorities. You can subscribe to receive emails of this compendium. This is an example of something I think have talked about before, “curation”, when someone does all the hard work and collects the good stuff for you.

Enjoy!  Sonia

A Tour of the Teams: ImPaCCT

Happy New(ish) Year everyone!

To celebrate we are starting a new segment.  It goes without saying that many people and groups around our region are doing wonderful and exciting work in palliative care research but it can feel a little lonely out there for many of us.  Finding support to develop your idea, and others with a similar interest can be a challenge.  In addition to the palliverse researcher database we thought another way for us all to feel connected was to start to get to know the more established players.  So let’s start with some introductions.  We have been contacting the various academic and research institutions working in palliative research in our region asking them to tell us a little bit about themselves.  “Tour of the teams” will be an ongoing series to bring the responses from these units together.

Unfortunately an actual "tour" was voted as impractical

An actual “tour” was unfortunately deemed impractical

We hope that the “Tour” will help us all be a little more connected and maybe to give us all some ideas of where we can get help to develop that great research idea that we have been sitting on.

The service who gets the gold star for being first off the mark is the ImPaCCT group

Continue reading

Self-care: Is it selfish?

Did you work over the holiday break?

Unlike many times in the past – this year I didn’t work a shift on Christmas Eve; or Christmas day, or even New Years. I spent this time with my family. And I turned off my electronic gadgets (well, for the most part)!

I spent quiet time reading. How refreshing it was to have no agenda, and nothing that just had to be done. The only trouble was that, somehow, this felt quite indulgent.

After all, we are trained to care for others – but perhaps not so enlightened on the art of self-care. Is it selfish? Or does genuine care for others perhaps start with yourself? Continue reading

How to rock the boat without falling out – interested in Change?

For this week’s social media post we visit The Edge and the change and innovation folks from the NHS in the UK. The School for Health and Care Radicals is running a free online course. Here’s what they say about it below…..

Rock the boat and stay in it! Anyone who wants to bring about change has to be ready to break the rules. But in health and social care, that can be really difficult. The art of rocking the boat while staying in it is something it seems no-one is ready to help you learn. That’s where the School for Health and Care Radicals (SHCR) comes in. Brought to you by NHS Improving Quality, the School is entirely based online, is completely free, is backed by the world’s largest health organisation: the UK’s National Health Service (NHS), and is a platform for radicals to learn together, using powerful, guided learning which also qualifies for Continuing Professional Development points*.

The School for Health and Care Radicals is a free, five-week virtual learning programme for change activists in health and care. Five modules Absolutely free 9.30am-11.00am GMT Friday morning online sessions (or catch-up when you’re able) Handbook and study guides Social Guided Learning Use it how you want! If you’ve been frustrated by having to navigate stifling hierarchies to get the changes you know are needed, or criticised for being a dissenter, disruptive or even divisive, then the School for Health and Care Radicals is for you. It’s more than just a school – it’s a platform for learning, and a community of people like you. You can read more about the School on our FAQs page.

See more at: http://www.nhsiq.nhs.uk/9022.aspx#sthash.aphbFb9p.dpuf

I am joining up so I hope to see you there. It’s a good time for south eastern Australia, at 20:30 on a Friday night, but I understand that you can do it at any time. The Edge also publishes an e-newsletter which is free – heaps of interesting and inspiring reading there from thinkers and leaders in health. The Edge makes connections between people worldwide who are interested in transformational change and disruptive innovation in health and care. http://theedge.nhsiq.nhs.uk

Cheers, Sonia

NHMRC seeking feedback on guidelines for use of publicly funded data

Australian researchers: The National Health and Medical Research Council (NHMRC) is currently seeking feedback on their draft guidelines Principles for accessing and using publicly funded data for health research. More information on the NHMRC website.

2014 in review – here are the stats from our first year!

The WordPress.com stats helper monkeys prepared a 2014 annual report for this blog.

Here’s an excerpt:

A New York City subway train holds 1,200 people. This blog was viewed about 5,200 times in 2014. If it were a NYC subway train, it would take about 4 trips to carry that many people.

Click here to see the complete report.